Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Weight Gain Support Thread


gfp

Recommended Posts

gfp Enthusiast

Sympathetic though i am to those who have problems loosing weight on a gluten-free diet many of us actually have the opposite problem.

I know my issues are complex, involve not eating regularly etc. but also some adsorption issues. Heck, I'm typing this now wondering if I should go out and if I can be bothered to eat knowing full well if I don't it will be 8PM before i do...

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest hungryman
Sympathetic though i am to those who have problems loosing weight on a gluten-free diet many of us actually have the opposite problem.

I know my issues are complex, involve not eating regularly etc. but also some adsorption issues. Heck, I'm typing this now wondering if I should go out and if I can be bothered to eat knowing full well if I don't it will be 8PM before i do...

I fully understand you dilemma. For many years I found myself unable to gain weight and, at between 155 and 160 and just under 6' tall, I was more than a tad thin.

Earlier this year, I finally quit smoking and that seemed to signal metabolic changes that allowed me to gain weight. I have gained nearly 20 pounds in just 11 months, which is a miracle.

All I can say is hang in there, try to eat healthily and, of course, gluten free, and try to get some exercise regularly. It might not make overnight changes, but you will probably feel better both physically and mentally.

One thing to do is to eat regularly, even if it is just a small amount, and to get plenty of liquids (water) to stay properly hydrated.

CarlaB Enthusiast

Hi Steve.

I was having problems keeping my weight up, so I was eating several times per day. I don't see how you can gain weight, or even stabilize it, if you don't eat until 8PM. :) Maybe you can carry snacks with you ... I know you are a very good cook and like cooking, but perhaps you like to "dine" so much that you don't find it worth the bother to make a snack or a "lesser" meal.

I was resorting to whey protein shakes ... well, still am twice per day. I just take whey protein powder, water (or juice), and frozen fruit. Blend. I use BioChem vanilla whey. It tastes great ... the "natural" flavor is nasty though.

I know you've mentioned eating raw/undercooked meat. I'm not going to say you shouldn't as I like a rarish steak myself ... but I recently tried a product called Humaworm for a bacterial problem I had in my intestines. Ended up I had a rather large beef tapeworm! :o :o What a shock that was!

Anyway, you might see if you don't have the same problem. I'm finding it's not so hard anymore keeping the weight on now that the tapeworm is gone ... I haven't gained much, but I'm not having to eat twice as much as someone twice my size anymore.

Daxin Explorer

I am SO glad to find other people with this problem. Pre dx, I was 6'3" and almost 200 lbs, healthy etc. By the time the doc figured out my "problem" I was down to 155 lbs and fading fast. I was afraid I would disappear.

Since then, I am one of about 4 people that he local dietician has told to actually ADD fat to their diet. It's all supposed to be good fat mind you, but still. I am allowed to eat as muach nuts and cheese as I can handle. I eat my three meals a day as I'm supposed to, but I'm still having at LEAST on snack before bed, and some nights, hungry before midnight.

Just over one year since my dx of "gluten intolerance" I've managed to put back a little over 7 pounds.

Is there anything I'm missing? The doctor doesn't want to call it a fast metavolism, but there has to be something else. Suggestions?

Rikki Tikki Explorer

Hi Steve:

It took me about 3 years to put on weight, part of that was being sure everything I ate was gluten free and I think part was just my body adjusting to the years of not getting nutrients, but it has finally come back and now I could stand to lose 5 pounds, be careful what you wish for! :D

mellabella Newbie

Thank you to CarlaB!!!! I'm a 20 year old female college student, and have in the past 2 semesters gone from wearing a size 6/7 to now having size 0 clothing fall off me (andd i'm 5'9"!!!) I have only been on the gluten-free diet for about half a year, but have had a lot of trouble with keeping my weight up. When I first started to loose it I went to a nutrition store and bought that same whey protein shake powder, however I have to force myself to drink the drinks down with milk or water added to the vanilla powder... it tastes horrible!! I saw below that you add juice and frozen fruit to yours to make a vanilla smoothie type of shake, and let me tell you that tastes sooooo much better than my way!!! Hopefully now, I'll have an easier time drinking it! Do you have any other suggestions on how to gain back my weight while on the gluten-free diet... I doubt I can go around drinking shakes all day long! :)

-Still very new to this!

CarlaB Enthusiast

Lots of good fats helps, too. Coconut oil, almond butter, butter, olive oil, etc.

I'm glad the shakes help. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



teachermom61 Newbie
Sympathetic though i am to those who have problems loosing weight on a gluten-free diet many of us actually have the opposite problem.

I know my issues are complex, involve not eating regularly etc. but also some adsorption issues. Heck, I'm typing this now wondering if I should go out and if I can be bothered to eat knowing full well if I don't it will be 8PM before i do...

Hi. I am new to this list. I just was diagnosed about three months ago. I lost about 30 lbs as a result of eating all those glutens when I didn't know about the intolerance. Since then, I have been pretty good about being gluten-free, but I have not gained any weight. I have mixed feelings about it. I don't want to gain all 30 back and there are some things in my closet that look better on me now than before the weight loss. People either make comments about my weight loss that are getting annoying, or when I talk about my clothes not fitting any more, I don't get much support because most everyone else wants to lose weight. So I don't talk about it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

    2. - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

    3. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,268
    • Most Online (within 30 mins)
      7,748

    Kristine Ryder
    Newest Member
    Kristine Ryder
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Borky
      I just recently saw something on this.  Has anyone tried test strips?  Which brand is better?  Not sure how they really work and if they really do work.  Thank you, Nancy (aka Borky)
    • Wheatwacked
    • Wheatwacked
      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive.  The endoscopy and biopsy is looking for damage to your small intestine.  I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy results.  The endoscopy has been the Gold Standard diagnostic, and most healthcare providers won't diagnose celiac disease until your intestinal lining Marsh Score reaches stage 3. You don't really want to wait for the damage to get worse, especially since only five days mostly gluten free gave you relief.  Yes, migranes is one of the 200 symptoms that may be caused by Celiac Disease. Malabsorption Syndrome is often comorbid with celiac disease.  The western diet is deficient in many vitamins and minerals.  That's why gluten processed foods are fortified.  Gluten free processed foods are not; Vitamin D deficiency is a virtual given.  40 to 60% of the industrial population is deficient in vitamin D, Damage to the intestinal lining from celiac disease can decrease the number of vitamin D receptors.  So now you get no vitamin D from the sun (skin cancer scare) the major source of vitamin D, plus absorbtion from food is poor because of intestinal damage.   Low iodine intake is getting more of a concern because the major source of iodine used to be bread (dough conditioner with iodine was stopped in the US in the 1970s), dairy (lactose intolerance from eating quick pickles with vinegar instead of fermented pickles which supply lactase excreting lactobacillus to improve Lactose intolerance. Commercial Dairies have wheat, barley and rye added to the cow feed. Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein causing the problem.  And people use less iodized salt.  In the US intake of iodine dropped 50% from 1970 to 1984. Switch to Grass fed only milk and consider supplementing Liquid Iodine drops to your diet.  The omega 6 to omega 3 ratio of commercial milk is 5:1; Organic milk is 3:1 and grass fed milk is 1:1. The typical western diet is around 14:1, optimum for humans is 1:1.  Wheat flour is 22:1 omega 6:3.  Choose vegetables lower in omega 6, it is inflammatory. Eat fermented foods and switch to Grass fed only milk.  Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein.   
    • Midwesteaglesfan
      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.