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Toughing Out The Gluten Challenge

cdog7

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cdog7 Contributor
cdog7
Posted

So I'm still on a gluten diet so I can get the biopsy done, hopefully with near-accurate results if I'm lucky! This is just the pits. Hopefully it won't be much longer, but who knows

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happypoole Newbie
happypoole
Posted

I tried to go back on the wheat for the same reason, but gave up yesterday after a week and a half. I had forgotten how tired I felt from it! and found even more syptoms that i hadn't put down to wheat before. Good luck with it!

Rennie Deflatine might help, it eases things for me a bit.

alison24060 Newbie
alison24060
Posted

What is enterolab test? I haven't heard about that.

nb-canada Apprentice
nb-canada
Posted
So I'm still on a gluten diet so I can get the biopsy done, hopefully with near-accurate results if I'm lucky! This is just the pits. Hopefully it won't be much longer, but who knows
ravenwoodglass Mentor
ravenwoodglass
Posted

Posts like these make me so sad. If folks have been gluten free for a time and seen improvement and then when they add gluten back in they get sick, that is diagnostic. Whether your villi are totally destroyed or not, and that is what they are trying to do in the challenge, you know your bodies are reacting. Whether you are a full blown, close to death, villi destroyed technical 'celiac' is really immaterial IMHO. Some GI's will cancel the endo and diagnose on the dietary response to the challenge. Please be sure to let your doctors know in detail about your reactions.

Wonka Apprentice
Wonka
Posted
Posts like these make me so sad. If folks have been gluten free for a time and seen improvement and then when they add gluten back in they get sick, that is diagnostic. Whether your villi are totally destroyed or not, and that is what they are trying to do in the challenge, you know your bodies are reacting. Whether you are a full blown, close to death, villi destroyed technical 'celiac' is really immaterial IMHO. Some GI's will cancel the endo and diagnose on the dietary response to the challenge. Please be sure to let your doctors know in detail about your reactions.

I find it frustrating as well. My GI has told me that he doesn't think that I have celiac because the blood test was negative (I have IgA deficiency and it's an IgA test) and my biopsy was negative (I didn't know he had done a biopsy over a year ago until last wednesday - I had been gluten free for 3 years at the time of the biopsy - the endoscopy was for looking at damage due to GERD). I told him the list of symptoms that occurred when on gluten and how well I feel when I'm off gluten and was told I didn't fit the criteria for classic celiac (I get constipated more frequently than I get diarrhea). The two of us seemed to be inhabiting a completely different planet.

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    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      how much gluten do I need to eat before blood tests?

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