Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety And Gluten


AmF

Recommended Posts

AmF Newbie

I HAVE RECENTLY STARTED A GLUTEN FREE DIET, SUGGESTED BY MY CURRENT DOCTOR, IN AN ATTEMPT TO FIGURE OUT MY LONG TERM DIGESTIVE PROBLEMS AND POSSIBLY RELATED IRRATIONAL BOUTS OF ANXIETY, PANIC, AND PARANOIA-LIKE THOUGHTS. HAS ANYONE ON THE FORUM NOTICED A SIGNIFICANT CHANGE IN MENTAL HEALTH AFTER DISCONTINUING GLUTEN?

3 1/2 YEARS AGO I WAS TESTED FOR CELIAC DISEASE AFTER A PERIOD OF STRESS (BREAK-UP/MOVE, GRADUATING COLLEGE, ACCIDENTAL DOSE OF HALLUCINOGEN) AND TRAVEL (GOT VERY SICK-SINUS-TOOK HEAVY ANTIBIOTICS THERE). THE TEST CAME BACK NEGATIVE, DESPITE PREVIOUS SUSPICION. I HAD NOTICED FEELING TIRED AND SLUGGISH AFTER MEALS WITH WHEAT AND PASTA FOR SOME TIME. DURING THIS TIME OF STRESS AND TRAVEL, I STARTED HAVING CHRONIC DIARRHEA (UPON RETURN). NUMEROUS TESTS WERE DONE FOR PARASITES BUT NOTHING SHOWED UP. I LOST 30 POUNDS IN 2 MONTHS AND WOULD GO DAYS WITHOUT SLEEPING DUE TO SEVERE ANXIETY. I BEGAN HAVING PANIC ATTACKS AND MANY IRRIATIONAL FEARFUL THOUGHTS. I KNEW I WAS NOT MYSELF DESPITE THE STRESS I WAS UNDER. I HAD DEALT WITH NUMEROUS STRESSFUL PERIODS IN MY LIFE AND MILD ANXIETY~THIS WAS DIFFERENT. (I DID TAKE A 10-DAY PRESCRIPTION FOR PARASITES AS A 'JUST IN CASE' MEASURE SUGGESTED BY A NATUROPATH)

SINCE THEN MY SYMPTOMS TURNED INTO BURNING GUT SENSATIONS AND I NOTICED A MARKED CHANGE IN WHAT MY BODY COULD HANDLE. I USED TO EAT SPICY FOODS ON A REGULAR BASIS BUT NOW MY BODY NO LONGER COULD TAKE IT. MY TASTE BUDS AND STOMACH SEEMED TO CHANGE OVERNIGHT. I WAS IN AND OUT OF SEEING DOCTORS FOR TESTS THAT CAME UP INCONCLUSIVE. THEY WOULD ONLY OFFER ANTI-DEPRESSANTS FOR THE ANXIETY. I WASN'T SATISFIED WITH THEIR RESPONSE BECAUSE I FELT/FEEL THAT THERE IS SOMETHING CONNECTED TO MY DIGESTIVE SYSTEM AND I DIDN'T WANT TO MASK IT! ALMOST TWO YEARS AGO I BEGAN HAVING SEVERE PAIN IN MY STOMACH THAT TOOK ME TO URGENT CARE AND THE EMERGENCY ROOM WHERE THEY DETECTED GALLSTONES. I CHOSE TO KEEP MY GALLBLADDER AND WENT OFF DAIRY AND KEPT MY DIET SIMPLE. I HAVE NOT HAD THE EXCRUCIATING PAIN SINCE BUT I DO STILL HAVE BOUTS OF DIARRHEA, OCCASIONAL HEADACHES (CHRONIC MIGRAINES WHILE IN SCHOOL 4 YEARS AGO), AND THIS STRANGE DISTORTED ANXIETY.

MY MOTHER HAS DONE ALLERGY TESTING AND HAS A HANDFUL THAT SHE DOESN'T ALWAYS ACKNOWLEDGE. SHE ALSO TAKES A LOW DOSE OF AN OLDER ANTI-DEPRESSANT THAT IS ALSO PRESCRIBED FOR ALLERGIES SO THIS COULD BE WHY SHE ISN'T AS READILY AFFECTED BY FOODS.

I AM VERY INTERESTED TO HEAR ANY POSITIVE "MENTAL HEALTH" IMPROVEMENTS YOU'VE HAD WITH A GLUTEN-FREE DIET. AND ANY GOOD SUGGESTIONS ON NOURISHING A DAMAGED GUT...

THANKS!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pinkdljj Rookie
I HAVE RECENTLY STARTED A GLUTEN FREE DIET, SUGGESTED BY MY CURRENT DOCTOR, IN AN ATTEMPT TO FIGURE OUT MY LONG TERM DIGESTIVE PROBLEMS AND POSSIBLY RELATED IRRATIONAL BOUTS OF ANXIETY, PANIC, AND PARANOIA-LIKE THOUGHTS. HAS ANYONE ON THE FORUM NOTICED A SIGNIFICANT CHANGE IN MENTAL HEALTH AFTER DISCONTINUING GLUTEN?

3 1/2 YEARS AGO I WAS TESTED FOR CELIAC DISEASE AFTER A PERIOD OF STRESS (BREAK-UP/MOVE, GRADUATING COLLEGE, ACCIDENTAL DOSE OF HALLUCINOGEN) AND TRAVEL (GOT VERY SICK-SINUS-TOOK HEAVY ANTIBIOTICS THERE). THE TEST CAME BACK NEGATIVE, DESPITE PREVIOUS SUSPICION. I HAD NOTICED FEELING TIRED AND SLUGGISH AFTER MEALS WITH WHEAT AND PASTA FOR SOME TIME. DURING THIS TIME OF STRESS AND TRAVEL, I STARTED HAVING CHRONIC DIARRHEA (UPON RETURN). NUMEROUS TESTS WERE DONE FOR PARASITES BUT NOTHING SHOWED UP. I LOST 30 POUNDS IN 2 MONTHS AND WOULD GO DAYS WITHOUT SLEEPING DUE TO SEVERE ANXIETY. I BEGAN HAVING PANIC ATTACKS AND MANY IRRIATIONAL FEARFUL THOUGHTS. I KNEW I WAS NOT MYSELF DESPITE THE STRESS I WAS UNDER. I HAD DEALT WITH NUMEROUS STRESSFUL PERIODS IN MY LIFE AND MILD ANXIETY~THIS WAS DIFFERENT. (I DID TAKE A 10-DAY PRESCRIPTION FOR PARASITES AS A 'JUST IN CASE' MEASURE SUGGESTED BY A NATUROPATH)

SINCE THEN MY SYMPTOMS TURNED INTO BURNING GUT SENSATIONS AND I NOTICED A MARKED CHANGE IN WHAT MY BODY COULD HANDLE. I USED TO EAT SPICY FOODS ON A REGULAR BASIS BUT NOW MY BODY NO LONGER COULD TAKE IT. MY TASTE BUDS AND STOMACH SEEMED TO CHANGE OVERNIGHT. I WAS IN AND OUT OF SEEING DOCTORS FOR TESTS THAT CAME UP INCONCLUSIVE. THEY WOULD ONLY OFFER ANTI-DEPRESSANTS FOR THE ANXIETY. I WASN'T SATISFIED WITH THEIR RESPONSE BECAUSE I FELT/FEEL THAT THERE IS SOMETHING CONNECTED TO MY DIGESTIVE SYSTEM AND I DIDN'T WANT TO MASK IT! ALMOST TWO YEARS AGO I BEGAN HAVING SEVERE PAIN IN MY STOMACH THAT TOOK ME TO URGENT CARE AND THE EMERGENCY ROOM WHERE THEY DETECTED GALLSTONES. I CHOSE TO KEEP MY GALLBLADDER AND WENT OFF DAIRY AND KEPT MY DIET SIMPLE. I HAVE NOT HAD THE EXCRUCIATING PAIN SINCE BUT I DO STILL HAVE BOUTS OF DIARRHEA, OCCASIONAL HEADACHES (CHRONIC MIGRAINES WHILE IN SCHOOL 4 YEARS AGO), AND THIS STRANGE DISTORTED ANXIETY.

MY MOTHER HAS DONE ALLERGY TESTING AND HAS A HANDFUL THAT SHE DOESN'T ALWAYS ACKNOWLEDGE. SHE ALSO TAKES A LOW DOSE OF AN OLDER ANTI-DEPRESSANT THAT IS ALSO PRESCRIBED FOR ALLERGIES SO THIS COULD BE WHY SHE ISN'T AS READILY AFFECTED BY FOODS.

I AM VERY INTERESTED TO HEAR ANY POSITIVE "MENTAL HEALTH" IMPROVEMENTS YOU'VE HAD WITH A GLUTEN-FREE DIET. AND ANY GOOD SUGGESTIONS ON NOURISHING A DAMAGED GUT...

THANKS!

pinkdljj Rookie

Hi,

Wow, your story sounds very familiar to mine. I have dealt with anxiety, panic, strange headaches, and intestinal problems for the last 7 years. I think my intolerance to gluten started at this time because all of the sudden I started feeling very different and couldn't quite pinpoint it. They say something will trigger celiac or intolerance to gluten and you will know exactly when it starts. Mine I believe was my second pregnancy and a very stressful life situtation.

Anyhow, after seeing many doctors, psychiatrists, psychologists, etc.... and fed up with their answers (I had always dealt with stressful situation fairly easily as a child and in college, etc.) It was always a pill I should try which only made me worse, or that I had IBS and should eat more fiber, or that I needed to exercise to relieve my anxiety. The anxiety I had always felt like a doom and gloom feeling and seemed to come from my bowels. Very hard to describe to anyone. Sometimes it would happen after I had eaten and sometimes not. It got to the point that I became depressed and suicidal. My dear sister finally convinced me to go to a naturopathic clinic. They ran all sorts of tests, IgG and IgA tests, mineral, amino acid, and stress hormones.

A week later I found out I was highly intolerant to gluten and casein. Very low in minerals, vitamins, amino acids and my stress hormones were way out of whack. I immediately went on a Gluten-free Casein-free diet, started B12 shots, dhea, amino acids, and several other vitamins. I cannot tell you in words how much better I feel. The doom and gloom stopped. I have daily regular bowel movements for the first time in years. My depression is gone. It has been 2 months now and I tell everyone I meet to stop eating gluten for a week and see how they feel. Amazing, really like a miracle for me.

As to the healing process. I cannot drink coffee or eat spicy foods yet. If I do, I don't get anxiety I just get burpy and my bowels hurt. I drink warm chai with soy milk instead of coffee or straight tea. Bananas seem to be very healing to the gut. I haven't really tried a lot of gluten-free breads yet. I am mainly sticking to fresh fruits, vegies, brown rice, fish and lean meats.

I hope you have the same experience I have had. I will never touch gluten again. In fact I'm scared to death of it.

Take care,

Leslie

aikiducky Apprentice

You might want to check out the "Gluten intolerance and behavior" part of this board. Depression and anxiety get discussed a lot there.

Open Original Shared Link

Pauliina

Kritter Rookie

I have noticed a big improvement in anxiety since going on the gluten-free diet 3 weeks ago. I'm much calmer, even a friend of mine who is a Psychologist (she does not treat me, though) has noticed the change in me. I realize that the length of time it takes people to improve after being on a g.f. diet varies significantly due to the damage they have already sustained, but keep at it - I'm betting you will see an improvement in anxiety. In fact, I just read somewhere (I wish I could remember exactly where it was!!! It might even have been on this very website) that there are serotonin receptors in your gut. I had always thought that they were only in your brain. Guess I was wrong. Anyway, if your villi are damaged, I suppose it might stand to reason that your absorption of seratonin (the "feel good" chemical) is compromised. I can tell you that if I accidentally "get glutened" the anxiety is the first thing to return for me.

Have patience and keep at the diet. It's worth it!

Kritter

Oriana Newbie

I have only been doing this for a few weeks and I keep making mistakes! Anyway one thing that I notice is tension when I've been really gluten free for even just a few days I sleep better even if its less hours, and don't feel exhausted the next day. I have severe problems with night anxiety... I will lay awake all night worrying. If there is nothing to worry about then I will invent something, like oh I'm not getting enough sleep I have to wake up in x hours... its really frustrating. But I think part of the reason I sleep better when I haven't had gluten is that those thoughts aren't so strong on those nights. I don't know. I guess time will tell for me what all improves. I'm hoping to see some improvements in both my emotional health as well as physical!

gfp Enthusiast
LONG TERM DIGESTIVE PROBLEMS AND POSSIBLY RELATED IRRATIONAL BOUTS OF ANXIETY, PANIC, AND PARANOIA-LIKE THOUGHTS. HAS ANYONE ON THE FORUM NOTICED A SIGNIFICANT CHANGE IN MENTAL HEALTH AFTER DISCONTINUING GLUTEN?

Yes ... Yes and Yes. = Short answer....

Long answer is follow aikiducky's advice above....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AmF Newbie

Thank you everyone for responding so far. I was really excited that people had responded to my post! It has been a long, mysterious, scary road at times and to have your support and, in some cases, people sharing a similar experience is incredibly comforting. No one I know has been able to relate to me and my symptoms.

Thanks Paulina for the suggestion, I will check out the link.

Leslie~ Do you drink caffeinated Chai w/soy? I have been staying away from caffeine since my first panic attack 3+ years ago, ever since then caffeine brought on immediate heart palpitations. Do you also take Omega 3/6 supplements?

I wonder the effectiveness of my gut in absorbing vitamins/nutrients at this time. (Makes sense what you said Kritter) When I had my last stool test done it showed no trace of the lactobicillus "good" bacteria and I had been taking an acidophillus supplement on a daily basis for the past 3 years! I've now switched brands but have yet to be retested. Also because of chronic diarrhea, my food doesn't seem digested that well. I drink Aloe juice and that seems to sooth burning sensations.

How have others helped heal their gut in addition to a gluten free diet?

I'm looking forward to a balanced body again!

Thanks,

Amy

Kritter Rookie

AmF,

My Pharmacist recommended an acidophilus pearl. It is made by the "Leader" company. The reason he says the "pearl" is best is because it doesn't disolve in your stomach, like the capsules do. It stays intact and disolves only after it hits your intestinal tract - which is exactly where you actually need to good stuff (pro-biotics) to go. The box says their website is www.myleader.com. I just ended up calling my pharmacist and he looked into whether or not it was gluten-free it for me. Of course, it is, or I wouldn't still be taking it. Anyway, I highly recommend the pearls - they really work wonders!!!! If you can't locate the stuff, try asking a Pharmacist. They should be familiar with the brand. Good luck!

Kritter

silk Contributor

I HAVE RECENTLY STARTED A GLUTEN FREE DIET, SUGGESTED BY MY CURRENT DOCTOR, IN AN ATTEMPT TO FIGURE OUT MY LONG TERM DIGESTIVE PROBLEMS AND POSSIBLY RELATED IRRATIONAL BOUTS OF ANXIETY, PANIC, AND PARANOIA-LIKE THOUGHTS. HAS ANYONE ON THE FORUM NOTICED A SIGNIFICANT CHANGE IN MENTAL HEALTH AFTER DISCONTINUING GLUTEN?"

Interesting. I was just thinking about this yesterday. I have suffered from anxiety and depression for many years and take medication for it. Aside from the occasional episodes of depression re: celiac disease and food limitations, I have noticed a significant change as has my family. Not as many high and low moments, I have been gluten-free since November. During my last visit in September my doctor suggested that I might try to wean myself from the medication. Because I was having such dietary problems and winter months are traditionally hard (SAD) for me I hesitated but I have been doing so well since going gluten-free that I have decided to wean myself from the medication and see how it goes. Keeping my fingers and toes crossed.

If you see the words "KILL DOROTHY" written in smoke over the general direction of Nebraska, you'll know it was not successful. :D

AmF Newbie

Kritter, thank you for the recommendation for acidophilus 'pearls'. I will look into that. I like the sound of it moving into the intestines, beyond the stomach, where it is truly needed. I am not that educated on how dis-ease or digestive issues keep foods and nutrients from being properly digested and absorbed but that sounds good.

Silk, I hope and wish the best for you weening off your medication and am glad to hear that you have been feeling noticeably better mood-wise on a gluten-free diet! Always encouraging to hear. :)

YoloGx Rookie
Kritter, thank you for the recommendation for acidophilus 'pearls'. I will look into that. I like the sound of it moving into the intestines, beyond the stomach, where it is truly needed. I am not that educated on how dis-ease or digestive issues keep foods and nutrients from being properly digested and absorbed but that sounds good.

Silk, I hope and wish the best for you weening off your medication and am glad to hear that you have been feeling noticeably better mood-wise on a gluten-free diet! Always encouraging to hear. :)

Just wanted to add my bit. I had schizophrenic like visions as a child and young adult caused no doubt by my gluten intolerances plus a need to have B vitamins that my body just couldn't make or absorb very well on its own. After I went off the gluten and started taking B vitamins (due to starting to progressively lose my kidneys--I decided to try my grandmother's advice to make dietary changes despite my doctor saying I should be on antibiotics forever) the visions and crankiness and inability to concentrate for the most part went away. The visions left completely when I went off all (observable) gluten--and the inability to concentrate and easily get stressed left when I started to take the (non-sorbitol) co-enzyme B's from Country Life two years ago.

Apparently undigested gluten gives off opiates into the body. I found that being off wheat and rye made me much less anxious and irritable. As time went on and I went off all gluten I now discover I actually have a very even disposition and am able to deal with the stresses of life better than most, that is if I don't get CC'd!! (like I did recently...)

I read that when this one doctor back East experimented with a hospital full of schizophrenics by taking them off all common allergens (wheat, rye, barley and oats being on top--as well as dairy), 80% went into remission... Enough said? There are other studies that show that if the school children go off sugar and common allergens they are much less likely to act out and be violent.

More mental health workers need to get clued into this as well as the general public. There is so much suffering out there that could easily be prevented by diet alone that its incredible. Institutional food as well as what they server in most school cafeterias is a crime in my humble opinion.

AmF Newbie

thanks for the additional advice. I am still in my first week gluten-free. I suspect I may have a sensitivity to corn as well. I have been taking Twin Labs Stress-Liquid B vitamins for over a year now. I notice a difference in my energy level from taking them. I think my gut has been so damaged by stress, antibiotics, and toxins (wheat/gluten) allergens that hopefully by taking those factors out I will start to absorb nutrients more efficiently again and the chronic diarrhea will subside.

my youngest sister has bipolar disorder with 'schizophrenic tendancies'. I would love if she would go on a gluten-free diet! It would be so amazing if institutions (including schools) would take this serious allergy/sensitivity into account when meal planning. The change it would bring....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,948
    • Most Online (within 30 mins)
      7,748

    Stephanie94
    Newest Member
    Stephanie94
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.