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Setback With Being Gluten Free

Sootie Patches

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Sootie Patches Rookie
Sootie Patches
Posted

I have had a major setback this week. After being gluten free and feeling great for 3 weeks I have had two major setbacks. Durning the holidays which happen to be during my period I started to feel bad again. It started out as a few stomach aches and then finally hightened with an evening of extreme nausea and the shakes. My stomach hasn't felt right since then. It hurts so bad and I definitely don't have an appetite. I am trying to force myself to eat but it is all so terrible. My bloodtest for ceilac spure have come back normal. I have an appt. with a GI doctor and a procedure coming up on the 11th. I am really discouraged that I thought all my problems were caused from wheat and gluten and now this setback is making me think it is something else that is causing me to have these symptoms, beings I have been gluten free for the past 3 weeks and still having these symptoms. I am tired of self diagnosing myself and just want to know what is wrong with me. Any comments and advice would be appreciated. Thanks for listening. I am miserable.

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kenlove Rising Star
kenlove
Posted

Dont give up! I had 3 normal blood tests here in Hawaii and finally a scope before they could confirm celiac which was backed up with a different type of blood test that they didnt know about here but my old doctor from Chicago told me

about. There are so many small things that can cause the problems, especially cross contamination. After 2 years of being gluten-free I got glutened Christmas night at a friends just breathing the air after they were breading things for tempura. Sometimes the things we least expect to contain gluten do so -- like some of the milk here.

I'm sure some of the others on this forum can give you other ideas for tests to ask the doctor about. With luck you wont have to wait as long as I which was 6 months and 3 hospital stays before they figured it out. Some of the folks on the forum went years without knowing. Your on the right track by posting messages and learning about it.

good luck

ken

I have had a major setback this week. After being gluten free and feeling great for 3 weeks I have had two major setbacks. Durning the holidays which happen to be during my period I started to feel bad again. It started out as a few stomach aches and then finally hightened with an evening of extreme nausea and the shakes. My stomach hasn't felt right since then. It hurts so bad and I definitely don't have an appetite. I am trying to force myself to eat but it is all so terrible. My bloodtest for ceilac spure have come back normal. I have an appt. with a GI doctor and a procedure coming up on the 11th. I am really discouraged that I thought all my problems were caused from wheat and gluten and now this setback is making me think it is something else that is causing me to have these symptoms, beings I have been gluten free for the past 3 weeks and still having these symptoms. I am tired of self diagnosing myself and just want to know what is wrong with me. Any comments and advice would be appreciated. Thanks for listening. I am miserable.
nora-n Rookie
nora-n
Posted

I had something like that recently and it was just a sensitive stomach and two weeks on ranitidin did the trick. It is probably an over-the counter- medicine. The thing that triggered it was a flu or cold (=stress to the body---increased cortisol in the body= effects on the stomach(they think leucotriens or other substances in the body due to stress and high cortisol are to blame))

nora

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