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Why Are There Rare, But Occasiona,l Periods Of Symptom Remission?


Molecular Dude

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Molecular Dude Apprentice

Hi everyone,

I do the very best that I can to avoid gluten-containing foods, but I live in a gluten-filled household, and we still eat in restaurants about once every two weeks. I also seem to have a spectrum of additional food sensitivities that I have never completely nailed down. As a result, it is quite common for me to experience digestive system discomfort once or twice a week even though I NEVER deliberately consume gluten (I really don't know whether this discomfort results from gluten contamination or from other food sensitivities). Recently, however, I have been in some sort of remission during which I haven't felt that discomfort. I have also experienced this in the past, and was then actually foolish enough to try a few gluten containing foods. Having learned my lessons, I won't be trying that again, but I am left wondering what causes these periods of symptomatic remission. As far as I can tell, I haven't changed my diet in any way. Have any of you had similar experiences?

Thanks


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YoloGx Rookie
Hi everyone,

I do the very best that I can to avoid gluten-containing foods, but I live in a gluten-filled household, and we still eat in restaurants about once every two weeks. I also seem to have a spectrum of additional food sensitivities that I have never completely nailed down. As a result, it is quite common for me to experience digestive system discomfort once or twice a week even though I NEVER deliberately consume gluten (I really don't know whether this discomfort results from gluten contamination or from other food sensitivities). Recently, however, I have been in some sort of remission during which I haven't felt that discomfort. I have also experienced this in the past, and was then actually foolish enough to try a few gluten containing foods. Having learned my lessons, I won't be trying that again, but I am left wondering what causes these periods of symptomatic remission. As far as I can tell, I haven't changed my diet in any way. Have any of you had similar experiences?

Thanks

Perhaps you are healing?

The other factor is that you may be getting gluten frequently enough that your body reacts less. This is of course a two edged sword. Good on the one hand but possibly deleterious to your nervous system, joints and villi etc. and long term health on the other.

Certainly when I was getting hidden gluten it was still damaging my health even though I wasn't nearly as reactive. My nerves eventually were down to 50%. Its also hard on the heart and eyes etc. Further I got eczema and had poor short term memory and easily got confused and stressed. Plus I got sick with flu etc. much more frequently not to speak of digestive upsets.

Is there any way you could avoid cc more fully? Have your own place to fix things and the same with the others plus your own cutting board and toaster etc.? You might ask your mates to help on this one.

I am hearing on the boards that if you ask the restaurant to be more careful about cc they sometimes actually do it. If you could find a restaurant that caters to someone with celiac that would be a great help. At least ask for their help and consideration. It may do wonders in the long run if not immediately. They want you as a returning customer and this may be a way for them to carve a niche with others who have the same condition.

Yolo

nikky Contributor

maybe the resturant isnt as carefull as they should be, or your somehow getting crosscontamination at home.

ive read that symptoms can turn on and off, so you may eat gluten one week and feel perfectly fine and then eat gluten the next week and get sick, the important thing to remember with that is even though you arent feeling ill, the damage to your body is still happening

i had a lot of stomach problems when i was young which we think could of been linked to the coeliac, but then i became completely asymptomatic until after the positive bloodwork and false negative biopsy.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
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    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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