Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Digest?

Del

By Del
in Coping with Celiac Disease

Recommended Posts

Del Rookie
Del
Posted

Hi....

I'd like to know if anyone on here has used Gluten Digest and what their results were?

Thanks!

Del

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Hi....

I'd like to know if anyone on here has used Gluten Digest and what their results were?

Thanks!

Del

I am not familiar with it. What is it?

kbtoyssni Contributor
kbtoyssni
Posted

Here's a link to some info: Open Original Shared Link

This particular product doesn't seem to claim it's for people with celiac. I'm guessing it's for non-celiacs, kindof like a digestive enzyme? I don't know a lot about digestive enzymes (try doing a search, I know they've been discussed before), but my general impression is that they can be helpful. BUT - I do not think that this product is intended to be taken by a celiac prior to consuming gluten. If that is the claim or the way people use it, I think it will end up harming you. I don't think there is any way this enzyme can "digest" all gluten particles for you, and if a few particles are undigested, you will be damaging your intestine.

There have been some recent FDA trials about new drugs that will help celiacs digest gluten. These are currently being marketed for accidental glutenings, though, not so you can go out and eat a slice of gluten pizza.

Del Rookie
Del
Posted
  • Author
I am not familiar with it. What is it?

It's put out by NOW.....there web site is www.now.com Supposed to allow us to eat some gluten.....I don't want to try it until I've heard from someone that used it successfully!

Del Rookie
Del
Posted
  • Author

Thanks...I saw there ad at a grocery store (many Gluten Free items sold there too).....their ad claimed 20 Million Americans who have difficulty digesting gluten, can consider this a personal invitation to enjoy your favorite foods once again! Advertised for Gluten sensitivity and intolerance.

I did go to their web site Before posting but didn't get the same claims on there so I sure wasn't going to try it without hearing from some people who had used it!!!

Sure appreciate your comments!!! Thanks again!

Del

kbtoyssni Contributor
kbtoyssni
Posted

Ah, so it is being marketed as a product for celiacs! I would note that there is a disclaimer that none of their claims are evaluated by the FDA so it is unlikely there is any evidence or medical study to back them up.

Here's a recent thread on AT-1001, a similar drug that is working to get FDA approval right now. Search for AT-1001, I know some people on this site have participated in the clinical trials for it. Even if this does get approved, I do not plan to take it.

Open Original Shared Link

Lisa Mentor
Lisa
Posted

Open Original Shared Link

This is interesting.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AliB Enthusiast
AliB
Posted

I think because of the mess 'science' has made of our food and the problems we are experiencing because of it, I would be pretty skeptical about taking yet another chemical 'concoction' to combat the damage!

Just like 'science' seems to be unaware of the damage to our guts, how would we know this wasn't actually giving us yet something else to be quietly and insidiously causing us damage!

Del Rookie
Del
Posted
  • Author

Thanks for the link....I just checked out and I'm with you....I don't want to "TRY" it without a lot more proof!!!!

Del Rookie
Del
Posted
  • Author

Thanks for the link! I'm going to keep my eye on this.

Del Rookie
Del
Posted
  • Author
I think because of the mess 'science' has made of our food and the problems we are experiencing because of it, I would be pretty skeptical about taking yet another chemical 'concoction' to combat to combat the damage

'Fraid I have to agree with you wholeheartedly!!!!

Takala Enthusiast
Takala
Posted

It's a supplement, consisting of probiotic type enzymes, and not a pharmaceutical drug, so it does not fall under FDA supervision unless they make bogus claims that it has the actions of a drug... that being said, the manufacturers are really pushing the limit of what would be acceptable in their claims for this product, because they are saying that it would "help digest gluten" for "individuals who have not been otherwise able to tolerate many of their favorite foods." Thus implying it would be for "gluten intolerance" a known medical condition.

They might not be claiming out right that it is for the treatment of celiac, but they surely are MARKETING to people with celiac or gluten intolerance, and there is no reason to actually take this stuff, because there is no scientific proof that this supplement would actually render the gluten harmless to the gluten intolerant person. Even if it made it "easier to digest" there is no proof that it would break down all gluten proteins consumed to where they would not provoke any auto immune response. It doesn't matter if it feels easier to digest the food or not, it is what is going on in the whole body in terms of provoking antibodies to be created. The world is full of undiagnosed people who already don't react dramatically enough to gluten containing foods that they become immediately ill upon consumption of them, and hence don't realize they are harming themselves.

The last thing that would be good for someone is to gain the ability to eat something that is silently causing great harm and other complications.

Supplements are not manufactured so they have to "prove" that they work. Some supplements do have beneficial properties, such as vitamins and minerals, and some herbs, others are harmless but useless, and some are dangerous if they are taken to replace the function of a medicine or to supposedly allow the person to continue the bad habit if they just take a "magic pill."

here's some advertisements for this product, "Gluten Digest."

Open Original Shared Link

quote: "The precise arrangement of enzymes used to formulate BioCore

Del Rookie
Del
Posted
  • Author

These companies rely on consumers that don't/won't investigate their products before buying due to their "fanciful" advertisements!!!! They say that millions/billions of dollars are spent each year on false cures for this arthritis and other illnesses....such a shame!!

OneScrewLoose Rookie
OneScrewLoose
Posted

Would this product help -maintain- a gluten-free diet? As in, would it help one prevent from getting "glutened" because of trace particles in food?

Takala Enthusiast
Takala
Posted

NO.

But the advertisers are implying it would, which is not only false, but dangerous.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    2. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    4. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    5. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,870
    • Most Online (within 30 mins)
      7,748
    KABoston
    Newest Member
    KABoston
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.