Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are Sleepless Night A Symptom In Babies?

karinezoe

Recommended Posts

karinezoe Newbie
karinezoe
Posted

as soon as I feed her gluten, she stops sleeping throught the night. she moves alot, wakes up crying, has gas.

if I try a gluten free diet, she seems to sleep alot better.

can this be a symptom??

she is 7 months and we are waiting on test results for celiacs.

lately, she has been tolarating gluten alot better so we were thinking mabye it was just that she wasn't ready for baby cereal yet. or mabye were just denying the whole thing :(

thanks for the help

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dandelionmom Enthusiast
dandelionmom
Posted

I don't know the official answer but we believe it was a symptom for our daughter. Shortly after the introduction of solids, we started referring to her as "the baby who doesn't sleep." It is hard to sleep with an upset stomach.

Maybe try cutting out the gluten for a bit to see how she does?

Ursa Major Collaborator
Ursa Major
Posted

The celiac disease tests are extremely unreliable in children under six, and even more so in babies. It is not very likely you get a positive test result in babies who aren't so sick already that they are on death's door.

For a seven month old baby the best and most reliable test is to put her on a gluten-free diet to see if it makes a difference. I don't know if you breastfeed (if yes, you would have to stop eating gluten yourself), but please don't give her anything with dairy, either. It could cause those problems as well (as could soy).

If she starts sleeping through the night again when removing gluten, you will really have your answer. And no, if you are gluten intolerant, you don't outgrow it. Your symptoms may change, but if your daughter is truly gluten intolerant, you shouldn't reintroduce gluten at any age, even if there are no obvious (or completely different) symptoms.

One test that works on babies is the one by Open Original Shared Link. If you want more than just your own observations, that would be the best way to go as far as I am concerned. And it doesn't involve having blood drawn from the poor kid.

Worriedtodeath Enthusiast
Worriedtodeath
Posted

Was for us. And as a pp mentioned, getting a positive on a 7 month old who isn't pratically dead is pretty much unheard of. As sick as my daughter was and as convinced as three drs were that this is what she had everything including the biopsy came back negative. IF you do get a positive, count yourself lucky because if you don't chances are very high you will be told to continue feeding her gluten and she will simply get worse. By the time we had the biopsy, everyone agreed something had to be done quickly but no one could agree on what course of action to take. We finally had to say we are going gluten/dairy free and that's that.

Best thing you could do is agree to go gluten free and save yourself the hell of trying to dx a baby. THe only thing it has done for us is rule out every possible other thing known to man. THen later in life (many years later) when her growth isn't critical and development isn't changing literally daily, then you can do a gluten challenge. We are playing catch up not only in weight and height but in speach and mental development.

HTH

Stacie

Hopefulmama Apprentice
Hopefulmama
Posted
as soon as I feed her gluten, she stops sleeping throught the night. she moves alot, wakes up crying, has gas.

if I try a gluten free diet, she seems to sleep alot better.

can this be a symptom??

she is 7 months and we are waiting on test results for celiacs.

lately, she has been tolarating gluten alot better so we were thinking mabye it was just that she wasn't ready for baby cereal yet. or mabye were just denying the whole thing :(

thanks for the help

Our DD never slept well. She is almost 2.5 y/o. She started sleeping better and stopped having night terrors when we cut out the gluten. If she gets glutened, her sleep is wretched. In my opinion, it's something to consider seriously.

ItchyMeredith Contributor
ItchyMeredith
Posted

I am amazed that your 7 month old sleeps through the night at all!!!!

My 16 month old still wakes twice a night to nurse.

<_<

I say YEAH for any sleep at all!!!

Good luck figuring it out.

Ursa Major Collaborator
Ursa Major
Posted
I am amazed that your 7 month old sleeps through the night at all!!!!

My 16 month old still wakes twice a night to nurse.

<_<

I say YEAH for any sleep at all!!!

Meridith, have you tried putting your little one on a gluten-free diet? You never know, maybe he will start sleeping through the night! He might wake up because his tummy hurts and nurses for comfort.

I wouldn't nurse a child that old during the night. I nursed my youngest until she was almost two years old. But only first thing in the morning, before nap time and before bedtime. Certainly not in the middle of the night, I would have checked her diaper, offered some water and put her back to bed if she would wake in the middle of the night. And yes, she ended up sleeping in our bed regularly (I'd find her in the middle when I woke up in the morning :huh: ).

If you nurse him, you encourage him to wake you, and how do you EVER get enough sleep that way?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dandelionmom Enthusiast
dandelionmom
Posted
My 16 month old still wakes twice a night to nurse.

My 18 m/o still wakes to nurse.

Nic Collaborator
Nic
Posted

I was recently googling insomnia because my 5 year old (non celiac as far as we know) has never been able to sleep. He is also constipated. When I googled these symptoms "food allergies" kept coming up but more specifically, gluten. We have an appointment with a gastro for him tomorrow but at the very least I think he is gluten intolerant. It would be so nice if after 5 years we can finally sleep again :P .

Nicole

karinezoe Newbie
karinezoe
Posted
  • Author

here is an update....

we cut out gluten.....again.....and dd is miraculously sleeping throught the night again.

she still wakes once or twice because she can't find her pacifier but the doesn't cry or seem uncomfortable and goes right back to sleep.

mabye it's just a coincidence...or mabye I'm just in denial :(

dh started a gluten-free diet almost one week ago because he has been having joint pains for years (he is 33 yo and is very fit) and severe eczema. He also has sores in his mouth (regularly since childhood)....so we are waiting to see some results.

Worriedtodeath Enthusiast
Worriedtodeath
Posted

my joint pain disappeared 2 weeks after going gluten-free and hasn't returned in the 6 weeks since. I would say it is no coincidence. FOr what ever reason it makes her sleep being gluten free so go with that.

Stacie

Pattymom Newbie
Pattymom
Posted

I am amazed that your 7 month old sleeps through the night at all!!!!

My 16 month old still wakes twice a night to nurse.

<_<

I say YEAH for any sleep at all!!!

That sounds pretty normal to me. None of my 4 slept through the night at 7 months, even the one who slept through the night before that, by 7 months teething pain had kicked in.

They all sleep through the night now.

Patty

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.