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- Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease26Pain in the right side of abdomen
Just an update on my daughter. She is still in hospital and getting quite depressed about everything. She had a CT scan of head and chest to rule out stroke in view of her symptoms. Thankfully there is no evidence of that so they now want to do an MRI to rule out MS so this is freaking her out and it’s not doing me much good either!!!They’re also going to ... -
- Aretaeus Cappadocia replied to Anne G's topic in Related Issues & Disorders2celiac disease and braces
Your concerns are reasonable about the celiac risk aspect, and getting additional medical input is a good idea. Obviously I don't know the extent of your child's misalignment, but please don't think of it as just a cosmetic issue. Braces improve bite alignment and typically provide long term health benefits. -
- Aretaeus Cappadocia replied to Ginger38's topic in Related Issues & Disorders26
Shingles - Could It Be Related to Gluten/ Celiac
I watched my spouse go through shingles before the vaccine was available for "younger" people, so I got the vaccine as soon as I could. It really knocked me down too, especially the second dose. Even with that, if necessary I would take that vaccine every year to avoid getting shingles. Luckily it's a lifetime benefit though. -
- Lotte18 replied to Lotte18's topic in Publications & Publicity2Prospective CRISPR research
Hi Aretaeus, Thanks for posting these articles. The second of the two relates to my query. Last week there was a podcast by the Washington Post with the director of the NIH and CDC. Both institutions are now headed by one guy, Dr. Bhattacharya. He claims that research funding for rare diseases has NOT been cut. The question still remains, how do...- 1
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By Heatherisle · Posted
Just an update on my daughter. She is still in hospital and getting quite depressed about everything. She had a CT scan of head and chest to rule out stroke in view of her symptoms. Thankfully there is no evidence of that so they now want to do an MRI to rule out MS so this is freaking her out and it’s not doing me much good either!!!They’re also going to do further blood tests to check vitamin levels. My husband and I are trying to reassure her the best we can that hopefully it’s just her body’s reaction to having the Vitamin B medication and it’s affecting her nervous system etc. Think the tingling has subsided but still having some lower back and pelvic pain and some leg pain. Thanks for reading and my apologies if I sound paranoid. -
By Aretaeus Cappadocia · Posted
Your concerns are reasonable about the celiac risk aspect, and getting additional medical input is a good idea. Obviously I don't know the extent of your child's misalignment, but please don't think of it as just a cosmetic issue. Braces improve bite alignment and typically provide long term health benefits. -
By Aretaeus Cappadocia · Posted
I watched my spouse go through shingles before the vaccine was available for "younger" people, so I got the vaccine as soon as I could. It really knocked me down too, especially the second dose. Even with that, if necessary I would take that vaccine every year to avoid getting shingles. Luckily it's a lifetime benefit though. -
Hi Aretaeus, Thanks for posting these articles. The second of the two relates to my query. Last week there was a podcast by the Washington Post with the director of the NIH and CDC. Both institutions are now headed by one guy, Dr. Bhattacharya. He claims that research funding for rare diseases has NOT been cut. The question still remains, how do we get Celiac on their radar when of course we are competing for dollars with all kinds of other diseases? Are people in our community interested in a CRISPR cure? It seems to me CRISPR works at odds with big pharma because it actually IS a cure. You wouldn't have to take a drug to suppress T cell inflammation for the rest of your life. CRISPR is supposed to permanently rewrite your DNA. I assume we would really need the NIH to fund that research, not rely drug companies. Dr. Dounda, the brilliant microbiologist, who won the Nobel for her research, making CRISPR possible, thinks that the hefty price will diminish as treatment migrates from bone marrow transplant to infusion therapy. Because Stanford University started studying celiac and CD8 cells a few years ago, I was curious to see if any progress had been reported. What I found was a proposal to create a CRISPR platform for celiac by Theresa Flores. I haven't found anything that states whether or not she got funding. If anyone at Celiac.com has seen something, please let me know before I start composing a letter to Dr. Bhattacharya. Not that one little voice in the wilderness is going to move the needle. If others would also like to write to him, or help compose a joint letter, that would be great.
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