Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Philly Mtg At Abington Hospital


JustCan

Recommended Posts

JustCan Explorer

Anyone have any details on the meeting this month at Abington Hospital? I ran into the president of the support group at Bunn's in Southampton (they had a gluten-free tasting event last week) but I didn't catch the date or time. Also, is there a fee to join the group or can anyone attend the meetings? I did come across the website for this support group but it's seemed outdated and didn't provide much info. Thanks!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylarker Newbie

I'm in Philly, too, new to this, and I'm curious to know about a support group, too.

Thanks.

Judyin Philly Enthusiast

I'm interested too

I'll see what i can find out

they only meet a couple times a year but usually had alot of venders there...........if it's like the old meetings

judy

ok just found this on google. Since March 21 is a Friday i assume this is correct.

Mar. 21 - Abington, PA - 7:00 to 9:00 pm

Celiac Disease: Symptoms, Nutritional Deficiencies and How to Achieve Wellness on a Gluten-Free Diet

Greater Philadelphia Celiac Support Group

Abington Hospital

1200 Old York Road

Abington, PA

Open Original Shared Link

No entry fee.

Contact: Karen Dalrymple, 215-757-1233

----------my question..........do you have to be a member with paid dues to attend. Anyone know?

ok just sent a email to the contact on the web site

will post if i get a reply

judy

Judyin Philly Enthusiast

your right the old forum isn't updated

got this note back from a member so i'll post what i learned.

____________________________

Hi Judy

You need to contact Karen Dalrymple, Co President, 215-757-1233. At the present she does not have email.

Doors open at 5:45PM to enable you to see vendors and speak with other members. Meeting starts at 7:30PM. Karen can give you the details on membership.

I am no longer able to be active in the support group. My dear wife, who was President for 23 years went home to be with her Lord four years ago.

There is an old web site which should be taken down so I suspect you may have found that.

Best Ed

JustCan Explorer

Thanks Judy! I called Karen Dalrymple but her answering machine says to call someone named Donna. Tried that but she wasn't available. Then I called Abington Hospital's education center that lists the support group on their website but they didn't know anything either - told me to call Karen which I already did. So, I may just go over to Abington Hospital on the 21st and see if I can find it (I'm only about 5 minutes from the hospital anyway).

Judyin Philly Enthusiast

That's strange that Abblington didn't have a record of it.

Please post if you go.

From others, i've heard it's a really good event.

lots of free food.

good luck

judy

  • 2 weeks later...
JustCan Explorer

Finally found the info about the Philly Support Group meeting tonight:

Category Support Group

Topic Celiac Sprue (Gluten Intolerance) Support Group

Facility Abington Memorial Hospital

Location Lenfest Pavilion, Frobese Conference Center: Frobese Auditorium, rooms P & G and rooms 1 & 2

Start Date 03/21/2008

End Date 03/21/2008

Start Time No Start Time

End Time No End Time

Description This self-help group is for individuals who cannot digest the gluten of some grain foods. Information, a newsletter and support in following a gluten-free diet are available.

This group will meet at 5:45 p.m.

Fee Comment Free

Contact Information Donna Sawka, (215) 943-2028


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JustCan Explorer

Just wanted to post that I went to this support group meeting tonight. I had to pay $25 to join the group but it was well worth it. They had several food vendors there so we could try all their different items - lots of yummy cakes, breads, etc. There was also a really interesting author who did a presentation about celiac disease and vitamin deficiencies. The next meeting is the third Friday in October.

Judyin Philly Enthusiast
Just wanted to post that I went to this support group meeting tonight. I had to pay $25 to join the group but it was well worth it. They had several food vendors there so we could try all their different items - lots of yummy cakes, breads, etc. There was also a really interesting author who did a presentation about celiac disease and vitamin deficiencies. The next meeting is the third Friday in October.

Thanks so much for this email

I'm so glad you had a good time and benefited from attending.

Do you remember who the author was or a few of his bits of info?

About how many were there.

Thanks again.

Judy

JustCan Explorer

Hi Judy...here's the info on the author...

Cleo Libonati, RN, BSN, co-founder of Glutenfreeworks.com, and author of

Judyin Philly Enthusiast

thanks so much for the info

do you think you'll go to the Oct meeting?

Judy

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,199
    • Most Online (within 30 mins)
      7,748

    Stacy M
    Newest Member
    Stacy M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...