Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! I Keep Getting Glutened! Ugh!


horsefarmer4

Recommended Posts

horsefarmer4 Apprentice

HI GUYS, I NEED SOME HELP. I'M STILL PRETTY NEW AT THIS ANY I'VE BEEN HAVING A LITTLE TROUBLE LATELY. I DID GOOD FOR TWO MONTHS- THEN I WENT OFF FOR ABOUT TWO MONTHS AND FOR THE PAST THREE MONTHS I'VE BEEN STRUGGLING. EVERY THREE DAYS I GET GLUTENED. IS IT JUST ME OR DOES YOUR SYSTEM GET MORE SENSITIVE TO IT?

SO ANYWAYS, I NEED SOME IDEAS TO DO THE ELIMINATION DIET. I NEED A FEW VERY SAFE AND SATISFYING BUT CHEAP FOODS? THINGS I CAN LIVE ON SO I FEEL BETTER AND THEN START TO EXPLORE OTHER FOODS. :D THANKS FOR ANY HELP YOU CAN OFFER.-TINA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Sorry that you are having a hard time.

Start a food journal. Record everthing that you eat and that will help you find out what the culprit is. Alot of foods can be irritants because you aren't healed.

When I feel bad, I go back to the basics. Simple unprocessed foods. Meats, seafood, rice, fresh veggies, potatoes and fruit.

YoloGx Rookie
HI GUYS, I NEED SOME HELP. I'M STILL PRETTY NEW AT THIS ANY I'VE BEEN HAVING A LITTLE TROUBLE LATELY. I DID GOOD FOR TWO MONTHS- THEN I WENT OFF FOR ABOUT TWO MONTHS AND FOR THE PAST THREE MONTHS I'VE BEEN STRUGGLING. EVERY THREE DAYS I GET GLUTENED. IS IT JUST ME OR DOES YOUR SYSTEM GET MORE SENSITIVE TO IT?

SO ANYWAYS, I NEED SOME IDEAS TO DO THE ELIMINATION DIET. I NEED A FEW VERY SAFE AND SATISFYING BUT CHEAP FOODS? THINGS I CAN LIVE ON SO I FEEL BETTER AND THEN START TO EXPLORE OTHER FOODS. :D THANKS FOR ANY HELP YOU CAN OFFER.-TINA

Hi Tina,

Yes you do become more sensitive. Though its worth it since overall you feel better. I look forward when they finish devjisinga pill lthat will make eating out easier. However for at home staying off gluten should be easy. Just don't use gluten products in you animal feed!! I suggest when you do go out invest in getting a cold pack and pack your food. It may seem weird but being sick is just out of the question.

I suggest you follow more of the paleo diet--meat, vegetables including roots and squashes and some fruit and if you aren't allergic nuts and seeds.

I find eating washed cooked quinoa very good as a grain staple in the morning especially. Plus I like making teff, quinoa, amaranth pancakes with a very small bit of potato flour thrown in as a binder (mashed bananamight work too) and cooked quinoa to make it more fluffy. I use baking soda and salt with melte d butter or coconut oil. I fry them with butter since th coconut oil makes them stick.

I top them with some fat and sugar free organic yogurt and some fruit and sunflower seeds. The Ethiopians however use teff pancakes as kind of plates for most of thier meals which they then eat after. The teff really sticks with you for the day and is completely gluten free as is quinoa and amaranth. Make sure when you get various fours they are not contaminated from gluten flours.

I usually eat potato or yam or sweet potato at night for dinner as a starch. You could use baked squash however or any number of roots.

Hope this helps. From what I hear this diet would be good for almost anyone. Humans have only been eating grains at he earliest for the last 15,000 years. And its way less than that if you are a north European. So we just aren't adapted for it.

dbmamaz Explorer

I quit gluten and dairy, and felt better for a few weeks, but then still kept getting instestinal distress. I did some testing - reacted to 1/3 of the 150 food A.L.C.A.T test panel, and of the 46 foods tested at the allergist, only 10 had no reaction. He suggested I eat foods which had a +1 reaction as well as a 0 reaction, but I'm only eating them if they did NOT react on the A.L.C.A.T test.

My current diet is only 20 foods, but I am adding things back in every 3 days - its easy to see the reaction now, since I'm feeling good. I tried some chips and reacted - they were fried in canola, so now i'm avoiding that. I had some herbal tea last night, and reacted to that. I tried a b-complex this morning, and reacted to that. I would not have noticed these reactions so clearly before when I was eating so many reactive foods.

The tests arent cheap, esp the alc.at. My current safe foods are:soy, corn, potato, sweet potato, brocolli, green bean, lettuce, spinach, celery, tomato, avacado, grape, cantaloupe, Orange, Peach, black tea, Olive. I was able to add sunflower seeds. I reacted to every meat the allergist tested me for.

Its really a big task to cut down so far - i'm cooking seperately for the family. But I trust that, by the end of this, I will know exactly which foods are bothering me. I also suspect I'll never eat wheat again, even tho my celiac panel was negative, because it was a strong reaction on both of the other tests.

good luck figuring it out - a food diary is probaby easier for most people, I just couldnt remember to write down my foods.

YoloGx Rookie
I quit gluten and dairy, and felt better for a few weeks, but then still kept getting instestinal distress. I did some testing - reacted to 1/3 of the 150 food A.L.C.A.T test panel, and of the 46 foods tested at the allergist, only 10 had no reaction. He suggested I eat foods which had a +1 reaction as well as a 0 reaction, but I'm only eating them if they did NOT react on the A.L.C.A.T test.

My current diet is only 20 foods, but I am adding things back in every 3 days - its easy to see the reaction now, since I'm feeling good. I tried some chips and reacted - they were fried in canola, so now i'm avoiding that. I had some herbal tea last night, and reacted to that. I tried a b-complex this morning, and reacted to that. I would not have noticed these reactions so clearly before when I was eating so many reactive foods.

The tests arent cheap, esp the alc.at. My current safe foods are:soy, corn, potato, sweet potato, brocolli, green bean, lettuce, spinach, celery, tomato, avacado, grape, cantaloupe, Orange, Peach, black tea, Olive. I was able to add sunflower seeds. I reacted to every meat the allergist tested me for.

Its really a big task to cut down so far - i'm cooking seperately for the family. But I trust that, by the end of this, I will know exactly which foods are bothering me. I also suspect I'll never eat wheat again, even tho my celiac panel was negative, because it was a strong reaction on both of the other tests.

good luck figuring it out - a food diary is probaby easier for most people, I just couldnt remember to write down my foods.

I just wanted to add that in time your intestines will heal and its likely you will become less reactive fro the effects of likely leaky gut syndrome.

I also found I often could have something once or twice a week but not more often especially at first. Plus sometimes I found I could not eat certain things with other specific things but they were fine by themselves.

These days I discover I need to cook my fruit so I won't have an allergic reaction.

Taking herbs and or supplements and enzymes to heal the gut helps speed up the process of healing--assuming you aren't allergic to them. I have posts elsewhere that get into the specifics.

Hope this helps!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,995
    • Most Online (within 30 mins)
      7,748

    Jojolina14
    Newest Member
    Jojolina14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wends
      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
    • AnnaNZ
      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    • The Logician
      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS.  I seriously doubt I have celiac but I appreciate your input and will let you know if I have a problem with wheat again. I’ve been eating things I’ve longed for for decades and have never felt better.
    • trents
      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
×
×
  • Create New...