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Doctor In Nyc / Doceliac Have More Hormone Problems?

Katrinm

By Katrinm
in Doctors

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Katrinm Newbie
Katrinm
Posted

I am new to this website today. Have so many questions.

Does anyone know a good doctor in NYC that understands celiacs?

It took me 3 years to get diagnosed. I was having joint problems, hair falling out, tired all the time, back pain, and problems seeing at night. Each doctor sent me to a new doctor. Finally a nurse in one of the doctors office noticed I have an Irish accent and asked me if I ever had been tested for gluten intolerance. Said she had it and was popular in people of Irish decent. Love that nurse!!! Went to an allergist he said that I probably wasn't since I was overweight. I told him that the weight thing had recently started and that I ate very healthy. Don't think he believed me and was shocked that I came back allergic to wheat/gluten, and five other foods.

Its been a year since I have been gluten free I am still having some fatigue and trouble losing weight I put on in the last few years. Have an appointment to go to an endirconolgist to have my thyroid and hormone levels checked.

I feel like I am starting the going to a doctor to be told I have to go to another doctor thing again.

Has anyone else had this problem? Does anyone know a doctor in the NYC area that specialize in Celiac Disease and all the problems that can occur due to it?

So frustrating

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melrobsings Contributor
melrobsings
Posted

Dr. Green is in NYC.

Open Original Shared Link

They are hard to get an appt with but very knowledgeable.

Best of luck.

Katrinm Newbie
Katrinm
Posted
  • Author

Thanks. I don't care how long I have to wait. I just want to speak to someone knowledgable.

  • 2 weeks later...
gia104 Newbie
gia104
Posted

Definately Dr. Peter Green as suggested by previous poster. Look on his website. He is affiliated with Columbia Presb, so you are also getting the best care. Easy access via the A train too :lol:

I have been going to him. He literally wrote the book on celiac disease and is the guru. You can't go wrong, and are in the right city for this disease.

By the way, for some great desserts, try Babycakes on Broome St --YUM!!

Amethyst* Newbie
Amethyst*
Posted

I'd trust any of the drs at the Columbia Celiac center, I've seen two (on different insurance plans) who were both great. The only bad thing is the parking (expensive if you use the garage and almost impossible to find on the street!)

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      Gluten tester

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      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
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      Oops! @Staticgypsy, I’ll get the book! Thank you! 
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      Seeking advice on potential gluten challenge

      By trents · Posted

      Sorry, @JudyLou, as reread your post, I see that you have had gene testing done already.
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