Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Water Retention!


kelsey

Recommended Posts

kelsey Newbie

hello, im an 18 year old female from Canada

ive always been a size 00, and could eat vicariously without worry. one day i woke up with an appetite like no other. i began eating more wheat and grains which i rarely ate before. My stomach would bloat to the size of a 7-8 month pregnant woman. the abdominal pain got SO bad that i was rolling on the bathroom floor thinking i would die. i was rushed into emergency asap but they said all i was, was low in iron! that was A WASTE OF TIME! the truth is before i got that blood work from the hospital (3 DAYS BEFORE) i was high in iron! So i started retaining water. i went from a size 00 to a size 2/3 in 1 month. i thought it was fat but it dosent look like fat.

i heard that u can retain water where it looks like fat. I eat a lot of food. and when people hear a lot- they dont realize how much. i can eat 5 large pizzas a day and STILL be hungry, its sick. yet ud think id be bigger than i am. i lost my period too which is weird. im always tired, i take iron pills that dont help. my joints are sore. im constipated but i used to have elephant like poops (sorry haha.) im thirsty a lot too. my skin gets itchy a lot as well

PLEASE, i need to know whats going on!. i miss being tiny me. i know its sounds bad because im lucky to still be small, but i mean when none of ur clothes fit u feel horrible.

it cant be normal to literally BINGE on food and then the next day/ morning feel HUNGRIER!

i get tests done soon, but do u guys think im celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Joyous Enthusiast
hello, im an 18 year old female from Canada

ive always been a size 00, and could eat vicariously without worry. one day i woke up with an appetite like no other. i began eating more wheat and grains which i rarely ate before. My stomach would bloat to the size of a 7-8 month pregnant woman. the abdominal pain got SO bad that i was rolling on the bathroom floor thinking i would die. i was rushed into emergency asap but they said all i was, was low in iron! that was A WASTE OF TIME! the truth is before i got that blood work from the hospital (3 DAYS BEFORE) i was high in iron! So i started retaining water. i went from a size 00 to a size 2/3 in 1 month. i thought it was fat but it dosent look like fat.

i heard that u can retain water where it looks like fat. I eat a lot of food. and when people hear a lot- they dont realize how much. i can eat 5 large pizzas a day and STILL be hungry, its sick. yet ud think id be bigger than i am. i lost my period too which is weird. im always tired, i take iron pills that dont help. my joints are sore. im constipated but i used to have elephant like poops (sorry haha.) im thirsty a lot too. my skin gets itchy a lot as well

PLEASE, i need to know whats going on!. i miss being tiny me. i know its sounds bad because im lucky to still be small, but i mean when none of ur clothes fit u feel horrible.

it cant be normal to literally BINGE on food and then the next day/ morning feel HUNGRIER!

i get tests done soon, but do u guys think im celiac?

That's a pretty serious symptom to just appear out of nowhere like that. Fluid retention is a symptom of Celiac Disease (as are some of the other things you mentioned), but I don't know enough about Celiac Disease to say if this is common or not, but it sounds like you've got some sort of digestive problem. The gastro doctor will probably evaluate you for parasites and a lot of other things as well.

I hope you find your answers soon. :)

  • 2 years later...
gfquestion Newbie

hello, im an 18 year old female from Canada

ive always been a size 00, and could eat vicariously without worry. one day i woke up with an appetite like no other. i began eating more wheat and grains which i rarely ate before. My stomach would bloat to the size of a 7-8 month pregnant woman. the abdominal pain got SO bad that i was rolling on the bathroom floor thinking i would die. i was rushed into emergency asap but they said all i was, was low in iron! that was A WASTE OF TIME! the truth is before i got that blood work from the hospital (3 DAYS BEFORE) i was high in iron! So i started retaining water. i went from a size 00 to a size 2/3 in 1 month. i thought it was fat but it dosent look like fat.

i heard that u can retain water where it looks like fat. I eat a lot of food. and when people hear a lot- they dont realize how much. i can eat 5 large pizzas a day and STILL be hungry, its sick. yet ud think id be bigger than i am. i lost my period too which is weird. im always tired, i take iron pills that dont help. my joints are sore. im constipated but i used to have elephant like poops (sorry haha.) im thirsty a lot too. my skin gets itchy a lot as well

PLEASE, i need to know whats going on!. i miss being tiny me. i know its sounds bad because im lucky to still be small, but i mean when none of ur clothes fit u feel horrible.

it cant be normal to literally BINGE on food and then the next day/ morning feel HUNGRIER!

i get tests done soon, but do u guys think im celiac?

Wow, it is insane I have almost the same exact thing. Well literally the same exact except for the itchy skin. What was your result? I'm still waiting to be tested.

ravenwoodglass Mentor

Wow, it is insane I have almost the same exact thing. Well literally the same exact except for the itchy skin. What was your result? I'm still waiting to be tested.

The original post was from about 3 years ago but the water retention issue is a common one for us. After I was diagnosed I lost so much water weight I dropped down from a size 12 to a 4 in less than a month and also lost a full shoe size. When glutened I have my belly blow up again to the point where I look preggers and many of us experience that. It is also not uncommon for some of us to eat a lot of food and not gain weight as we are not absorbing our food. There are also some of us who gain weight when we get stricken with this disease so that can happen also.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,601
    • Most Online (within 30 mins)
      7,748

    rita jean
    Newest Member
    rita jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.