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Diagnosis And Treatment Without Insurance


sweet butterfly

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sweet butterfly Newbie

Hi,

I am between college and grad school and do not have insurance now (just high-deductible that does not cover anything below $5,000). I should have good insurance starting this summer.

I have not ever been tested for celiac/gluten-sensitivity, but I have serious reactions to even a small amount of gluten, mainly depression, irritability, and deep, dark circles under my eyes for a few days afterwards.

I've been trying to eat Gluten-free for about 6 months, but lately, I am having symptoms, perhaps from foods labeled as Gluten-free even though they are not, or from something undetermined.

I think I would benefit from having an Enterolab test, maybe York labs tests, etc., to see a) whether I am sensitive, B) if so, how am I doing on the Gluten-free diet, and c) if I am allergic to anything else.

Then I am thinking about going to a naturopath a few times to help me make a treatment plan.

I don't know of any doctors I can go to in the Cambridge, MA area for less than $200.

Additionally, my parents divorced recently and neither wants to pay for anything for me, and besides that, they are extremely careful with money.

Any advice on:

1) what affordable-without-insurance steps I can take before I have normal insurance?

2) how to explain to my parents why those tests/steps are necessary? they are reluctant to pay for anything.

Thanks!


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sweet butterfly Newbie

Right,

I normally do very well on Gluten-free diet and noticed improvements as soon as I started it (namely, I was able to stop taking antidepressants and had better mental focus).

Also, there is a very close connection between my eating gluten and having my symptoms return, so I think I am allergic to gluten; just not sure by what means or to what extent, and not sure how my villi, Igs, etc are.

psawyer Proficient

I think you already have your answer. I read it in your post: you feel better on a gluten-free diet, and problems return when you ingest gluten.

You don't need a doctor, a biopsy, or a blood test to back that up, unless you need written documentation to show some bureaucrat why you need accommodation of your dietary requirements.

Stay on the diet and stay healthy. If you are still having problems while staying 100% gluten-free (and yes, I mean 100%), then you may need to pursue other possible issues.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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