Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soooooooooo Hard


Alou123

Recommended Posts

Alou123 Rookie

:angry: This is soooooooooo hard! Being on a gluten free diet is not like other diets. This diet, if you eat something your not supposed to, you get sick! Two days ago I was at a party. I didn't eat the fried chicken but I ate a brownie the size of a quarter. When I went to dance, my toes started tingling I got a headache.(the headache might have been from the music) It stinks!

Anna Louise


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HAK1031 Enthusiast

It sounds like you're pretty new to celiac/gluten intolerance. Don't think of this as a "diet" the way you might think of a weight-loss diet, instead think of it as a lifestyle overhaul. You really can't eat ANY gluten at all...one crumb is enough to leave me doubled-over. Even though you may not feel sick from it, it is still doing its damage. You also have to consider cross-contamination- I brought gluten-free cookies to a party last night, and at the end of the night, they wound up on the same plate as gluteny ones...that makes them unsafe. Don't use the same cutting boards, colanders, wooden spoons, or baking sheets as your gluten eating family.

That proably sounds really restrictive. The good news is that there's tons you can eat. My friends are totally used to my gluten-free diet by now. At parties, I eat cut-up fruit and veggies, potato chips, tortilla chips, popcorn, etc. I just take food at the beginning of the night before people have a chance to stick their gluten-covered hands in the bowls. There are also great gluten-free subtitutes for ALL your favorites. Ask around before you buy though, as there are many that taste like cardboard. But those that are good, they're great! Glutino is a great brand, as is gluten-free pantry for baking mixes.

Good luck!

kbtoyssni Contributor

I don't think of this as a diet in the common usage of the term, either. I think if it as my life. If I want to live to my 30th birthday, I don't eat gluten.

On a weight-loss diet, the consequences of eating something you shouldn't aren't too severe - maybe you don't lose a pound that week, but no biggie. With celiac, you eat something you shouldn't and you get cancer. The strange thing to me is that now I don't see gluten food the same way as non-gluten food. I know it's technically edible and I'm fascinated by it, but it never, ever occurs to me that I should eat it.

My best advice is to plan ahead. Don't go to the party hungry and bring some food with you if you think you'll get hungry later. If you know there will be brownies and they're a temptation for you, make your own gluten-free ones. Don't feel badly asking the hostess in advance what she's making so you can plan ahead. A lot of times I'll be out and see something really yummy looking that has gluten so first thing I do when I get home is to make my own version. In my purse I have my essentials with me at all times: wallet, cell phone, lipstick, and a snack.

This does get easier. At first it's so hard to know what you can and cannot eat, but give it time and you'll get it down.

  • 6 months later...
CeliacAlli Apprentice

Don't eat gluten and trust me it'll get better!

GlutenFree2 Newbie
Don't eat gluten and trust me it'll get better!

That is very true. It starts out hard, but gets easier.

CranberryTheif Newbie

So here's the deal

I was thirteen(th birthday to be exact) when I found out.

We went all-out hard-core style when it came to starting. Most people slowly get into it...

Well.

It sucked.

I cried after dinner everyday for a few months.

I stopped eating.

I kinda went into depression over oreos.

But in all honesty.

The first month is the hardest.

If you can be super strict for the first month, then the rest isn't too bad.

I mean. You're gunna miss the food. Most of us do.

But the hardest part is the first month.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,175
    • Most Online (within 30 mins)
      7,748

    Chels22
    Newest Member
    Chels22
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
×
×
  • Create New...