Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Sensitive Now That I'm Gf?


captain

Recommended Posts

captain Newbie

I have a question, I was diagnosed two weeks ago, at which time I had symptoms that bothered me, but nothing truly ferocious. I was on a completely "normal" diet (meaning just whatever I felt like eating I ate.) Then I went gluten-free, and I feel fine - much better in fact. But when I have a little speck of a forbidden food by accident, I get raging intestinal problems. Weird, eh? They were never this bad before I went gluten-free - and I was eating piles of gluten all the time.

So, my question is, has anyone noticed that they became MORE sensitive to gluten after they went gluten free? Or am I just making this up? I'd appreciate other perspectives.

the captain.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hapi2bgf Contributor

Yup that's normal. I can't explain why, but I know the same thing happened to me. Search the archives and I'm sure you'll find more info.

Track your food and call on EVERYTHING before you eat it. You will feel much better in the end.

Good luck!

tom Contributor

I think it's pretty typical of many things biological to have an increased sensitivity to a stimulus after that stimulus has been absent.

I'm certain i became far more sensitive to gluten after a few weeks gluten-free. Maybe more so after months.

Maggie1956 Rookie

I've been on gluten-free diet for 8 days now, and I'm sure I am a lot more sensitive to gluten now.

It's good in a way. at least it helps to clear the clutter of trying to sort through ALL the rotten gluttenous food I've consumed. Now I can single it down to one or two mistakes I might have overlooked. Maggie :)

kabowman Explorer

I have been gluten-free since July 2004, I have since eliminated soy, garbonzo, yeast, corn, vinegar, peanuts, almonds, and wine. I eliminated lactose/casein and MSG about 5+ years ago.

I continue to become more sensitive to all of these items. In fact, some things like banana chips I can no longer eat and they were fine a couple of months ago, I attribute it to my yeast intolerance and I am becoming more sensitive to smaller amounts.

One note: I am NOT Celiac - the docs could find NO evidence - these are food intolerances. My dietition thinks it may still be celiac disease but that I am "in tune" with my body so I caught it before any real damage. I never had blood tests either. I don't know what to believe about the dxs but I do know that I cannot eat these foods. My husband even mentioned my continuing sensitivity just last night.

-Kate

captain Newbie

Thanks for the feedback everyone. I'm relieved to find out it's not all in my head!

the captain.

Maggie1956 Rookie
I have been gluten-free since July 2004, I have since eliminated soy, garbonzo, yeast, corn, vinegar, peanuts, almonds, and wine. I eliminated lactose/casein and MSG about 5+ years ago.

-Kate

I haven't had MSG for many years. I realised then that I was really uncomfortable after a meal in a Chinese restaurant. It just wasn't worth it. I haven't eaten peanuts for a few years either, as they give me migraines.

Over the past nine days (since I started going gluten-free) I've discovered that soy, corn (I used to eat popcorn at every opportunity, especially caramel). I don't drink wine so that's not a problem.

I'm wondering about almonds. Still not sure, but I'm finding that I feel that they are just sitting there, in my tummy, and not digesting properly. :angry:

Actually, I'm finding it all a bit hard. I'm flying blind really. Without this forum, I'd have absolutely NO IDEA what to eat or eliminate.

Apart from meat, salad and some cooked vegetables, what do I eat? :huh: I'm not too sure about eggs and milk too. I just don't want to make myself more sick by having things which aren't gluten-free, or that I'm sensitive to.

Maybe the diatician I see next Tuesday will be really up on her knowlege of coeliac disease. Oh brother.

Sorry, I'm a bit bewildered right now. :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nailehead Rookie

Hmmmm, this question from captain is exactly one of the "things" i have been wondering about, and on my "list" of things to ask.

Because i too have been feeling very sensitive, and have really been trying to watch what i eat, but was wondering if even the littlest amount of gluten NOW, gives me the same symptoms ( if not worse ) than when i was eating EVERYTHING!

like last night, i was starving at work, working overtime, and my company bought pizza, so i figured i would do a little experiment and have 1 piece, but just eating the supreme, but safe(?) ingredients on top......by the time i got home i had bad stomach pains, acid reflux, diarrhea, nausea, and eventually i threw up...but felt much better after i did..

was this all in my head "worrying" i was gonna get sick? or did even that little amount of cross-contamination from the crust make me sick?

hmmmmm

this sucks :(

i sure do miss my pizza, burgers, fajitas.........

hard to stay on track! :unsure:

darlindeb25 Collaborator
;) you bet there was cross contamination--just touching that crust was all you needed to be glutened--maybe you havent read yet about the piece of bread theory---if you take a piece of bread and you cut it into 1000 pieces, just 1/1000th is all it takes to make us sick--think about that--how big do you think 1/1000th is <_< no more gluten pizza--otay :rolleyes: deb
nailehead Rookie

:o wow, thanks for the tip deb!

i cant beleive it takes just that little.

so is it the fact that once you become diagnosed and you start the gluten-free diet, it must be a huge assimilation for your body to go through and get rid of, so once that happens, we become "hypersensitive" to ANY gluten at all???? :unsure:

darlindeb25 Collaborator
;) i guess that is how it goes--i know it seems almost everyone is so much more sensitive--but also, most of us were sick all of the time, so we didnt react like we do now--6 of one, half a dozen of another, ya know ;) deb
  • 3 weeks later...
Janice C Newbie

If someone in my kitchen handles bread, then touches a plate or piece of lettuce , can I get enough gluten off that plate to harm me? Do I need to wash the lettuce?

tarnalberry Community Regular

I do not eat food that has been touched by someone who's been handling bread without washing his/her hands. They will get flour on them, and pass that on. Not worth the risk.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Dakota01 commented on Scott Adams's article in Winter 2026 Issue
      1

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    3. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting

    4. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,466
    • Most Online (within 30 mins)
      7,748

    Mike G Army EOD
    Newest Member
    Mike G Army EOD
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.