Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Gluten


BemLmom3

Recommended Posts

BemLmom3 Apprentice

Hi there

My almost 4yr old daughter has not been officially diagnosed, she was gluten-free prior to biopsy and I will not put her on challenge to do it. I *know* she is at least gluten intolerant, possibly celiac. The GI did run the panel which I realized will come back as a false neg and she is also checking for DQ2 gene. First question, how long does it take for those results?

So I realized my daughter was being glutenized from tooth paste and lotion, took loss of sleep and behavior and alot of reading, I have fixed that. Last night I made her rice pasta and gluten-free sauce. Her regular italian dish. Almost immediately after she ate she was holding her belly saying her stomach hurt. It was like, uh oh... Well today she woke with puffy eyes, her behavior has been awful and she has been doubled over in floor with another tummy ache! UGH! I need a bubble! We went to a friends house yesterday that I am sure had gluten finger prints on toys but I washed her hands before she ate. And she really does not put fingers/toys in mouth while playing. So did she get it there or was it me who poisoned her? I realized I cooked the pasta in a pot that had scratches and I have used for regular pasta, same with the strainer......So can these things really hold gluten even when washed? I need the poor man gluten-free diet and instructions. I just cannot afford to buy all new kitchen stuff, grrrr. Help anyone.

Oh also she eats alot of hamburger patty, can gluten be in meat from the cow eating it?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Gluten is not present in any pure muscle tissue, that is, meat.

It is generally accepted that cow's milk as purchased in a package is gluten free. There has been some discussion about the possibility of gluten passing into breast milk, but I don't think it has been conclusively established either way. Some lactating mothers avoid gluten to avoid taking a chance.

Gluten from the diet of the animal whose meat is being consumed should not be a concern, but if you are buying hamburger patties (as opposed to ground beef and making your own), then it is quite possible, if not even likely, that bread crumbs or flour were used to bind the patties. Read the ingredients carefully. In the US, anything added to meat must be clearly declared by USDA regulations.

Ursa Major Collaborator

It is very likely that she got glutened by the pot, but definitely by the strainer. You can absolutely NOT use a plastic colander for gluten-free pasta that has been used for gluten pasta before. It is not possible to get all the gluten out of the crevices, it is extremely sticky (they make industrial strength glue out of wheat gluten). The same goes for your toaster. You can't toast her bread in the same toaster that was used for gluten bread, it WILL gluten her.

I bought a new strainer at the dollar store for a dollar, and a new, cheap toaster, for $10.00. I am sure you will agree that your daughter's health is worth spending ten dollars for.

dandelionmom Enthusiast

I'm sorry she got sick. :(

If it helps at all, we bought almost a whole new kitchen from Ikea and really didn't spend that much. If you have one anywhere near you, it is worth a trip! They have very inexpensive cutting boards, colanders, utensils, kid dishes, pans, etc.

Guest j_mommy

Yup definetly replace those items....ALSO wooden cooking utensils...I also replaces my pasta cooking utensil too!!!(IT was plastic)

Have you had her checked for dairy intolerance. Most people who gluten-free go dairy free for a little while and then add back later.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.