Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Saw The Gastro Yesterday

Nic

Recommended Posts

Nic Collaborator
Nic
Posted

Hi, as some may know I have been on a quest for a cause to my youngest son's medical problems (older son is a Celiac). His symptoms are insomnia, weight gain, constipation, frequent stomach aches, leg pains, and heart burn. I took him to see the gastro that diagnosed my other son. I told him that our pediatrician tested him for the antibodies 2 years ago and it was negative. I also told him how I had him genetically tested through Enterolab and he was negative for the gene. He had never heard of Enterolab (no surprise) and went on the say that if he tested negative on bloodwork 2 years ago then that is good enough for now, no reason to check again. Went on to say that since he is overweight it is even less likely because most celiacs are underweight (yet when I brought my other son there he was 4 and 45 pounds, hardly underweight). He said Lucas' story is strange <_< , and that the constipation might just be simply constipation so he will treat it as such. Gluten intolerance, even though I suggested it, seemed to not even be a consideration. He said he is concerned about the heart burn as children who are overweight with hypotonia (poor muscle tone, he has had it since infancy) tend to have acid reflux and he suggested he scope his esophogus to make sure there is no damage and to help determine if they should treat it. He also said while he is doing the scope he will go down farther and biopsy for celiac. Is scoping for acid reflux a normal procedure? I was surprise by this. I have always liked this doctor and had a lot of faith in him but now I just feel more confused then when I went into the office. What do you think?

Nicole

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cruelshoes Enthusiast
cruelshoes
Posted
Is scoping for acid reflux a normal procedure? I was surprise by this. I have always liked this doctor and had a lot of faith in him but now I just feel more confused then when I went into the office. What do you think?

Nicole

From my experience, scoping for reflux is a very normal procedure. Reflux can have many causes (celiac being one of them). For example, the scope allows the doctor to check the condition of the sphincter muscle between the esophagus and stomach. Sometimes, if this muscle doesn't close all the way, acid leaks out and reflux results. They also do it to look at the level of damage that has resulted from the reflux to help strategize a treatment.

Hope this helps. I am really sorry your son is having such trouble. :(

Darn210 Enthusiast
Darn210
Posted

My daughter was scoped for acid reflux. My pedGI initially thought she had Eosinophilic Esophagitis which requires a biopsy of the esophagus to diagnose. It can also occur in the stomach and small intestine (also requiring biopsy). It is a form of an allergic response where the main symptom is heartburn/acid reflux. If he's scoping, I would have him checked for that while he's there. They did want to see the level of damage also.

I have to ask, since you've already got one Celiac in the house . . . have you tried a trial diet to see if it aleviates the symptoms? We did that with our son (with the pedGI's support) in order to avoid an endoscopy . . . however our GI wasn't really wanting to do an endoscopy as my son's only symptom is his small size.

Nic Collaborator
Nic
Posted
  • Author
My daughter was scoped for acid reflux. My pedGI initially thought she had Eosinophilic Esophagitis which requires a biopsy of the esophagus to diagnose. It can also occur in the stomach and small intestine (also requiring biopsy). It is a form of an allergic response where the main symptom is heartburn/acid reflux. If he's scoping, I would have him checked for that while he's there. They did want to see the level of damage also.

I have to ask, since you've already got one Celiac in the house . . . have you tried a trial diet to see if it aleviates the symptoms? We did that with our son (with the pedGI's support) in order to avoid an endoscopy . . . however our GI wasn't really wanting to do an endoscopy as my son's only symptom is his small size.

I have not done the trial yet, I was waiting to see the doctor first. He said he would biopsy for celiac while in there so I don't want to take him off until then. If it comes out negative I will do the trial. Thank you for the help.

Nicole

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,003
    • Most Online (within 30 mins)
      7,748
    JoEllen Ball
    Newest Member
    JoEllen Ball
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Wheatwacked
      Chances of being coeliac

      By Wheatwacked · Posted

      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Celiac getting dentures

      By captaincrab55 · Posted

      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Aretaeus Cappadocia · Posted

      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      Celiac getting dentures

      By Martha Mitchell · Posted

      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      Chances of being coeliac

      By trents · Posted

      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.