Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Major Guilt Trip

Erica94

Recommended Posts

Erica94 Rookie
Erica94
Posted

ugh... my little sister (well, she's 10) just had a meltdown in front of me and both my parents cuz we haven't been ordering pizza enough. she's upset cuz i think she thinks i'm like the favorite or sumthing, but our parents are totally equal!! she sez we haven't been getting pizza cuz i'm sick, and i don't have a time lock on my computer (eee!! sorry, still excited, it was a birthday-christmas-hanukkah present) but she does (that's cuz i'm on it like 24/7 doing hw), and she thinks i get in trouble less than she duz, and UGH!!!! :angry: i think she's maybe jealous cuz i've probably been getting more attention since i got sick, and i don't know what to do to make her feel better!!! and i know everybody sez "oh, it's not your fault, you can't control it," but it really doesn't help!! what should i do!?!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confusedks Enthusiast
confusedks
Posted

Is there any way you can maybe make a gluten free pizza with her or something? Just something to get her involved with your gluten free lifestyle so she doesn't feel so left out. Is your whole house gluten-free or mixed? If it's all gluten-free, I'd maybe try and make yummy gluten free treats WITH her so she feels a little more involved with this big change.

I don't know if you are even on good enough terms with her to do that...but after all she is only 10, so it may be pretty easy to reason with her...unlike my 19 yo brother! LOL!

Erica94 Rookie
Erica94
Posted
  • Author

hmm... that could be a really cool idea! maybe we could even do that as a whole family... wait, would it be better if it was just with her? nope, it's mixed, but we could definitely still do that!! just gotta find some good ingredients or mixes... :) thanks!! :D :D :D

lol =) ... yeah, i'm usually on pretty good terms w/her, but we still fight a lot...

hehe... wow... i feel like an idiot... she's actually 11... 0=)

i mean it's not so bad cuz it was just a little bit ago, but still... :wacko:

blueeyedmanda Community Regular
blueeyedmanda
Posted

Involving her is a great idea :) Let her help you bake and show her some yummy new treats. She will feel more wanted and understand :) It could be like your special sister thing.

confused Community Regular
confused
Posted

Even take her shopping with you to get the stuff, make it a girls day and shop and cook and also do something that she likes to do. Maybe she is just afraid she will end up like you and wants all the pizza just in case one day she cant eat it. There was more i wanted to say but lost my train of thought

paula

confusedks Enthusiast
confusedks
Posted

There are some great mixes, etc. It would be a lot of fun....I babysit for lots of kids, one girl is 11 actually. These kinds of things get her really excited. Since I'm older, she thinks it's really cool I want to spend time with her. :)

kbtoyssni Contributor
kbtoyssni
Posted

Well, you are the oldest so things like you not having as many restrictions on computer time is just something that happens as you get older. She'd probably be jealous of this regardless of celiac. And maybe your family ordered lots of pizza before so it's a hard adjustment, but takeout pizza isn't very good for you anyway so in a way, this is good for her health, too.

I do think it's hard for the siblings of the kid that been sick, though. Including her in cooking is a great idea. Or doing lots of things as a family or just the two of you - going ice skating, to the mall with her, letting her pick the movie, etc. Eventually your health will be much improved and the celiac won't be such an issue with your family relationships. I'd talk to your parents, too. Maybe they can do something special for her or make sure they spend a little bit more time with her individually each day.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


x1x-Stargirl-x1x Apprentice
x1x-Stargirl-x1x
Posted

hey, it ain't your fault.

you should show your little sis that you love her.

she'd feel better about it all and maybe take her out somewhere.

i know, you might feel mad about doing it cause you're saying

'hey i'm the one sick, and she's the one getting on my nerves about it!'

why should i be the one to make her feel better.

but if you make her feel better, then you'll feel better yourself.

maybe you could get her some gluten free pizza, though it won't taste as good.

or you could tell your parents to take her out to pizza, then you wouldn't have to have it sitting

in front of your nose, and it wouldn't be in the house.

and about the computer, well, you should get computer time, i mean your older.

i know how little siblings can be, they think they deserve as much as you, but they don't thats why they're 'little' siblings. ;)

let her get her way sometimes, but only when she's being good.

and make sure she understands that when you let her get her way

that it's a TREAT, not a normal thing. like going out to pizza with her parents

could be a once a month treat, and only when she's being good.

.::STARGIRL::.

2kids4me Contributor
2kids4me
Posted

I agree with other posters about doing things with her. The fact that she pointed out about you spending time on the computer may be her way of saying "what about me?" (She is only 10...)

Another way to make it fun is to make her a gluten free pizza with all her favorite toppings on half- yours on the other half and then sneak out the back door, ring the front doorbell and tell yell "Pizza delivery"... and watch a movie while you munch on pizza - just the 2 of you....no parents included. How special would she feel :)

A little planning involved / let your parents know of your sneaky plan...Maybe that would be a night they should go out for dinner, and leave it to a girls night!! Bet she fights with you less...at least for the next 24 hours LOL

Sandy

allison lynn xo Newbie
allison lynn xo
Posted

it's not your fault you have celiac. i think maybe she's just too young to understand what this lifestyle requires and how it affects you, your family, and everyone's diet.

you should try making a fun and creative gluten-free snack with her a day or two out of the week. this will help her to understand what you can and can't have, and i feel it may lessen the tension in the household due to food issues. who knows, she may even end up having favorite gluten-free snacks!

also, depending on how intolerant you are to the gluten, let your family order a pizza how ever often they feel is okay, and you can find some other food to eat as dinner or whatever.

that's what my family does all the time. my brother's best friend works at a pizza place so he always brings over pies and all this good italian, gluten-infested, stuff i can't eat. it's a little irritating at first because it's tempting, but you learn to cope. but when that happens, i just make something that's gluten-free that's one of my favorite things to eat. you'll find yourself wanting your gluten-free goodness instead of that pizza.

:P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest...
    2. trents
      - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test. In...
    3. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covere...
    4. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced. Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well. Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside...
    5. Wheatwacked
      - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748
    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Have I got coeliac disease

      By trents · Posted

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
    • trents
      Have I got coeliac disease

      By trents · Posted

      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      Have I got coeliac disease

      By Wheatwacked · Posted

      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.