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4 Months Off Gluten...and Still Feel Like Blegh!

i-miss-cookie-dough

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i-miss-cookie-dough Contributor
i-miss-cookie-dough
Posted

i basically eat the same things every day.

yogurt

trail mix

fruit

chicken salad

gluten-free crackers

chicken or fish

rice

veggies

and

gluten free rice or energy bars...

i went off dairy for a week of so about a month

ago and didnt feel any different or better

so i got back on.

was feeling a BIT better, i think until this last week.

and for the past 2 days,

the nausea and that foggy/drugged feeling

and exhaustion have come back on strong...

my makeup is gluten free.

my dial soap is safe

i am getting super frustrated.

WHEN will i FEEL BETTER!!!?????

: (

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sickchick Community Regular
sickchick
Posted

I went Daiiry & Soy free the beginning of December and I am staying off at least 3-4 months before I re-add any back just in case.

Maybe you should go back off Dairy for a longer period of time Doll...

be well! B)

sickchick

AliB Enthusiast
AliB
Posted

Don't eat the same things every day - it's the worst thing you can do. You should be rotating the foods you eat, having different things and only eating the same things several days or a week or more apart. The more varied the diet, the better we are for it.

the reason why gluten/wheat becomes such a problem in the first place is that because it is in so many foods we have an over-exposure to it. whilst we may start with a gluten-intolerance, over a period of time and continued exposure, if we have the genetic vulnerability, we will end up with full-blown Celiac.

If you continue to ingest the same foods all the time, because of the over-exposure to these foods the same thing may happen and you will end up with intolerances to these foods as well.

Many who are celiac also find that they are very intolerant or even allergic to foods or factors other than gluten and dairy. The triggers can be anything. I have only recently started gluten-free and I am still working through other intolerances. So far I have found Dairy, Yeast, Tannins (no tea or wine) and possibly Salicylates (I can't tolerate too much veg).

It could be that you are still eating or using something else that is causing the problem. I know its boring, but it might be worth trying the Elimination diet so that you can get a handle on what is causing it.

Sorry I can't be of more help.

YoloGx Rookie
YoloGx
Posted
i basically eat the same things every day.

yogurt

trail mix

fruit

chicken salad

gluten-free crackers

chicken or fish

rice

veggies

and

gluten free rice or energy bars...

i went off dairy for a week of so about a month

ago and didnt feel any different or better

so i got back on.

was feeling a BIT better, i think until this last week.

and for the past 2 days,

the nausea and that foggy/drugged feeling

and exhaustion have come back on strong...

my makeup is gluten free.

my dial soap is safe

i am getting super frustrated.

WHEN will i FEEL BETTER!!!?????

: (

It often does take time to actually feel better, however it is worth it in spades.

You might want to dial back on the rice. I can't eat it every day myself despite not eating much gluten for years. It actually has a small amount of gluten in it.

The trail lmix might also be suspect. Even if it doesn't have gluten in it it probably has lots of sugar...plus some folks like me have difficuilty with nuts due to leaky gut that usually accompanies celiac. The nuts are often irritants since they are hard to digest in any case. Its better if you soak them overnight to get rid of the growth inhibitors. It makes them more available as food for you no matter what to slightly sprout them.

I suggest you try yams, sweet potatoes, squash, and/or alternative grains like quinoa (you have to wash it first. to make sure its OK since it also has a growth inhibitor), teff (originally from Ethiopia) and amaranth. Just have the rice say twice a week (i.e., with a couple of days in between) and make sure its brown whole grain stuff.

Also I suggest you try some detox herbs etc. And some enzymes like bromelain/papain. See my posts elsewhere for more on this and other supplements. Alternatively or in addition lots of exercise, suanas, etc. And mucho water.

Wow--though--dial soap is way too strong for me. Are you sure its OK for you?? I'd use some peppermint castille soap instead just to be on the safe side.

Yolo

Lux Explorer
Lux
Posted

Rice contains gluten?????????

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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