Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ankylosing Spondylitis


LynneM

Recommended Posts

LynneM Apprentice

I'm researching this for a friend who's daughter has been diagnosed with Ankylosing Spondylitis. I'm celiac myself, as was my mom, with horrible consequences, so when I hear of someone with something like this my first thought is gluten. I can't really find much info on research or connections. Ankylosing Spondylitis is a very debilitating form of arthritis, and since rheumatoid arthritis is possibly linked to celiac, I think this could be too. I'd like to collect some data to present to my friend, because, as you know, many people just don't take the gluten thing seriously. Anybody have any experiences, or links to sites I could research?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Our builder had ankylosing spondylitis and maintained a strict gluten free and vegan diet, and some research I did previously indicated that AS should always be treated with GFD. It was because of him that I decided to try a GFD for my psoriatic arthritis.

Nancym Enthusiast

I was diagnosed with AS but my symptoms disappeared when I started following a paleo diet and taking vitamin d3 supplements.

The forum Open Original Shared Link is good for AS patients. Lots of people have relief when following a low-starch, or no-starch diet.

LynneM Apprentice
I was diagnosed with AS but my symptoms disappeared when I started following a paleo diet and taking vitamin d3 supplements.

The forum Open Original Shared Link is good for AS patients. Lots of people have relief when following a low-starch, or no-starch diet.

Thanks for the info and link. And it's actually Open Original Shared Link (not com). I'll forward all of this to my friend.

Nancym Enthusiast
Thanks for the info and link. And it's actually Open Original Shared Link (not com). I'll forward all of this to my friend.

Whoops! Sorry about that. I hope your friend is able to find something that helps! This disease can be SO painful and debilitating.

hapy4dolphins Contributor

HI, When I started going to a rheumatologist, she thought the same thing for me. Once I began the gluten-free diet and have been on it for about 1 year and a half, many of those pains are decreasing. I also see a chiropractor who has helped a great deal too. Also, has she had her vit. levels checked? Seems like my vits have helped that pain too.

nicole

hapy4dolphins Contributor

HI Again, I should also say, that I began taking Plaquinel for the AS and it made the pain worse. I only took it for about a week 1/2.

NIcole


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LynneM Apprentice
HI, When I started going to a rheumatologist, she thought the same thing for me. Once I began the gluten-free diet and have been on it for about 1 year and a half, many of those pains are decreasing. I also see a chiropractor who has helped a great deal too. Also, has she had her vit. levels checked? Seems like my vits have helped that pain too.

nicole

Hi Nicole,

I assume you mean vitamins? Which are you taking that help your symptoms?

Lynne

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,199
    • Most Online (within 30 mins)
      7,748

    Carlos Burbano
    Newest Member
    Carlos Burbano
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
    • JoJo0611
      I was told it was to see how much damage has been caused. But just told CT with contrast not any other name for it. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.