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HAK1031

Going Casein-free

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I'm already about 75% dairy free from my lactose problems, but now I'm going completely CF for a week or two to see if I feel better. I am starting to feel sick again- headaches, and I still have that stomach bug (but I can keep fluids down OK now and I'm not dehydrated, but I will be seeing the doc tomorrow).

I'm starting to feel a bit like I did pre DX. My knees and hips are sore, my hair is falling out really easily and I'm exhausted. So out goes the casein. I'm also soy-lite: no soymilk or tofu or anything fried in soybean oil, although I do still eat foods with soy lechitin. If going CF doesn't help after a few days, I'll try completely soy free too. I could also stand to eat a little healthier than I have been.

But do I need to be as careful about casein as I am with gluten? Should I be worried about CC?

Thanks everyone for your advice


Gluten Free since 10/07

Mildly Lactose Intolerant, slight intestinal symptoms after eating milk products, but easily corrected with lactase enzyme

Endometriosis- DX'd 5/07

Gluten Antibodies- "negative"...don't know exact numbers, am highly suspicious...

DXed celiac 12-19-07 via genetics/elimination diet- DQ2 allele

Brother with Celiac, aspergers...his tests were all negative (he didn't have genetics done), including endoscopy, but he definitely is at the least gluten intolerant...highly suspect my mother has it as well- she has hyperthyroid, fibromyalgia, hemochromatosis, and now colon cancer, and she has been weak and exhausted and just generally sick. She's going to get tested.

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I have found that being as careful with casein as I am with gluten makes a difference. I've been 90% dairy-free since August and 100% since October. When I do get a little bit of dairy I know immediately - my sinuses flare up, I bloat and feel cranky for several days. It's almost like a gluten reaction to me, but not as bad.

Have you kept a food/symptom journal to see if there may be other offending foods?

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