Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Lasik Surgery


jennavive00

Recommended Posts

jennavive00 Explorer

I have been having tons of problems with my eyes since about the time I started having major celiac symptoms (diagnosed in August), and haven't been able to wear contacts for months. I went in for a LASIK consultation, and my doctor told me that Celiac Disease is on the list of unapproved conditions for having the procedure. Apparently it is an auto-immune disease, and they are afraid of problems with the healing process. He told me he thought it would most likely be fine, but until it was removed from the list, they would not be able to perform the procedure. I'm going crazy in my glasses...Has anyone ever heard of this before or have any evidence to suggest otherwise? Has anyone had LASIK and been fine?

Thanks,

Jenna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HouseKat Apprentice
I have been having tons of problems with my eyes since about the time I started having major celiac symptoms (diagnosed in August), and haven't been able to wear contacts for months. I went in for a LASIK consultation, and my doctor told me that Celiac Disease is on the list of unapproved conditions for having the procedure. Apparently it is an auto-immune disease, and they are afraid of problems with the healing process. He told me he thought it would most likely be fine, but until it was removed from the list, they would not be able to perform the procedure. I'm going crazy in my glasses...Has anyone ever heard of this before or have any evidence to suggest otherwise? Has anyone had LASIK and been fine?

Thanks,

Jenna

I had LASIK in June 2006, before I knew that I had Celiac, and I had no problems or complications at all.

Kate

Silly Yak Pete Rookie

I had lasix surgery in Sept 2006 with great results!

ravenwoodglass Mentor
I have been having tons of problems with my eyes since about the time I started having major celiac symptoms (diagnosed in August), and haven't been able to wear contacts for months. I went in for a LASIK consultation, and my doctor told me that Celiac Disease is on the list of unapproved conditions for having the procedure. Apparently it is an auto-immune disease, and they are afraid of problems with the healing process. He told me he thought it would most likely be fine, but until it was removed from the list, they would not be able to perform the procedure. I'm going crazy in my glasses...Has anyone ever heard of this before or have any evidence to suggest otherwise? Has anyone had LASIK and been fine?

Thanks,

Jenna

You may want to consider giving things a bit before doing the surgery. You may find that your eyes calm down after you have been gluten-free for a while longer. Some of us will experience vision problems when glutened or CC'd due to the brain fog. Another thing we can have problems with is dry eyes, this can make wearing contacts tough but the doctor may be able to provide a solution or even a different type of contact to take care of the problems. Another thing you need to do, if you haven't already, is get your blood sugar checked. Gluten issues can cause issues with blood sugar and that can also effect the vision. Many gluten-free foods are higher in carbs than their gluten counterparts and some of us in the first few months deal with gluten cravings with treats, that can lead to prediabetic or diabetic levels until we learn to adjust a bit better. One of the first indications that I get that my sugar is high is blurred vision and I think that may be fairly common.

Fiddle-Faddle Community Regular

I do notice that my contact lenses are much more comfortable than they were before going off gluten.

I had a lot of trouble finding soft contact lenses that worked. The first opthalmologist I saw tried ONE pair on me, and told me that I simply couldn't wear soft lenses.

A couple of years later, a colleague raved about an optometrist, not an opthalmologist (and from Sears, no less!!!), and strongly recommended that I see him, which I did (despite doubts). I'm so glad I did--the optometrist was SO much better at fitting the lenses than the fancy-schmancy opthalmologist!

He tried 5 different brands before one was both comfortable and provided clear vision.

Honestly, I felt like going back to the opthalmologist and asking for my money back.

There is also an autoimmune dry eye syndrome called Sjogren's, which is likely linked with celiac, and people with it usually see a lot of improvement after going off gluten.

As far as Lasik goes, last I heard (from an eye surgeon), if you have had Lasik and develop cataracts when you are older, they are unable to do cataract surgery. Hopefully, they will come up with a way around that in the next decade or two (if they haven't already).

Gemini Experienced
I have been having tons of problems with my eyes since about the time I started having major celiac symptoms (diagnosed in August), and haven't been able to wear contacts for months. I went in for a LASIK consultation, and my doctor told me that Celiac Disease is on the list of unapproved conditions for having the procedure. Apparently it is an auto-immune disease, and they are afraid of problems with the healing process. He told me he thought it would most likely be fine, but until it was removed from the list, they would not be able to perform the procedure. I'm going crazy in my glasses...Has anyone ever heard of this before or have any evidence to suggest otherwise? Has anyone had LASIK and been fine?

Thanks,

Jenna

You should have the blood test for Sjogren's Syndrome, which is very common with Celiac Disease. It will cause dry eye and dry mouth because your autoimmune system attacks the salivery and lacrimal glands. A person can have some improvement after going gluten free but it never goes away and you will have ongoing problems from it.

A good eye physician would never do any laser surgery on a person with Sjogren's because it can cause major problems as you age. It will dry the eyes out even more and can cause abrasions on the cornea. Contact lenses are also not a good idea, for the same reasons. I have Sjogren's myself so know what I am talking about. There is a Rx eyedrop called Restasis and it works wonders with relieving dry eye so this might be an option for you. Take care of your eyes because if compromised, you may have serious problems as you age and you never want to mess with your eyesight. I wear my glasses and do not mess around with contacts or anything else for fear of damaging the cornea. Good luck to you and I hope you find relief!

jennavive00 Explorer

Yeah I guess I should give it a little more time before I rush into surgery. I've tried just about every brand and type of contacts, seen just about every optometrist and opthamologist at my hospital...I suggested that Sjorgen's condition to the opthamologist, but he brushed it off pretty quickly because I don't have dry mouth. I think I'll go ahead and have the blood test done anyway, I should have learned my lesson about doctors after I diagnosed myself with Celiac Disease after they tried to blame "IBS".

Thanks everyone for your suggestions, it's good to know I'm not the only one having these problems :)

~Jenna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced
Yeah I guess I should give it a little more time before I rush into surgery. I've tried just about every brand and type of contacts, seen just about every optometrist and opthamologist at my hospital...I suggested that Sjorgen's condition to the opthamologist, but he brushed it off pretty quickly because I don't have dry mouth. I think I'll go ahead and have the blood test done anyway, I should have learned my lesson about doctors after I diagnosed myself with Celiac Disease after they tried to blame "IBS".

Thanks everyone for your suggestions, it's good to know I'm not the only one having these problems :)

~Jenna

Go with your gut instinct, which it sounds like you will. I, too, share a basic distrust of doctors due to prolonged diagnosis time, which resulted in additional related problems. If I ever get one more eye roll from a physician, I'll explode! I think the reason they get so annoyed is that I figured out my problems before they did and requested testing, which came back positive.

I don't think you have to necessarily have dry mouth to have Sjogren's, either.

If your eyes are unusually dry and bothersome, it can be Sjogren's and it's good to know you have it. A rheumatologist is the person to go for diagnosis.....it's a connective tissue disease. Good luck to you!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.