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Constipation Help

blondebombshell

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blondebombshell Collaborator
blondebombshell
Posted

this may be TMI but i need help. doctors seem to know 'nothing' about what is wrong with me.

my whooole life i have had issues with going to the bathroom. i probably go once a week. my diet is relatively clean (veggies, fruits, etc) so i dont know why.

wound up going to the doctor in august and asked why it hurt when i laid on my left hand side. always feel bloated, etc. he told me i was constipated and that i should take laxatives. did some bloodwork and came back that i had a gluten, wheat and egg allergy. i had an endoscopy and it came back negative for celiac.

i have been taking the laxatives now for a few months, while eliminating wheat/gluten at the same time and am feeling much, much better.

any ideas as to what is *really* wrong? i feel like no one knows - no allergists, GI's, no one!! when i do eat something that has gluten in it, i get itchy hives all over my legs.

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celiac-mommy Collaborator
celiac-mommy
Posted

Are you still constipated? If you're feeling better overall but are still finding yourself constipated, it may be the constant use of the laxitives. The longer you use them, your body will build a dependancy and you will have a difficult time going without them or having to increase your dose over time because your body is going to need more and more...

debmidge Rising Star
debmidge
Posted
this may be TMI but i need help. doctors seem to know 'nothing' about what is wrong with me.

my whooole life i have had issues with going to the bathroom. i probably go once a week. my diet is relatively clean (veggies, fruits, etc) so i dont know why.

wound up going to the doctor in august and asked why it hurt when i laid on my left hand side. always feel bloated, etc. he told me i was constipated and that i should take laxatives. did some bloodwork and came back that i had a gluten, wheat and egg allergy. i had an endoscopy and it came back negative for celiac.

i have been taking the laxatives now for a few months, while eliminating wheat/gluten at the same time and am feeling much, much better.

Do you mean laxatives or fiber supplements?

blondebombshell Collaborator
blondebombshell
Posted
  • Author

laxatives

flourgirl Apprentice
flourgirl
Posted

Hi. If you're getting itchy hives when you ingest gluten, that may be dermatitis herpetiformis, which is a skin manifestation of Celiac. A biopsy near the rash would be able to tell you. You can have Celiac without the intestinal damage. Have you had any blood tests? I would look into this further, and be persistant for answers. As far as constipation...I've had it for years...we always thought it was just a familial trait, as most of my family suffers with it. Turns out for me, at least, it's Celiac. When I finally got sick enough Iwent the other way. Now I can't stop the big D! Good luck in your search for answers.

blondebombshell Collaborator
blondebombshell
Posted
  • Author
Hi. If you're getting itchy hives when you ingest gluten, that may be dermatitis herpetiformis, which is a skin manifestation of Celiac. A biopsy near the rash would be able to tell you. You can have Celiac without the intestinal damage. Have you had any blood tests? I would look into this further, and be persistant for answers. As far as constipation...I've had it for years...we always thought it was just a familial trait, as most of my family suffers with it. Turns out for me, at least, it's Celiac. When I finally got sick enough Iwent the other way. Now I can't stop the big D! Good luck in your search for answers.

i feel like these doctors suck! (sorry but they do!)

my GI did an edoscopy which came back negative for celiac. he said my intestines look 'fine' and that it must be something else like an allergy causing hives.

so i went to an allergist - came back i was allergic to melons, apples, egg and thats it! not wheat! that came up in a blood test. (eggs and wheat). i was glutened *i think* by eating a rice krispie treat and a bag of jellly beans and i have hives all over my legs.

rick-spiff Rookie
rick-spiff
Posted
my whooole life i have had issues with going to the bathroom. i probably go once a week. my diet is relatively clean (veggies, fruits, etc) so i dont know why.

Sounds just like me.

My hormone levels are off, allergy tests haven't come back yet, but what my dr did (she's a naturepath) was put me on magnesium to help me go to the bathroom regularly. I had to take stool softener so I didn't get all crampy at first, but speaking from experience, it's real hard on your body keeping in those toxins for a week. I am doing much better now!

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    2. NanceK
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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
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