Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What About Millet?


u396

Recommended Posts

u396 Newbie

My husband is a celiac newly diagnosed by endoscopy etc. We are in FL for 3 months and can't seem to find any bread products that don't contain millet. We've been to 2 health food stores and they say these are okay. In MA I was able to get french rolls, bread, doughnuts etc. made from rice flour. With those products he has been symptom free. What about mail order ofr bread.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

About Millet. . .as far as I know it's "see how you do with it." Some people don't react well to it and others are fine with eating it. I personally don't eat it.

A great company to mail-order from is Kinnikinnick. They have the best tasting products. I used to mail-order their products until a local store here startd carrying them. If you like them try and get your stores to order them.

Open Original Shared Link

They are Canadian but ship to the states (I am in Georgia). There are 3 Celiacs in my family and we all reccomend their products. I eat the english muffins everyday.

lovegrov Collaborator

Millet itself is OK but stay far away from Deland millet bread (which I think is made and sold in Florida). It's been tested more than once and has had tons of wheat.

richard

hopeful Newbie

I ask myself the same question at every meal, "what about _____?" I don't eat millet because it's not allowed in the specific carbohydrate diet I follow. This diet is more restrictive than gluten-free. The reason it's more restrictive is because wheat gluten may not be the sole root cause of celiac disease. The sinister thing about celiac disease is that the foods which are the underlying culprits may not generate any symptoms for a long time. ie., you can be symptom-free for a long while, but your diet is creating inbalances of bacteria, toxins, etc. that lead to allergic reactions with other foods. For instance, I ate lots of wheat bread for years and had no problems with it. But all the while, I was becoming progressively more allergic to more and more kinds of other foods. When I went on the SCD, many of these allergies disappeared. For instance, after several weeks, I was able to eat lean, high quality steak. Before going on the SCD, one bite and I'd be agonizing in the bathroom within minutes. Amazing! And by the way, everybody's allergies are different. The question is, what foods are causing the allergies? Again, you can be tolerant of something that makes you allergic to something else. That's what's so sinister about celiac disease.

The specific carbohydrate diet is well-balanced and healthy. So why not do it instead of just gluten-free? It seems to me that you're more likely to improve with the SCD, although it's harder to follow. For more information, read "Breaking the Vicious Cyle: Intestinal Health Through Diet" by Elaine Gottschall. In it, she has a section called "The Celiac Story" where she chronicals the gluten-free diet. Essentially, she argues that the gluten-free diet is the typical doctor's hammer, for which everything looks like a nail. Relapses are "all-too-common," she says.

I'd love to eat millet. But because it's not allowed in the SCD, I believe, in the long run, it would push me further down instead of building me up. The reason it's not allowed is very logical. Not enough space to explain here. Read the book.

IrishGirl71 Rookie

I've been eating the millet bread made by "Food For Life" and so far so good.

I had tried some of their rice flour breads, but I found they didn't toast well, and the millet really does (for me).

Good luck!

DrLeonard Newbie

Hi

None of the store-sold bread in Florida is gluten-free---in fact, the Whole Foods where I shop now has a huge sign saying this about millet bread sold in Florida. There might be small bakeries around that make gluten-free bread but in four years, I've not found anything.

I'm one of those celiac's who can't eat millet; three tries, three trips to the ER. My physician says that I just happen to be allergic to it. My advice is that if you're going to try it, start very very small. It takes about six hours before eating millet until I get sick and then I'm violently ill (to the point of hallucinating) for a day or more. So small doses might be the way to go.

tarnalberry Community Regular

Millet itself is gluten-free, but there are a NUMBER of breads made with millet (many which say wheat free) which are not GLUTEN free. Be careful reading the labels.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Maggie1956 Rookie
I've been eating the millet bread made by "Food For Life" and so far so good.

I had tried some of their rice flour breads, but I found they didn't toast well, and the millet really does (for me).

Good luck!

:D I saw a Food For Life store here in Queensland, Australia last week as we were driving by, after buying groceries (always the way isn't it?)

I'm so excited to find a good gluten-free store that may be ok for us lot...celiacs. ;)

I'll have to go and have a look in there next time. It's not always easy to find a large variety gluten-free foods here.

Thanks for the tip.

jboom Newbie

I tried the gluten free millet bread. Thought I found the new answer to sandwitches. The first time I ate it no problems, the second time I tried it I got violently ill (within and hour). It affected me differently than gluten though. It caused me to vomit violently, something I haven't done in years.

Tabitha Newbie
A great company to mail-order from is Kinnikinnick. They have the best tasting products. I used to mail-order their products until a local store here startd carrying them.

I'd love to try them. What is the store?

Thanks!

Racheleona Apprentice

I work at a health food store, and I read the ingredients on the food for life millet bread, and it has Rye flour as one of the ingredients...

terri Contributor

I've had millet in it's natural form, not in bread. I made stuffed peppers with it and tonight used it in place of barley when I made split pea soup. I've never tried the bread, but the millet itself used as I have used it, is great and my ultra sensitive self has had nothing but a quiet tummy. :D

mela14 Enthusiast

I haven't had millet in a while and don't remember if I was ok with it or not. So many things were going on at the same time. I was also using quinoa but remember that something started to make me sick so I stopped both. a few months I started using quinoa again but started to feel sick afterwards so that's I took that off the list.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mmoc replied to Mmoc's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Blood tests low iGA 4 years later digestive issues

    2. - Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Gluten free nuts

    3. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748

    LizzieE
    Newest Member
    LizzieE
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
    • Aretaeus Cappadocia
      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.