Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Dermatitis Herpetiformis I Need Education Please


thumper

Recommended Posts

thumper Apprentice

Question....Are you absolutely sure that this is chicken pox? Because you are Celiac...it may be Dermatitis Herpetiformus (sp?). I thought that I had poison Ivy last fall, before my diagnosis.....except that it didn't really look or act like poison ivy, wasn't helped with the usual treatments, and lasted a loooooong time. The blisters burned, and I wanted to take my skin off because the itch was so bad. The blisters on my feet (even on the bottoms...which should have been a clue that it wasn't P.I), bled under the skin and eventually scabbed...pretty nasty...esp. since my job had me on my feet 12 hrs a day.

Anyway......you may want to be sure just what it is you have before you treat it. Derm. Hep. is a skin form of Celiac......you may be getting glutened.

No actually I am not for sure it is chicken pox but it sure looks like it but what you just discribed sounds like it too... I know that when my children (all 4) had chicken pox I never got them and they had them really bad in fact I was still nursing my youngest (he was about 9 months) when they had them and I never got them... that was about 19 yrs ago. Then Erik got shingles and I never got them from that either and the doc told me at that time I must have a natural amunity (sp?) to them.

I would go to the doc but right now my husband has just started a new job (YEAH!!!) and his insurance hasn't started yet, not till April.... So I am playing doc myself right now... ugh.

What is dermatitis herpetiformis (sp?) I never heard of that before.

I hate to admit it but you hit it on the head going around one's house scratching your behind isn't very atractive but like you said I itch ALL OVER and the blisters do burn !

So if it is this what is it and how do I get rid of it ?? What did you do ??

I think I know what a dog feels like w/ fleas....lol.... So if not the chicken pox and possibly dermatitis herpetiformis (sp?) can someone educate me ??

Thumper


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

I hope this link will be helpful.

Open Original Shared Link

flourgirl Apprentice

A doctor can take a biopsy of your skin near the lesions to verify dermatitis herpetiformis, but you can find info online (try Mayo clinic or webmd). It's said that it occurs mainly near elbows, knees, but people can and do get it everywhere (and I mean everywhere!) It IS caused by gluten...it is a skin form of Celiac Disease. You may get some relief with bath soaks (I was using oatmeal soak, but I didn't know I was Celiac, and I'm not sure if it hurts to use it), and you may try Calamine...there's a clear one available now so it doesn't look so obvious. It helped ease my itch a little.....but only a little. Without a gluten free diet, it may not go away. A Dr. may perscribe Dapsone, to supress the itch. BUT I understand that some of the side effects are like sick symptoms of Celiac. DO NOT use steroids for relief, because high doses are needed to ease the inflammatory response, and that can aggravate bone loss.....which you already may be dealing with because of Celiac.

I got a lot of this info. in CELIAC DISEASE...A HIDDEN EPIDEMIC by Peter Green, MD (director of Celiac Disease Center at Columbia University).....great book for info, by the way.

Hope this helps a little. DH in anything but fun to deal with. Hope you find relief very quickly. People who've had this, not knowing about Celiac Disease, have had to suffer with this for years (ouch!)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,492
    • Most Online (within 30 mins)
      7,748

    K Zappe
    Newest Member
    K Zappe
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.