Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finally, A Diagnosis Of Dh

mamasaidso

By mamasaidso
in Dermatitis Herpetiformis

Recommended Posts

mamasaidso Apprentice
mamasaidso
Posted

I am just a few weeks into celiac diagnosis and yesterday my new dermatologist confirmed DH on my arms. That's the only place I have rashes. The itching and burning is starting to ease up a bit on the diet. She gave me TMC-compound to relieve itching and seems to work. I've had five years of wondering what this is and no doctor has been able to diagnose it. So I'm hoping when it clears up i can have chemical peels to help with the scars. Would be nice to wear short sleeves again. I'm just relieved to finally know what this is.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Congratulations on your diagnosis. Even though having celiac disease isn't fun, it is good to know what to do to feel better. I hope your rashes clear up soon.

You do know that it can take one to two years for deposits under the skin to clear, and outbreaks are still possible during that time, right? Mind you, they will likely be milder, and it doesn't have to happen.

Plus, when you get glutened (which is pretty inevitable) you might get outbreaks.

ravenwoodglass Mentor
ravenwoodglass
Posted
I am just a few weeks into celiac diagnosis and yesterday my new dermatologist confirmed DH on my arms. That's the only place I have rashes. The itching and burning is starting to ease up a bit on the diet. She gave me TMC-compound to relieve itching and seems to work. I've had five years of wondering what this is and no doctor has been able to diagnose it. So I'm hoping when it clears up i can have chemical peels to help with the scars. Would be nice to wear short sleeves again. I'm just relieved to finally know what this is.

It is good you finally know. You may want to watch out for iodine in salt and in stuff like vitamins for a bit. I would rethink the chemical peel idea. The scars will fade and if they are really troublesome there are cosmetics that can cover them. You don't want to risk furthur damage by burning the skin. Be careful of all toiletries and such as well as foods and as Ursa said the deposits will take a while to leave the skin. Until then even small amounts of CC may reactivate.

mamasaidso Apprentice
mamasaidso
Posted
  • Author

Thanks for replies. I had a funny feeling that this may take a while to heal. Didn't realize it can hang around that long under skin, but doesn't surprise me in the least. I am constantly learning something new about this. So, I should avoid iodine? Does that mean shrimp? Why does iodine aggravate this? Guess I have more research to do. I have had no gluten for two weeks and today my arms are on fire. I must have slipped somewhere. Maybe my vitamins? I think I need to go to the coping forum. :(

You guys are great. Thanks so much for your help. Will put peels on back burner for now and focus on healing from the inside. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,339
    • Most Online (within 30 mins)
      7,748
    Skydawg
    Newest Member
    Skydawg
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Gluten exposure when trying to conceive

      By trents · Posted

      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Gluten exposure when trying to conceive

      By Skydawg · Posted

      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      Gluten Free Cannabis Edibles

      By ShadowLoom · Posted

      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      Damage after 13 years gluten free

      By Scott Adams · Posted

      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Damage after 13 years gluten free

      By RMJ · Posted

      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...