Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Gluten


BemLmom3

Recommended Posts

BemLmom3 Apprentice

Hi there

My almost 4yr old daughter has not been officially diagnosed, she was gluten-free prior to biopsy and I will not put her on challenge to do it. I *know* she is at least gluten intolerant, possibly celiac. The GI did run the panel which I realized will come back as a false neg and she is also checking for DQ2 gene. First question, how long does it take for those results?

So I realized my daughter was being glutenized from tooth paste and lotion, took loss of sleep and behavior and alot of reading, I have fixed that. Last night I made her rice pasta and gluten-free sauce. Her regular italian dish. Almost immediately after she ate she was holding her belly saying her stomach hurt. It was like, uh oh... Well today she woke with puffy eyes, her behavior has been awful and she has been doubled over in floor with another tummy ache! UGH! I need a bubble! We went to a friends house yesterday that I am sure had gluten finger prints on toys but I washed her hands before she ate. And she really does not put fingers/toys in mouth while playing. So did she get it there or was it me who poisoned her? I realized I cooked the pasta in a pot that had scratches and I have used for regular pasta, same with the strainer......So can these things really hold gluten even when washed? I need the poor man gluten-free diet and instructions. I just cannot afford to buy all new kitchen stuff, grrrr. Help anyone.

Oh also she eats alot of hamburger patty, can gluten be in meat from the cow eating it?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Gluten is not present in any pure muscle tissue, that is, meat.

It is generally accepted that cow's milk as purchased in a package is gluten free. There has been some discussion about the possibility of gluten passing into breast milk, but I don't think it has been conclusively established either way. Some lactating mothers avoid gluten to avoid taking a chance.

Gluten from the diet of the animal whose meat is being consumed should not be a concern, but if you are buying hamburger patties (as opposed to ground beef and making your own), then it is quite possible, if not even likely, that bread crumbs or flour were used to bind the patties. Read the ingredients carefully. In the US, anything added to meat must be clearly declared by USDA regulations.

Ursa Major Collaborator

It is very likely that she got glutened by the pot, but definitely by the strainer. You can absolutely NOT use a plastic colander for gluten-free pasta that has been used for gluten pasta before. It is not possible to get all the gluten out of the crevices, it is extremely sticky (they make industrial strength glue out of wheat gluten). The same goes for your toaster. You can't toast her bread in the same toaster that was used for gluten bread, it WILL gluten her.

I bought a new strainer at the dollar store for a dollar, and a new, cheap toaster, for $10.00. I am sure you will agree that your daughter's health is worth spending ten dollars for.

dandelionmom Enthusiast

I'm sorry she got sick. :(

If it helps at all, we bought almost a whole new kitchen from Ikea and really didn't spend that much. If you have one anywhere near you, it is worth a trip! They have very inexpensive cutting boards, colanders, utensils, kid dishes, pans, etc.

Guest j_mommy

Yup definetly replace those items....ALSO wooden cooking utensils...I also replaces my pasta cooking utensil too!!!(IT was plastic)

Have you had her checked for dairy intolerance. Most people who gluten-free go dairy free for a little while and then add back later.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    2. - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    3. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

    4. - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,333
    • Most Online (within 30 mins)
      7,748

    jlcvt
    Newest Member
    jlcvt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.