Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Introducing Myself


writerspice

Recommended Posts

writerspice Newbie

Hi everyone - I have found my way to this forum, with lots of questions (and more and more as time goes by!) So I thought I would start by introducing myself...

I came to the realization that I have a gluten problem after trying to get pregnant for four years with no luck and no explanation other than a thyroid problem (but meds created other problems). My naturopath finally suggested that I go off gluten "just to see" and I was amazed. After suffering from chronic constipation, exhaustion, stomach pains, headaches and the like for the past, um, life, it was incredible to suddenly feel so great.... That was nice, but, like many here, I am not feeling so hot these days, since the first few weeks.

So, I have a few questions.

First, I'm wondering about chili powder and curry powder. Are there some safe versions? I haven't given much thought to these sort-of secondary things like spices, shampoos, make-up, and tea. Can those all present problems? I'm a regular black tea drinker - can it possibly have gluten in it??!

I'm also wondering about nutritional support - if I should be taking something to help heal my intestines. I am eating well (but probably not getting enough exercise) and am still having problems with constipation (this came back, after everything being okay for awhile)....

Also wondering if there are some good news stories about anyone struggling with infertility who went off gluten and ended up getting pregnant.

Thanks so much. This has been so overwhelming. Even tonight, I think I ate okay but am getting these weird tight pains in my abdomen that are new to me. At least I don't feel like I'm going to throw up, though. that's an improvement.

Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast
Hi everyone - I have found my way to this forum, with lots of questions (and more and more as time goes by!) So I thought I would start by introducing myself...

I came to the realization that I have a gluten problem after trying to get pregnant for four years with no luck and no explanation other than a thyroid problem (but meds created other problems). My naturopath finally suggested that I go off gluten "just to see" and I was amazed. After suffering from chronic constipation, exhaustion, stomach pains, headaches and the like for the past, um, life, it was incredible to suddenly feel so great.... That was nice, but, like many here, I am not feeling so hot these days, since the first few weeks.

So, I have a few questions.

First, I'm wondering about chili powder and curry powder. Are there some safe versions? I haven't given much thought to these sort-of secondary things like spices, shampoos, make-up, and tea. Can those all present problems? I'm a regular black tea drinker - can it possibly have gluten in it??!

I'm also wondering about nutritional support - if I should be taking something to help heal my intestines. I am eating well (but probably not getting enough exercise) and am still having problems with constipation (this came back, after everything being okay for awhile)....

Also wondering if there are some good news stories about anyone struggling with infertility who went off gluten and ended up getting pregnant.

Thanks so much. This has been so overwhelming. Even tonight, I think I ate okay but am getting these weird tight pains in my abdomen that are new to me. At least I don't feel like I'm going to throw up, though. that's an improvement.

Thanks :)

Hi Writerspice, welcome!

It does, sometimes, get worse after going gluten free before getting better. Hang in there. I also got stomach cramps/weird pains after going gluten free but they are mostly gone now.

McCormicks' spices are always gluten free (or they will say that they are not gluten-free on the label). I use their chili powder and curry powder all the time. I also drink Lipton's black tea and green tea and they are both gluten free. Some teas do have gluten (there was a recent thread about Tzao teas on the "Products" forum of this site) and flavored teas especially can be suspect. So check out your brand/flavor by calling the manufacturer or looking on their website.

I can't remember where I read about pregnancy success w/previous infertility after going gluten-free...maybe search this forum under the "pregnancy" topic. I read that some infertility specialists test all patients and that in Europe it is common to test infertile couples. Good luck to you!

~Laura

writerspice Newbie

Thanks so much, Laura. I appreciate the reply. Will try the spices you recommended, if I can get them up here in Canada. I looked at the ingredients on my fave tea (black tea) and there was nothing listed but tea. Does that mean there's no gluten in it or is it sometimes not mentioned or does this depend on the labelling laws (like I said, I'm in Canada, so maybe it's different if you're in the U.S...) Anyway, any thoughts you have would help... Thanks again :)

kevsmom Contributor

Welcome, Writerspice! Please feel free to ask any questions that you have. Someone here is bound to have the answer. If they don't - they will find out for you.

When you first go gluten-free, you will find so much information - don't let it overwhelm you. You can only absorb so much at one time. Don't worry - after a while it will seem like second nature.

Cindy

writerspice Newbie

Thanks, Cindy. The questions just keep coming...

Daughter-of-TheLight Apprentice

Welcome! Ah... about the supplements.

I don't really know a lot, but I do know this. Because our intestines are not absorbing nutrients properly, we sometimes need to take supplements. I take Iron, Calcium, and some Teen Girls multivitamin. I suggest you research the topic and get some input from your doctor on which nutrients are deficient. I was anemic... though since i'm "growing" (HA!) I need to take calcium to prevent calcium deficency... but I have no idea what your needs are, so I can't suggest anything.

Light

gdobson Explorer

Hi Writerspice and welcome.

I had 2 miscarriages before going gluten free, but I managed to have 2 wonderful children - although both premature and one is celiac.

I have heard of many other women who had difficulties getting pregnant before going gluten-free, and then were able to conceive after.

I wish you a lot of luck, happiness, and health.

Gina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

Welcome writerspice. I have also had some signs of improvement, then got worse. For me it has been a number of things.

Stopping use of gluten containing personal products helped. Starting l-glutamine to help with the gut healing has helped.

Are you also milk-free? If you are celiac, many many cannot tolerate milk, at least early on in the healing process.

I had to go both milk and soy free. I figured out the latter by doing an elimination diet. Soy can also cause damage to the villi of the intestine, according to research.

Also my lyme disease recurred after doing Gluten-free Casein-free, so I am having to treat that again which complicates the healing process.

Re the constipation, for me it has been an intestinal motility issue...where the gluten and perhaps other things, just shuts things down. The weird tight pains for me I think are a sign of the intestines "waking up" and starting to work. After 6 months, I have some amount of daily stool with the help of a morning and evening dose of buffered vitamin C powder that also has magnesium in it. I now take half of the dose of that I was taking in the early summer. I also now have diarrhea much more often than I used to. I was bloated before but rarely uncomfortable, I am now more aware of the discomfort. My sense is that this is simply a gradual healing process and I need to be patient.

One other thing, have you done any other treatment for parasites?

kevsmom Contributor

Writerspice,

When I first went gluten free, I thought I was doing really well...and then I realized that my vitamins contained gluten! It even said so right on the label.

You also need to check to see if any medication that you take is gluten free. You can check this website: http:/www.glutenfreedrugs.com or write/phone the manufacturer directly.

Cindy

cyberprof Enthusiast
Thanks so much, Laura. I appreciate the reply. Will try the spices you recommended, if I can get them up here in Canada. I looked at the ingredients on my fave tea (black tea) and there was nothing listed but tea. Does that mean there's no gluten in it or is it sometimes not mentioned or does this depend on the labelling laws (like I said, I'm in Canada, so maybe it's different if you're in the U.S...) Anyway, any thoughts you have would help... Thanks again :)

Canadian products can be quite different, I hear. There are a lot of Canadians on this board, so I'd post a question on the "Products" part of this forum. I'm sure you'll get some good help on that.

~Laura

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.