What Are The Benefits Of A Confirmed Diagnosis?

[chlobo]

My husband and daughter were diagnosed as gluten & dairy sensitive via enterolab. In addition, the test showed my husband has some malabsorption issues. Starting before Thanksgiving the household went gluten/dairy free.

Is there any point now of getting a confirmed diagnosis via blood test and scope? My daughter had a very traumatic blood draw at the ped. where they were supposed to do the celiac blood test but screwed up. I'd rather not repeat that procedure if there's no real point. If we decided to do the blood test would be have to go back on gluten?

[dandelionmom]

For us the benefit has been that it is easier to get my daughter's school to work with us. Will your doctor write a note that will satisfy whatever your school might need? If she will, I think that would decide for me!

[CarlaB]

At this point, gluten would have to be reintroduced for a few months .... that is a very clear negative.

You might want to do a brief gluten challenge to confirm diagnosis.

The benefit would be knowing it's really celiac disease.

I had a positive Enterolab test, but when other medical conditions were treated, my gluten sensitivity went away entirely. I no longer have any of the symptoms and eat completely "normal."

I was treated for Lyme Disease, bacterial dysbiosis, and heavy metal toxicity. With this my leaky gut healed.

Someone with true celiac disease would still have it even after being treated for other conditions.

[chlobo]

  Quote

Lyme Disease, bacterial dysbiosis, and heavy metal toxicity.

What made the doctor suspect those conditions? How were you tested for them?

FWIW, my husband did cheat over the holidays and found that his hand rash, which had been clearing up nicely, started to come back each time he cheated.

For my daughter, I'm not sure I'd want to find out what being "glutened" is like for her. lol.

[CarlaB]

That rash can be biopsied to see if it's DH.

Lyme Disease was a blood test. My doctor did not want to do the blood test and then told me it was negative even though it met the CDC's criteria for a positive test. I discovered my Lyme by my own research because my doctor could find nothing.

Bacterial dysbiosis was a stool test by Genova Diagnostics.

Heavy metal toxicity (lead in my case) was done by a provoked urine test by Doctor's Data lab.

My Lyme doctor had me tested for heavy metals as part of his differential diagnosis and later he had me tested for bacterial dysbiosis because of my ongoing GI issues.