Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doing My Part


Mom23boys

Recommended Posts

Mom23boys Contributor

It looks like I'm on her list now. Anyway, I decided to sign up for some of the community sharing projects and recipe things they do (sorry, I don't have all the lingo down) . I'm going to give it my all to make any of those projects fit our Gluten-free Casein-free (and the rest of our evils free) to promote allergy/intolerance/sensitivity awareness. Care to join me? :D (read: HELP!) :lol:;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kenlove Rising Star

Not sure how I can help although in things you send her you can quote some of the things we are doing in Hawaii with chefs and restaurant guidelines and classes for culinary students. Chefs tell me 10% of the guests not have some food allergy, mostly celiac followed by peanut followed by shellfish, so they know they have to get up to speed on it all.

Magazines love to write about hawaii!

good luck

It looks like I'm on her list now. Anyway, I decided to sign up for some of the community sharing projects and recipe things they do (sorry, I don't have all the lingo down) . I'm going to give it my all to make any of those projects fit our Gluten-free Casein-free (and the rest of our evils free) to promote allergy/intolerance/sensitivity awareness. Care to join me? :D (read: HELP!) :lol:;)
VioletBlue Contributor

Hmm, best of luck with that. Foodies can be some of the nastiest people when it comes to being tolerant of allergies and food intolerances. I learned that on the Jamie Oliver forum. One poor woman mentioned cheese allergies and they got nasty with her. I came to her defense in what I thought was a non aggressive manner and got shouted down as well. My favorite comment was the ding-a-ling who said "Just take an allergy pill". But then these are people who are insisting that school lunch programs use "free range" chickens exclusively. Yeah, that would fly in the US.

My point is, they tend to get really defensive. I think they somehow see those of us with allergies and intolerances as somehow limiting their future options or something.

Violet

Mom23boys Contributor
One poor woman mentioned cheese allergies and they got nasty with her. I came to her defense in what I thought was a non aggressive manner and got shouted down as well. My favorite comment was the ding-a-ling who said "Just take an allergy pill".

Well, I know you can have a nut case on any message board but the way this is set up in the recipe area doesn't really encourage it. I am focusing my efforts in the area where it asks for comments from people who have tried the recipe and give their reviews. If people can say needs more salt or needs less pepper, I feel I can say works well with soy as a sub or if you don't eat wheat use the rice noodles instead of corm.

I first choose a defining name using Gluten-free Casein-free in the name. I am trying basic recipes at first and giving my ratings and comments. After I have some up I am going to start trying recipes that call for pasta or milk. I still encounter way too many people who think we are some frumpy, twig eating, hippie types. We have actually had people accept invites out of curiosity only to find out we were "NORMAL". "Your stove is newer then mine!", "You have air conditioning", "You have furniture"...it gets down right scary at times when you hear the confessions.

The stereotype needs to be broken and they need to recognize that we can also be the teacher, the lawyer, the mom/dad, the company president...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.