Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Don't Know...

ilove(d)wheat

Recommended Posts

ilove(d)wheat Newbie
ilove(d)wheat
Posted

Hi everyone!

so here is the low down....

I am 16 years old and have unexpectedly been losing weight. I have gone from 125 - 119 in 3 weeks without changing any eating habits and I am approximatley5'8" ( maybe a little bit shorter :P ) . My symptoms mostly include D...It happens after I eat wheat/barley products mostly, usually about 4-5 hours after. After that for the next 2-3 days I am constipated and then have D again as I cotinue to eat wheat. Also after eating wheat products I have a pain kind of in my gut and I feel really anxious.

I was just tested on Monday and I am hoping for some results that will help me to get some results.

I have already been tested for IBS and ulcers and both have been negative.

Do you all think that I have celiacs/do these symptoms seem relevant? I am very nervous/ anxious to get my tests back!!

Thank you!! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dbmamaz Explorer
dbmamaz
Posted

Not only is D after eating wheat/barley a symptom of celiac, so is C, and so is anxiety!

However, be warned that lots of folks here had negative test results, but still felt better from eliminating gluten. Dont start yet, as your doctor may want to do a biopsy and you should keep eating gluten until after the biopsy. But even if the tests come back negative, you can still try the diet and see if it helps.

RiceGuy Collaborator
RiceGuy
Posted

Yes, I agree that it sounds like Celiac or gluten intolerance to me. As dbmamaz said, you can still try the diet no matter what the test results. It also seems like you already know the answer, since you've narrowed it down to eating wheat products.

So glad you figured it out so soon too. Many of us suffered for years before we had a clue.

Welcome to the board!

ilove(d)wheat Newbie
ilove(d)wheat
Posted
  • Author

Thank you :)

If you don't mind my asking, how long did it take for your test results to come back? I had the blood work done this past Monday and I still have not heard anything back. My first GI appt. is this upcoming Monday.

Also do you have any suggestions for what I should tell the doctor?

I really hope that these tests will bring back answers because I'm pretty sure that my mom won't let me go for a gluten-free diet unless there is a medical reasoning behind it!

Again, thank you so much for all of you help!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748
    bostonbell
    Newest Member
    bostonbell
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Is this celiac?

      By Beverage · Posted

      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.