Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Head Twitches


Mr. Peppa

Recommended Posts

Mr. Peppa Newbie

Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ktkmanager Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

ktkmanager Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

ktkmanager Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

ktkmanager Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

Mr. Peppa Newbie

Whats up with all the quotes... they dont really help me :huh:

Lemonsieur Newbie

If indeed the smoking is causing it, it can take a while before it is completely out your system, and the side effect goes away.

Medications could possibly be the culprit as well. The asthma inhaler albuterol would give me the same head twitch only it would jerk to the left side. It would also give me shaky hands, roaming muscle spasms, and nightmares.

After I stopped taking albuterol it took a couple of months for all the symptoms to subside.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Are you gluten free? If so how long? Do you have any neurological involvement? Things like balance issues, pins and needles sensations in hands and feet, depression and anxiety or migraines? One thing you should for sure do is get a sublingual B12 supplement, gluten-free of course. One with magnesium is going to be the best. Also take a good gluten-free daily multiple. Are you being seen by a neurologist? If your doctor has not given you a referral ask for one. Also make sure you check the gluten statis of any meds you are on, OTC and script.

Mr. Peppa Newbie
Are you gluten free? If so how long? Do you have any neurological involvement? Things like balance issues, pins and needles sensations in hands and feet, depression and anxiety or migraines? One thing you should for sure do is get a sublingual B12 supplement, gluten-free of course. One with magnesium is going to be the best. Also take a good gluten-free daily multiple. Are you being seen by a neurologist? If your doctor has not given you a referral ask for one. Also make sure you check the gluten statis of any meds you are on, OTC and script.

I am not really sure if i am gluten free; although i tend to avoid things with gluten but i dont always notice if i do intake gluten-free food items. I never had any really neurological problems before. I have noticed that i have had signs of depression, anxiety, and some minor headaches. I cant stand perfectly still, i tend to sway a little but its not noticeable. - I think its cause my head moves forwards and backwards thats what causes my body to sway. The meds i take currently are gluten free, and i am not seeing a neurologist. Although, how would the B12 supplement help. - The supplements i currently take contain 113mg of Magnesium and 75mcg of B12. But i take a huge amount daily of vitamin b6 should i switch to something else?

---

I am pretty sure that smoking is the cause as be4 i started to smoke this never happened, although when i was smoking. It would only happen when i was 'High', when i woke up the next day, or later on in the day it would pass. When i found out i was twitching, i couldn't stop twitching even when i didn't smoke; so i stopped smoking completely AND it still continues.

ravenwoodglass Mentor
I am not really sure if i am gluten free; although i tend to avoid things with gluten but i dont always notice if i do intake gluten-free food items. I never had any really neurological problems before. I have noticed that i have had signs of depression, anxiety, and some minor headaches. I cant stand perfectly still, i tend to sway a little but its not noticeable. - I think its cause my head moves forwards and backwards thats what causes my body to sway. The meds i take currently are gluten free, and i am not seeing a neurologist. Although, how would the B12 supplement help. - The supplements i currently take contain 113mg of Magnesium and 75mcg of B12. But i take a huge amount daily of vitamin b6 should i switch to something else?

---

I am pretty sure that smoking is the cause as be4 i started to smoke this never happened, although when i was smoking. It would only happen when i was 'High', when i woke up the next day, or later on in the day it would pass. When i found out i was twitching, i couldn't stop twitching even when i didn't smoke; so i stopped smoking completely AND it still continues.

I find your comment about swaying very telling. I did this for years before I was diagnosed and it stopped within a couple of months gluten free, as did the tapping foot (I can't do the fast tap even if I try now but was never completely still since I was a child). I think you should make real sure you are gluten free for a while, I would go six months since neuro problems can take longer to resolve. The reason why I suggested a sublingual B12 is because your body may not be able to absorb and utilize it when it goes into the stomach. The sublingual is absorbed by the mucous membranes in the mouth and goes right into the bloodstream there bypassing the gut. B12 is needed for proper nerve function. It helps the nerves fire and pick up the way they are supposed to. Misfires can cause the sort of thing you are experiencing and they can be progressive.

As to the idea that smoking pot did this, it is highly unlikey. I have done a lot of study over the years on the effects of drugs, I taught a drug, alcohol and sex education and prevention program and have also done a great deal of research. I have never heard of an effect like that from pot. However many of the rolling papers that are used to smoke it have gluten. Gluten is another molecule that is absorbed by mucous membranes, when you smoke a joint you are absorbing the gluten the minute it touches your lips. If however what you are talking about smoking is crack or meth, well that is another story. Those could very well do damage to the nervous system that would result in the type of effect you are having. I don't think you were referring to those substances though.

The best thing you can do is to do a strict trial of the diet and at first you need to avoid gluten containing alcohols and vinagers. You can challenge them later when you are well but many with neuro symptoms are sensitive to them and for complete resolution of your symptoms you may need to avoid them also.

It also sounds like you started smoking suddenly, was there a reason for this? Were you under a lot of stress? Had you been ill? Did something happen that caused you to look for relief from the world? Celiac may be triggered by a severe emotional or physical stress. You simply may have triggered the celiac at about the same time.

Mr. Peppa Newbie

Well, i found out that i have been gluten free. Except as you said the rolling paper contains gluten - Although i didnt really smoke using papers for a couple months, then i went to the bong for the last few months i smoked. I didnt really start smoking suddenly, i just started to smoke a lot more . You said you taught about drugs and have stated that the drug couldn't be the source. When i started to use the bong i still wouldn't have this head problem when i wasnt under the influence. When i started noticing the problem, and quit i havent been able to stop. So could the gluten still be the source? Or can the drug influence my body in another way to make me do it? And i dont do any other drugs. I have been gluten free for a long time, until started using the spliffs- didnt know they had gluten in them. - is there enough gluten in them to affect me this way? I am going to get sublingual b12 supplements, as soon as i can.

Thanks for your help. You have been answering many of my problems, and its quite embarrassing to go places and have everyone watch you like a vulture.

Eric-C Enthusiast

Cut out the carbs and sugar.

I get neurological problems like that. Hands/arms shaking and its a combination of things.

Its an incredibly long story but basically if I get myself really screwed up with gluten the sugar/carbs go right into my blood stream, kind of like leaky gut.

I had it happen last week to me. Sugar free(by choice for weight loss) and I went and accidently ate a ton of gluten...followed by a lot of simple carbs and sugar which I usually do not have.

Woke up shaking and couldn't stop it. Hands, arms, muscles in the neck...

You can either wait for your insides to heal and you'll start absorbing it properly and it'll go away or cut that stuff out, wait for it to heal and slowly add it back in.

It takes a while to go away, like 4-5 days for me but if you keep eating the carbs/sugar it takes longer.

ravenwoodglass Mentor
Well, i found out that i have been gluten free. Except as you said the rolling paper contains gluten - Although i didnt really smoke using papers for a couple months, then i went to the bong for the last few months i smoked. I didnt really start smoking suddenly, i just started to smoke a lot more . You said you taught about drugs and have stated that the drug couldn't be the source. When i started to use the bong i still wouldn't have this head problem when i wasnt under the influence. When i started noticing the problem, and quit i havent been able to stop. So could the gluten still be the source? Or can the drug influence my body in another way to make me do it? And i dont do any other drugs. I have been gluten free for a long time, until started using the spliffs- didnt know they had gluten in them. - is there enough gluten in them to affect me this way? I am going to get sublingual b12 supplements, as soon as i can.

Thanks for your help. You have been answering many of my problems, and its quite embarrassing to go places and have everyone watch you like a vulture.

Every body is different, as is every bag of combustable materials. It is hard to know for sure whether or not something has been added although it is not common to spike pot. If others you are smoking with are drinking beer or smoking cigs that can contaminate the bong or pipe, just like if your significant other is drinking a beer and you kiss.

Sometimes we just don't know what caused an excaberation, it can be hard to pinpoint. It is also possible that for you pot is neurotoxic to a greater extent than the regular population, I have never heard of an effect like that but it doesn't mean it can't occur. I would stay away from the herb and alcohol for a bit until you are yourself again.

Also you say you have been gluten-free for a long time, does this include your toiletries, shaving creams, soaps, shampoos, lotions etc? Are you consuming gluten free grain alcohols and vinegars? Many with neurotoxic effects from gluten are unable to tolerate those although a lot of places will call them gluten free.

As for the embarrasment, try standing in front of a class of 30 11 year old boys with a male teacher and discussing nocturnal emissions. The teacher was under the desk before I was halfway done. :lol:

Edit: I do want to add that if this continues you really should get a second opinion, preferably from a neurologist. The doctor that was blaming it on 'nerves' and medicated you with an psychotropic without looking for a physical cause did you a disservice.

VioletBlue Contributor

Yeah, well, here's the fun question. Pot can get cut with all sorts of things. Do you truly know what's in yours? It's not like it comes with an FDA approved ingredient list :P

Well, i found out that i have been gluten free. Except as you said the rolling paper contains gluten - Although i didnt really smoke using papers for a couple months, then i went to the bong for the last few months i smoked. I didnt really start smoking suddenly, i just started to smoke a lot more . You said you taught about drugs and have stated that the drug couldn't be the source. When i started to use the bong i still wouldn't have this head problem when i wasnt under the influence. When i started noticing the problem, and quit i havent been able to stop. So could the gluten still be the source? Or can the drug influence my body in another way to make me do it? And i dont do any other drugs. I have been gluten free for a long time, until started using the spliffs- didnt know they had gluten in them. - is there enough gluten in them to affect me this way? I am going to get sublingual b12 supplements, as soon as i can.

Thanks for your help. You have been answering many of my problems, and its quite embarrassing to go places and have everyone watch you like a vulture.

Mr. Peppa Newbie

so if it was spiked, and this is the after affect, does it take time to wear off?

fedora Enthusiast

I live in a area with a unusually high amount of pot smokers. I have seen teenagers, pregnant women, nursing women, adults and seniors smoking. I have heard, but never seen, of kids smoking here. I have never heard of anyone starting to bob or shake from pot. Some people do get amped up from it. It is more of an upper than a downer for some. No bobbing though.

It does take a month for pot to leave your system. Speaking form someone who use to smoke alot, but hasn't in years, it took longer than that for the total effect to be removed from my body. I can not smoke. I have an autoimmune reaction to pot, but I didn't use to when I was younger. I had a few events in my life cause a change in my body. Although it is unlikely the pot itself causes this, it could be. You may have developed a reaction to it that will stop when it eventually leaves your body.

I have never heard of pot being cut. What I have heard of is Mold and pesticides and fertilizers. Do you know where it came from? Pot can mold. When it does it discolors. You may not notice this if it was Brick. Is it from Mexico? They use heavy pesticides. Non organic growers will use chemical fertilizers and pesticides in the US too. You can't wash pot to cleanse them off.

I have heard of people smoking laced pot, but you would definately know. They had PCP trips for days afterwords. This was in the late 80s early 90s though.

I do hope this subsides for you. If not PLEASE see a neurologist. I wouldn't take your drs word for it. It could be totally unrelated to pot, but the High triggered it more. Now it has just showed itself on it's own.

  • 8 months later...
drakey Newbie

hiya i have the exactly the same problem i used to spoke weed about 2 years ago and my head one day just started to twitch and i could not stop it so i stopped weed and about a month after stoppin weed the twitchs stopped. but recently they have started up again and i have not smoked weed in a very long time i really have no idea why this is and its very anoying feel like i have got torrets or some thing it. so if you do find a reason for these twitchs please let me know ta

drakey Newbie
Well, for the past month i have noticed that my head twitches. It moves uncontrollably in a forward motion. My head moves quickly forward and backwards, it is really embarassing, and im not sure y. I have smoked pot before and it use to happen when i smoked pot but i didnt realize it. Now even when i don't smoke now it still happens. i haven't smoked in about 2 weeks. I went to see a doctor for a check up and he said that i was completely fine. Recently, i have noticed that sometimes my muscles in my legs cramp up, and start to twitch - but thats once a day. My Head moves in a forward motion ALL THE TIME! Its like im a Bobble Head toy... Any Help?

I am on some 'Stress relieving pills' because my doctor said it might be because im stressed but its been about 2 weeks with no results.

hiya i have the exactly the same problem i used to spoke weed about 2 years ago and my head one day just started to twitch i could not stop it so i stopped weed and about a month after stoppin the twitchs stopped. but recently they have started up again and i have not spoked week in a very long time i really have no idea why this is and its very anoying feel like i have got torrets or some thing it. so if you do find a reason for these twitchs please let me know ta

ravenwoodglass Mentor
hiya i have the exactly the same problem i used to spoke weed about 2 years ago and my head one day just started to twitch i could not stop it so i stopped weed and about a month after stoppin the twitchs stopped. but recently they have started up again and i have not spoked week in a very long time i really have no idea why this is and its very anoying feel like i have got torrets or some thing it. so if you do find a reason for these twitchs please let me know ta

You need to see your doctor and most likley a neurologist. This could be caused by a number of things including reactions to some meds. If you are on any prescription meds make sure you let you doctor know this is happening ASAP.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

    2. - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

    3. - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

    4. - Tanisha L commented on Scott Adams's article in Kids and Celiac Disease
      1

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    5. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      7

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,997
    • Most Online (within 30 mins)
      7,748

    IwannabHealthy
    Newest Member
    IwannabHealthy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.