Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hitting A Wall


cmsquyres

Recommended Posts

cmsquyres Newbie

I've been on the gluten free diet for about a year now, and my dad was diagnosed with Celiac several years ago, so I'm very familiar with the diet and I'm careful not to eat anything with gluten. I felt quite a bit better after I started the diet (I never had many gastrointestinal problems but I did have skin issues) but I feel like I've hit a wall, or even regressed. My eczema, which had gotten better, has gotten worse again. I'm tired all the time and I've had blood tests done and my iron levels were fine and my B12 was just a little bit low, but I've started taking extra liquid supplements. I've even had little phases where I'm just so tired that I feel depressed. My doctor just tells me that because I'm in college I'm automatically supposed to be tired all the time, even though I get at least 8 or 9 hours of sleep every night, I don't party and I eat a lot healthier than anyone else I know my age because of the gluten free diet. Has anyone else had an issue with this kind of thing?

Carly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Your talking about being really strict about the diet, which is good. But have you eliminated it from all your personal care products also? A lot of doctors either don't think to mention it or don't think it matters. Even stuff like hair color, shampoos and face makeup can be an issue. Also have you checked all your scripts and supplements for gluten? It sounds like you have gluten sneaking in somewhere. Even weird stuff like kissing someone who is drinking beer or has eaten a sandwich can get us. Gluten can be really sneaky.

Ursa Major Collaborator

Are you still consuming dairy and soy? Either (or both) of those could be your problem. Dairy is known to cause horrible eczema. My oldest granddaughter used to be covered in eczema from head to toe, she looked like she had scales. It completely cleared up within weeks, to where she has the most beautiful skin now, after dairy was removed from her diet (incidentally, she is also gluten and soy intolerant).

gfcookie Newbie
I've been on the gluten free diet for about a year now, and my dad was diagnosed with Celiac several years ago, so I'm very familiar with the diet and I'm careful not to eat anything with gluten. I felt quite a bit better after I started the diet (I never had many gastrointestinal problems but I did have skin issues) but I feel like I've hit a wall, or even regressed. My eczema, which had gotten better, has gotten worse again. I'm tired all the time and I've had blood tests done and my iron levels were fine and my B12 was just a little bit low, but I've started taking extra liquid supplements. I've even had little phases where I'm just so tired that I feel depressed. My doctor just tells me that because I'm in college I'm automatically supposed to be tired all the time, even though I get at least 8 or 9 hours of sleep every night, I don't party and I eat a lot healthier than anyone else I know my age because of the gluten free diet. Has anyone else had an issue with this kind of thing?

Carly

sounds like fibromyalgia/depression. or, maybe something else is up besides celiac, alot of other autoimmune diseases can cause skin problems.

cmsquyres Newbie
Hi Carly,

Too bad you are not feeling as energetic as you need to be to do all that studying. You might consider that you have picked up a virus and your immune system is keeping it in control but not able to get rid of it. Echinaceae, a herb, may help a lot. You can buy the herb and make a tea or you can get one of the many preparation availale. The best are combiations of echinaceae, lysine and vitamin C with rose hips. You can also have a blood test for infectious mononudleosis. You might also stop the B12 supplement for a while to see if you feel better. It may claim to be gluten free, and maybe it is but there may be something else that is bothering you in it.

For the eczema you can read about a treatment that works for many people. Go to the Dr. Clark Information Center online and search for eczema.

I have made sure all my personal care products are gluten-free. I

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

    2. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

    3. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    4. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,919
    • Most Online (within 30 mins)
      7,748

    SB Willow
    Newest Member
    SB Willow
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.