Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Want My Mother To Get Tested


SweetAmber32

Recommended Posts

SweetAmber32 Apprentice

Since learning that I am GI, I have been trying to learn as much as I can on on this illness, reading about others symptoms and symptoms listed in books, and throughout the internet. I now feel that my Mother needs to be tested. She is a Diabetic type 2 (found out a few months ago), has Diverticulosis, osteoporosis, arthritis, she just had eye surgery to remove cataracts from both eyes and the eye Doc informed her that she has the beginnings of Glycoma, Macular Degeneration. But this issues are not all of what makes me believe she needs to be tested. My family moved to Oregon two years ago this month. Within of 3-5 weeks of being here, she was rushed to the hospital. She nearly died. Apparantly before we left Virginia, my mother had started a MAJOR infection. She develped thrush, had TIA's (mini-strokes), balance problems, memory problems, and excessive weight loss. This was all thought to be from her mini-strokes and just her not eating (with the weight loss). And to be blunt she was, on the trip to Oregon, quite "Evil" in additude and behavior. Since my dad drove the moving truck I drove Mother. What a nightmare. In Idaho, I had wanted to throw her out of the car, over a bridge into a huge gorge. :P When she entered the hospital, we learned why she had changed so much. Her right lung collasped, her kidney and liver on the right shut down and her whole chest cavity including abdomen was filled with puss. She had numerous speicalists. No one could discover the problem. They thought it all may have been contributed to her diverticulosis. But tests showed nothing. And only one petri dish only grew an anerobe. Luckily she survived and her two organs started working again. She took a long time to heal, seemingly, physically. But now with the recent diagnosis of Diabetes, Doctors think may have come from her illness. But through this all, now, she can stuff her face, and no weight is put on. She's actually lost weight. She looks like someone, and I'm not making light, from a concentration camp. She is emaciated. She does not feel good ( she does do blood sugar checks, 2x a day), she hurts all over. Her balance is bad. She is exausted. Plus she suffers from depression (this runs in the family). She suffers from contipation. She has a lot of other problems, the list could go on. And she is seeing her kidney Doc and her GP this month and she wants me to go in with her to discuss Celiac Disease. She believes there should be no problems with their agreeing with testing. Especially with me as GI and I believe even two of my other sisters are either Celiac or GI. Has anyone ever heard of infections like my mothers, that nearly killed her, in those with Celiac? Thanks for listening to me. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,151
    • Most Online (within 30 mins)
      7,748

    lexiadams
    Newest Member
    lexiadams
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • mermaidluver22
      @Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
    • nanny marley
      Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who  told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle , but the colonoscopy itself , they advised me to seek something different ,due to the position I had to be in and the movements , so I will update Wen I know more , thankyou for asking appreciated 🤗
    • Scott Adams
      It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if...
    • mermaidluver22
      hi, how are u now? any answers?
    • mermaidluver22
      I have biopsy-confirmed celiac disease and have been strictly gluten-free, but my tTG-IgA is still elevated, so I know I'm still healing. I recently had a capsule endoscopy that showed small erosions and inflammation only in the distal ileum — nothing in the upper small intestine. My GI isn’t calling it Crohn’s yet because biopsies showed only mild, non-specific inflammation with no chronic features. Has anyone experienced celiac impacting their ileum as well? the gi world is so confusing! thank u ❤️ 
×
×
  • Create New...