Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Are There Rare, But Occasiona,l Periods Of Symptom Remission?


Molecular Dude

Recommended Posts

Molecular Dude Apprentice

Hi everyone,

I do the very best that I can to avoid gluten-containing foods, but I live in a gluten-filled household, and we still eat in restaurants about once every two weeks. I also seem to have a spectrum of additional food sensitivities that I have never completely nailed down. As a result, it is quite common for me to experience digestive system discomfort once or twice a week even though I NEVER deliberately consume gluten (I really don't know whether this discomfort results from gluten contamination or from other food sensitivities). Recently, however, I have been in some sort of remission during which I haven't felt that discomfort. I have also experienced this in the past, and was then actually foolish enough to try a few gluten containing foods. Having learned my lessons, I won't be trying that again, but I am left wondering what causes these periods of symptomatic remission. As far as I can tell, I haven't changed my diet in any way. Have any of you had similar experiences?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie
  Molecular Dude said:
Hi everyone,

I do the very best that I can to avoid gluten-containing foods, but I live in a gluten-filled household, and we still eat in restaurants about once every two weeks. I also seem to have a spectrum of additional food sensitivities that I have never completely nailed down. As a result, it is quite common for me to experience digestive system discomfort once or twice a week even though I NEVER deliberately consume gluten (I really don't know whether this discomfort results from gluten contamination or from other food sensitivities). Recently, however, I have been in some sort of remission during which I haven't felt that discomfort. I have also experienced this in the past, and was then actually foolish enough to try a few gluten containing foods. Having learned my lessons, I won't be trying that again, but I am left wondering what causes these periods of symptomatic remission. As far as I can tell, I haven't changed my diet in any way. Have any of you had similar experiences?

Thanks

Perhaps you are healing?

The other factor is that you may be getting gluten frequently enough that your body reacts less. This is of course a two edged sword. Good on the one hand but possibly deleterious to your nervous system, joints and villi etc. and long term health on the other.

Certainly when I was getting hidden gluten it was still damaging my health even though I wasn't nearly as reactive. My nerves eventually were down to 50%. Its also hard on the heart and eyes etc. Further I got eczema and had poor short term memory and easily got confused and stressed. Plus I got sick with flu etc. much more frequently not to speak of digestive upsets.

Is there any way you could avoid cc more fully? Have your own place to fix things and the same with the others plus your own cutting board and toaster etc.? You might ask your mates to help on this one.

I am hearing on the boards that if you ask the restaurant to be more careful about cc they sometimes actually do it. If you could find a restaurant that caters to someone with celiac that would be a great help. At least ask for their help and consideration. It may do wonders in the long run if not immediately. They want you as a returning customer and this may be a way for them to carve a niche with others who have the same condition.

Yolo

nikky Contributor

maybe the resturant isnt as carefull as they should be, or your somehow getting crosscontamination at home.

ive read that symptoms can turn on and off, so you may eat gluten one week and feel perfectly fine and then eat gluten the next week and get sick, the important thing to remember with that is even though you arent feeling ill, the damage to your body is still happening

i had a lot of stomach problems when i was young which we think could of been linked to the coeliac, but then i became completely asymptomatic until after the positive bloodwork and false negative biopsy.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,149
    • Most Online (within 30 mins)
      7,748

    Indian Room
    Newest Member
    Indian Room
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • N00dnutt
      Hi @terrymouse Generally, after a Celiac Seriology Blood Test, if something anomalous shows up, the follow-up will be a Gastroscope. Your Endocrinonogist will be looking to see if you still have (Villi). Villi are Tenticles/Hairs that are prevalent throughout the small intestine; their function is to extract nutrients, vitamins and water. The absense of Villi will typically result in watery bowl movements, other telltale signs being, lethargy, feeling cold, always hungry (valuable nutrients are being bypassed). I was diagnosed 12 years ago. One other thing associated with an AutoImmune Disease, they generally have a companion, in my case I have Hypothyroidism, other may have...
    • jeriM
      Thank you Knitty Kitty,   I have all the information for the nutritionist sitting in front of me, but I've procrastinated.   Between you and Scott - I'll contact him tomorrow and get started on a better me.   Thank you both for all the support and information.    
    • knitty kitty
      Hi, @jeriM, I can attest to Celiac and eye problems being connected!  There's a higher rate of Sjogren's Syndrome in Celiac people than in those without celiac disease.  Sjogren's Syndrome causes dry eyes and can even lead to dry mouth which can alter taste and smell.  Have your doctor check for Sjogren's.  Correct low Vitamin D, which regulates the immune system.  Talk to your nutritionist about including in your diet plenty of Omega Three's. Omega Three's help keep our eyes moist and lubricated.  You know how oil floats on water, same thing with our eyes!  Fun fact:  Our eyes are derived from the same sort of tissues as our digestive tract in a developing fetus. Oh, check your thyroid...
    • jeriM
      Ah, Scott,    Ha ha!  Thats almost a reasonable assumption given the prices during the shortage.  However, our eggs?  We always gave them away to friends and seniors we know, so no mansion here.  Now we have to buy eggs like everyone else.   The house we found, we loved so much that it made it worth it for us to give up the chickens.  A hard decision.   
    • Scott Adams
      Claritin is an allergy medication which can help with allergy symptoms, but may not be helpful with gluten exposure.
×
×
  • Create New...