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Is A Gluten/wheat

Tmartini

By Tmartini
in Coping with Celiac Disease

Recommended Posts

Tmartini Newbie
Tmartini
Posted

Hi there, My name is Tania and I am 35 yrs. old I recently have been diagnosed with Celiac. It has been a hard start however, I am learning and educating myself w/ (books, Dr., internet, friends, family etc..) one question still remains unanswered? Does anyone know if you can ever eat wheat/gluten ever again. I have been told yes and no? I can't see myself eating and feeling like I have in the past... now that I'm feeling much better each day.

Tania

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Lisa Mentor
Lisa
Posted

Welcome,

This simple answer to your questions is...if you want to remain healthy for the rest of your life, gluten cannot be a part of your life.

On the bright side, there are so many wonderful alternatives to wheat/gluten available now.

I am glad that you found this site. It's full of very knowledgeable people, current product information, research information and some really wonderful recipes.

psawyer Proficient
psawyer
Posted

Celiac disease is a life-long condition. You do not ever grow out of it, but by remaining gluten free you keep it in remission. Eating gluten (wheat or another source) will restart the active phase of the disease where the body attacks itself.

You will find many answers here. Welcome aboard.

Phyllis28 Apprentice
Phyllis28
Posted

No, you can never eat gluten again. This is a life long way of eating.

scotty Explorer
scotty
Posted

NO

kbtoyssni Contributor
kbtoyssni
Posted

No, you can't ever eat gluten again. Some people do start eating it after healing and go through a period where they don't have symptoms, but they are still doing damage. These people tend to get very, very sick again at some point in the future. If you want to be healthy, you cannot eat gluten again.

JNBunnie1 Community Regular
JNBunnie1
Posted
No, you can't ever eat gluten again. Some people do start eating it after healing and go through a period where they don't have symptoms, but they are still doing damage. These people tend to get very, very sick again at some point in the future. If you want to be healthy, you cannot eat gluten again.

I'd like to add, be very, very careful of anyone who's told you you CAN start eating it again someday. They are people to be very suspicious of, especially if they're a doctor. If my doctor said that to me I would promptly find another one. Glad you found the board, ask whatever questions you like!

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Tmartini Newbie
Tmartini
Posted
  • Author

Thank you... Yes I will definitely be aware of anyone telling me that celiac disease will go away on its own. I appreciate all your feed back and I am very excited I have this site to share and learn from everyone else.

T

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      Gluten related ??

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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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