Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hidden Gluten


BemLmom3

Recommended Posts

BemLmom3 Apprentice

Hi there

My almost 4yr old daughter has not been officially diagnosed, she was gluten-free prior to biopsy and I will not put her on challenge to do it. I *know* she is at least gluten intolerant, possibly celiac. The GI did run the panel which I realized will come back as a false neg and she is also checking for DQ2 gene. First question, how long does it take for those results?

So I realized my daughter was being glutenized from tooth paste and lotion, took loss of sleep and behavior and alot of reading, I have fixed that. Last night I made her rice pasta and gluten-free sauce. Her regular italian dish. Almost immediately after she ate she was holding her belly saying her stomach hurt. It was like, uh oh... Well today she woke with puffy eyes, her behavior has been awful and she has been doubled over in floor with another tummy ache! UGH! I need a bubble! We went to a friends house yesterday that I am sure had gluten finger prints on toys but I washed her hands before she ate. And she really does not put fingers/toys in mouth while playing. So did she get it there or was it me who poisoned her? I realized I cooked the pasta in a pot that had scratches and I have used for regular pasta, same with the strainer......So can these things really hold gluten even when washed? I need the poor man gluten-free diet and instructions. I just cannot afford to buy all new kitchen stuff, grrrr. Help anyone.

Oh also she eats alot of hamburger patty, can gluten be in meat from the cow eating it?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Gluten is not present in any pure muscle tissue, that is, meat.

It is generally accepted that cow's milk as purchased in a package is gluten free. There has been some discussion about the possibility of gluten passing into breast milk, but I don't think it has been conclusively established either way. Some lactating mothers avoid gluten to avoid taking a chance.

Gluten from the diet of the animal whose meat is being consumed should not be a concern, but if you are buying hamburger patties (as opposed to ground beef and making your own), then it is quite possible, if not even likely, that bread crumbs or flour were used to bind the patties. Read the ingredients carefully. In the US, anything added to meat must be clearly declared by USDA regulations.

Ursa Major Collaborator

It is very likely that she got glutened by the pot, but definitely by the strainer. You can absolutely NOT use a plastic colander for gluten-free pasta that has been used for gluten pasta before. It is not possible to get all the gluten out of the crevices, it is extremely sticky (they make industrial strength glue out of wheat gluten). The same goes for your toaster. You can't toast her bread in the same toaster that was used for gluten bread, it WILL gluten her.

I bought a new strainer at the dollar store for a dollar, and a new, cheap toaster, for $10.00. I am sure you will agree that your daughter's health is worth spending ten dollars for.

dandelionmom Enthusiast

I'm sorry she got sick. :(

If it helps at all, we bought almost a whole new kitchen from Ikea and really didn't spend that much. If you have one anywhere near you, it is worth a trip! They have very inexpensive cutting boards, colanders, utensils, kid dishes, pans, etc.

Guest j_mommy

Yup definetly replace those items....ALSO wooden cooking utensils...I also replaces my pasta cooking utensil too!!!(IT was plastic)

Have you had her checked for dairy intolerance. Most people who gluten-free go dairy free for a little while and then add back later.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,086
    • Most Online (within 30 mins)
      7,748

    M A Humphries
    Newest Member
    M A Humphries
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.