Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kidney Stone Or Gluten ?


JustJust

Recommended Posts

JustJust Apprentice

Just wondering if anyone else had this problem............. My vit. D levels were extremely low so my dr. put me on 50,000 units of vit. D weekly for 3 months and I also took a Calcium supplement of 2000 mgs daily which had about 1,500 mgs of Vit. D in it......... Anyway, after 3 months my levels were within range but on the lowest side so they gave me two more months of vit. D and now I am suffering from horrible back pain which feels like my kidneys. I am wondering if it could be because now I have too much calcium and vit. D in my system or if I have been gluteneted by CC the past few weeks.......... Does anyone else ever suffer from back pain that feels like it's from their kidneys when glutened along with really sore muscles that feel like they just worked out? Any input would be appreciated! Thanks, Justine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



~alex~ Explorer

I get an ache in my back when glutened, kind of like a bad soreness and cramping. I've never had a kidney stone but I don't think the back pain I experience when glutened is near as bad as pain from a kidney stone would be. I would certainly get it checked out if the pain is severe or it doesn't go away.

I would definitely get yourself to a doctor if you start feeling nauseous, feverish, really yucky, as you might have a kidney infection and in my experience that's not something to fool around with.

Ginsou Explorer

Before being diagnosed with gluten/casein/soy intolerance I also had pain that started out in my lower abdomen near the bladder area, then the entire abdomen was painful, then as the weeks went on I had pain in my right lower back in the kidney area in addition to the daily pain everywhere else. I was concerned about a kidney infection,possible kidney stone, etc. A urinalysis showed a very slight bladder infection that would not cause that amount of pain. I also started to have slight nausea. All of these symptoms were related to the undiagnosed food intolerances......and constipation was no help either. A urinalysis test is easy enough to do, for peace of mind I'd have it done.

ravenwoodglass Mentor

I do get back pain when glutened but it is nothing compared to a kidney stone.

That will generally be so severe you can hardly move, many who have had one say it is worse than childbirth. I passed a small one with a bit of 'sand' early this week and when it woke me I thought I might be having a heart attack. It resolved until it got further down the line. Many times with a kidney stone the pain will start out in one area and then move as it passes out of the body. You may also see a pinkish tinge to your urine when it is in the process. It is not uncommon for the pain to be severe enough for the person to get nauseous and shocky, ie chills with sweating. If this is happening you need to get yourself to the doctor or ER. They can do an ultrasound, which is totally noninvasive, to see if they can find a stone. If it is too large to pass they can use lipotripsy to break it up. They will also be able to help with the pain. The increase in calcium could have been a trigger for this so do call your doctor to check it out.

There are also some of us who have had their kidneys damaged by years of inflammation and in those cases a glutening may impact the kidney function also. If you have edema in your hands or feet or ankles when glutened that might be a sign of that. Drinking plenty of water to help your system detoxify and prevent stone formation can be helpful in shortening the effects.

It may just be an inflammatory response from gluten, a lot of us get muscle and joint pain, but if this is becoming worse or is already severe you should get checked out.

gottaBGfree Newbie

I have been having these achey feelings too. Mostly back pain for me. I am also low in vit D and calcium. My doc has me on supplements now to help. I have been having horrible constipation now (i'd honestly rather have the 'D" than this), nutritionsit says most likely due to taking these supplements. I am beginning to wonder if I am intolerant to soy. I had gluten-free stir fry the other night and have had this achey feeling since then. I feel like I'm getting a cold/flu and it mostly hurts in my back. I never really thought that I could have been glutened (I did have a milkshake the other day and could have been glutened) or it could be the soy that I am reacting to!?

I can tell you that I have had the pain similar to kidney stones and had none. I;ve had stones before, so I know what that feels like...it's hell! My kidneys were functioning poorly at the time I was dx'd with celiac. I was made to drink massive amounts of water while in the hosp. and given iv fluids. You really may want to have your doc check that out just to be safe..it is nothing to play around with and can be very serious if left alone too long!!

Takala Enthusiast

What is in the calcium type in the calcium supplement? It isn't calcium carbonate, (like in Tums) is it? Too much calcium carbonate in the bloodstream causes too much bicarbonate in the blood, (symptom, muscle soreness) and gets pulled out by the kidneys as they regulate the blood calcium levels, and it causes kidney crystals and stones to form. This in turn can cause repeated bladder and urinary tract infections, which can progress to kidney infections, which cause excrutiating back pain.

Switching to a non calcium carbonate form can help stop this. Drinking a LOT of water can help flush things out, but if you are also having a burning sensation, you may want to call the doctor's office for testing for a uti infection.

Also, calcium needs magnesium to be able to be used by the body. Are you taking a magnesium supplement?

Suddenly it's quite fashionable for doctors to be proscribing lots of vitamin D, that's good, BUT, what are the other ingredients in the pills, if it is being taken in pill form ?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.