Strong Positive Gliadin Ab

[mela14]

This is my second time posting and could use some help here. I've been sick for about 10 years with so many different health problems. Through the past few years things have gotten really bad. I am constantly sick and complaining of muscle and joint pain.Without getting into the whole nightmare I will say that I have lost a lot of weight and complained of feeling week, malnourshed, achy, extremely fatigued with constant migraines. I also complained of diahrea and foul smelling gas and bowel movements. I always assumed it was viral because of all the flu like sypmtoms that came with it. I was told it was fibromyalgia. I am down to 92 libs at 5'3.5". I have not been able to put on weight. I have been to many doctors and told them that I feel better when I do not eat so they assumed I was anorexic. Many times after eating i get sick and feel like I swallowed poison. I got so bad that I used to moan and cry in my sleep feeling sick..and so bloated that I looked pregnant! Often times this happened after going out to dinner with my husband. I felt toxic! i went to about 4 GI drs and all said IBS . they also sent me to gyns thinking it was endometriois. ( i had 7 surgeries for it!! and no ENDO) anwyay, my question is that recently I flew out of my state to see a dr for chronic fatigue. I brought some blood tests and he said that I showed strong positive for Gliadin Antibodies. He put me on a gluten free diet and sent me to a dietician. I have been keeping a journal and finding that I am intolerant to a few other things too. A few times I accidentally had gluten in something and I was sick for days. Is the Gliadin AB test a reliable one for gluten intolerance? Other gluten blood tests seem to be normal. I think there are 3 different tests that can be done. The gliadin AB came back with a 63......which was very strong positive. So is it safe to say in the presence on my symptoms and this one particular blood test that I should continue on this diet? I don't know who else to go to. Another interesting thing that I learned on line is that over-exposure to gluten can cause this intolerance along with trauma, surgery, etc. Well...yes to all of the above! My dad is a baker and I grew up in an Italian bakery....bread and pastries were always around and we thought nothing to eat them for desert. I now learned that everything he baked was made with High-Gluten Flour! I never even knew what it was! I'm not sure what my next step should be and don't want to go through another endoscopy or colonscopy only to bve told it is IBS. Could it be that years ago when they did those procedure they didn't even bother to test for gluten? I am so confused!

Any insight would be appreciated.

Thanks,

Mel

[darlindeb25]

mel--i think listening to your body is the answer----do you feel much better on a gluten-free diet--you stated that you have found other allergens too----the way i look at it--if you keep eating gluten and feel terrible and when you take the gluten away, you feel better, then the gluten is gone from my life--we do not need gluten in our lives to be healthy--i know many feel you must be doctor diagnosed, but i dont feel that way--i doctored for so many years and never found relief until i went gluten free--but my odds are against me in that respect---my sister and i have had the same symptoms all our lives and she is doctor diagnosed and my father just recently was too--so the odds are very strong that i am celiac or at the very least gluten intolerant--i will never go back to a gluten lifestyle--i listen to this old body of mine deb