Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic Diarrhoea!

OHDEAR

By OHDEAR
in Coping with Celiac Disease

Recommended Posts

OHDEAR Newbie
OHDEAR
Posted

Hi all,

Just joined. haven't had formal diagnosis yet, but spent the day in hospital yesterday ruling just about everything else out.Hoping to get an appointment to the gastro specialist today

I have diarrhoea so bad, even water and walking around gives me diarrhoea - sure I can be gluten-free now, but how do I stop the diarrhoea???

Please can somebody help...I'm desperate had it constantly for 3 days now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Hi all,

Just joined. haven't had formal diagnosis yet, but spent the day in hospital yesterday ruling just about everything else out.Hoping to get an appointment to the gastro specialist today

I have diarrhoea so bad, even water and walking around gives me diarrhoea - sure I can be gluten-free now, but how do I stop the diarrhoea???

Please can somebody help...I'm desperate had it constantly for 3 days now.

Welcome to the Forum!

If you would like to pursue testing for Celiac Disease, you must not begin a gluten free diet.

What were the results of your hospital testing? Do you have other symptoms other than diarrhea? What is pointing you in this direction?

Please excuse the questions, but it is difficult to offer assistance without a little background information.

~alex~ Explorer
~alex~
Posted

Imodium can help and I think it would be called for if you're losing lots of fluids. If you have celiac disease you will likely still have diarrhea for awhile even after cutting out gluten because your villi need time to grow back and be able to absorb what you are eating.

Definitely look into things and see that gastro doc. It could be celiac but many other things can cause diarrhea so it could be celiac or something else or celiac + something else.

I hope you can get things figured out. In the mean time do your best to stay hydrated. Being chronically dehydrated is bad for your body and will certainly make you feel worse. Pedialyte does a great job at keeping my fluids and electrolytes up when I'm sick.

OHDEAR Newbie
OHDEAR
Posted
  • Author
Welcome to the Forum!

If you would like to pursue testing for Celiac Disease, you must not begin a gluten free diet.

What were the results of your hospital testing? Do you have other symptoms other than diarrhea? What is pointing you in this direction?

Please excuse the questions, but it is difficult to offer assistance without a little background information.

Thanks,

Wee I guess it has been in the back of my mind for a while and I did reduce my gluten intake just to have a more balanced diet.

A couple of years ago I became cow's milk intolerant - cramps, bloating, gas

Just last weekend at a birthday you could say I had a bit of a gluten binge - white bread rolls, lots of sponge cake and had been eating licorice for a few days (I don't normally have this - again it was a special occ)

Monday night after gym - had wheat burritos, again I would normally have corn tortillas...

Tuesday - no appetite at all - just had vitamens in the morning, so lunch thought I better eat something, so had a rye & spelt sandwich - Ithink is also 50% Wheat. After that, headaches and strong gripping stomach cramps for the rest of the day and all night.

Wed - Had vitamens - within 10 mins diarrhoea. water - more diarrhoea Visited Gp - sent stool sample off. Told me not to stop eating and not to stop eating gluten. Since I got home I have had cramps and diarrhoea constantly. I heeded her advice but it only made it worse - more insistent diarrhoea and cramping.

Thursday - after being woken for another night this time with diarrhoea as well - I trotted off to the local hospital. They did blood, urine, xrays - all was clear (so very grateful I didn't have something nasty like cancer). Told me that it was possibly I have gluten intolerance and said I need to see a specialist gastroenterologist. Sent me home after establishing that intravenous buscopan, oral somac and panadol reduced the severity of the cramping. Told me to manage the diarrhoea with plenty of fluids.

Friday - cramps were less, but had diarrhoea again during the night. Cramps are still improved but diarrhoea is every 15- 30mins even when I have nothing. So now I'm taking gastrolyte, and seeing GP in the next couple of hours to get referral.

Historically I've had these gripping cramps - but I'd go to bed praying they would go away and usually a couple of hours later or the next morning they would be gone. This has happened about 5 times in the last 3-4 months.

Also noticed that over the last few years if I have too much animal fat - say chicken or lamb in particular that I get wind, bloating and slight cramping.

Does that help?

Lisa Mentor
Lisa
Posted

Alex gave some wonderful advise to make sure that you keep drinking fluids and some ant-diarrhea medicine might help.

Should you decide to be tested for Celiac, here are the tests to request from your doctors:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

If the diarrhea continues for several more days, please seek medical help.

You certainly could try the gluten diet to see if you feel better, should you not choose further testing.

If you suspect Celiac, this is a great site.

OHDEAR Newbie
OHDEAR
Posted
  • Author

Have appt today with Gatroenterologist -

Will have all the tests and will let you know.

Thank you Alex & Momma Goose.

sickchick Community Regular
sickchick
Posted

I am unable to take any over the counter meds... I eat psyllium every day and it's the only thing that has helped me.

Be Well!

sickshick

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

Correct me if I'm wrong, but wouldn't the gluten antibodies still be in the bloodstream for at least a week or two after starting the gluten-free diet? If so, then the diet could be started immediately, as long as the tests are done with a short period of time.

Anyway, sure sounds like Celiac to me, or at least Gluten Intolerance. Personally, I think you're on the right track, and if it where me I'd be gluten-free if it helps, regardless of tests. Of course, my prospective is bound to be biased by my experiences.

So glad you found this board!

JNBunnie1 Community Regular
JNBunnie1
Posted

Hope things turn out well. Even if you get tested right away and come up with a bunch of negatives, I would try the Gluten free diet anyway. It can't hurt!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,346
    • Most Online (within 30 mins)
      7,748
    Thomas D Cosgrove
    Newest Member
    Thomas D Cosgrove
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • maryannlove
      Gluten free thyroid medications

      By maryannlove · Posted

      Before I could call them (after all my research), Costco Pharmacy called and told me they found a generic gluten-free levothyroxine.  Was told name is Amneal brand.  Said they called and company  confirmed is gluten free.  Only one I had found was Lannett so did more research and found:  “BRIDGEWATER, N.J., Nov. 12, 2018.  Amneal Pharmaceuticals, Inc. (NYSE: AMRX) today announced that it has completed a transition agreement with Lannett Company. Under the terms of the agreement, Amneal will take over the distribution and marketing of Levothyroxine sodium tablets from Lannett beginning December 1, 2018 through March 23, 2019, ahead of when the Company's previously announced 10-year Levothyroxine distribution agreement with Jerome Stevens begins on March 23, 2019.” So looks like we’re good until at least 6/23/29.  Active ingredients are colloidal silicon dioxide, lactose, magnesium stearate, CORN STARTCH, acacia, sodium startch glycolate. Bottom line:  We can tell our pharmacists we need gluten-free, generic Amneal brand Levothyroxine.   AMEN.  
    • Scott Adams
      This Roller Coaster Ride Needs to Stop

      By Scott Adams · Posted

      Given your severe symptoms it sounds like you would be much better off going 100% gluten-free!
    • Ginger38
      This Roller Coaster Ride Needs to Stop

      By Ginger38 · Posted

      Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes would not be affected. WRONG. I have tried this several times since I crossed over to full blown diabetes, because I get so sick eating gluten that I end up getting frustrated and go back to gluten free to get some relief. I have a continuous glucose monitor so it is easy to see how my body and glucose are reacting to foods. Unfortunately my suspicions are correct. When I eat gluten-free foods -like Schar breads or rolls, or the crackers, including when I stay in my carb limit,  my sugar spikes and just sits there.. .it won;t even come back down for hours. So in the end it drives my overall glucose and A1C up. I can't really even eat oats or things like that. Cereal is very iffy. Gluten free pizzas, gluten free nuggets, and things like that majorly spike my sugar as well, again, even when staying in my carb limits. I already feel so limited on foods because of the diabetes so of course, when medical people and family and friends are like just go eat gluten, I have been like oh okay - maybe it is all in my head and hey its way cheaper to eat gluten and tastes wayyy better...and then I end up right back where I am today,. MISERABLE, just laying around in pain, spending all day in the bathroom, having accidents related to diarrhea, constant tremors, heart rate issues, chest pain etc. and I forgot about these terrible painful canker sores in my mouth right now, I can't even hardly eat or drink or swallow they hurt so bad.  Not being able to feel like I can eat gluten free is extremely frustrating. I had some great recipes and substitutes for things, and was at a decent place with all that, until the diabetes went crazy out of control, so gluten-free living seems to not be an option for me. However, eating gluten when I truly still believe I am celiac -just misdiagnosed- does NOT seem like a wise idea. I am honestly scared  I am going to get deathly ill from all this or something. I even asked my GI doctor, more like begged, if he would please just label me as celiac and tell me I was for sure (like he did before) so I could get the support I truly need. No such luck. He just keeps saying but your tests were okay 🙄 My family went to an arcade and pizza/pasta buffet yesterday - obviously I didn't want to miss out spending time with my family and my mom spent money paying for my meal/buffet - and I was hungry, so of course I ended up eating pizza and pasta that was not gluten-free, because they don't offer any gluten-free options, and then my brother and others want to ask can you eat that or are you supposed to, and I am like well no, and I will definitely pay for it. They think it is hilarious when I say things and then make comments, like how it is so fun to go out with me especially places like that because I am not supposed to eat but I just do it anyway and say I will pay for it 😥 just seems everywhere I turn it is pointless and I have no support 
    • Wheatwacked
      Am I celiac or not?

      By Wheatwacked · Posted

      Just like you cannot be a little pregnant, you cannot be a little Celiac.  Here is an article I found that explains what the numbers mean. Are You Confused About Your Celiac Disease Lab Results? Here is another article about the non traditional symptoms of Celiac Disease. What Are the Symptoms of Celiac Disease? I've been taking 10,000 IU vitamin D3 since 2015.  My blood tests every 3 months for 25(OH)D have never gone above 93 ng/ml, even in the Florida summer.  70 - 100 is the body's natural homeostasis level. Surge of information on benefits of vitamin D "“When combined with supplemental magnesium, vitamin D repletion has dramatically changed my practice,” said McCarthy ... “There are now very few patients with infections, and asthmatics who are coming off medications are staying off of them. ... A lifeguard study that found vitamin D levels in the 70 ng/mL range up to 100 ng/mL (nature’s level) were associated with no adverse effects; ... Colon cancer data showing a reduction in the incidence of new cancer (linear) with postulated 0 point at 75 ng/mL;
    • somethinglikeolivia
      Am I celiac or not?

      By somethinglikeolivia · Posted

      Interesting! Recent labs I had done did show that I was low in Vitamin D so I just began supplementing, it’s hard to tell so soon but it does seem to have a positive affect! Thanks for the input!
×
×
  • Create New...