Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Know This Might Be Asking A Lot But...


Guest LittleMissAllergy

Recommended Posts

Guest LittleMissAllergy

I just went to my doctor a few days ago because I was feeling terrible again, and it turns out that I've developed more food sensitivities due to some new bacteria and heavy metals that I've picked up. While we're addressing those issues, I have to stick to a really restricted diet just so I can feel okay to function, but at the same time I have to keep trying to gain weight because I've been sooo underweight for about two years now. This is QUITE difficult with all of the restrictions, especially since I can't digest or metabolize fat. So if I list all of the things I'm sensitive to...do you think any of you could maybe share some ideas on things that I could perhaps do for meals/snacks? They don't have to be high calorie...it just has to be food!

Here's what I can't have:

Gluten

Dairy

High fat foods (especially oil)

A lot of the nuts (Cashews and peanuts and Macadamia nuts especially)

High fat fish or fish high in mercury

Meat and Poultry

Bananas

Cantaloupe

Grapes

Grapefruit

Mango

Lemon

Lime

Strawberries

Chocolate

Cinnamon

Sugar (any kind except fructose, which I can have in moderation)

Honey

Carob

Molasses

Corn

Eggplant

Mushrooms

Onions

Oregano

Black Pepepr

Red and green peppers

White Potatoes (Sweet potatoes and yams are ok)

Spinach

Apple Cider Vinegar

Bakers Yeast

ANY products that you use that you don't see on the list would be welcomed with great joy!! :)

My staples are beans, veggies, brown rice hot cereal, a few fruits and sweet potatoes. I'm having trouble flavoring my food though now because I used to use salsa and tomato sauce in my beans dishes (I eat two bean dishes a day) but now I can't have sugar, onions, oregano or black pepper so that really takes away all of my options for flavor. That's the major issue I'm dealing with right now, so I welcome any suggestions :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



itchygirl Newbie

If you can't digest fat, why don't they have you on digestive enzymes-naturopaths are usually better about prescribing digestive enzymes than the mainstream morons, I mean doctors <_<

If you literally can't metabolize fat, then a good alternative practioner should have discussed MCT oil, which does not require digestion to be absorbed. This comes in both pharmacutical and various "natural" preparations...

Open Original Shared Link

If your doctor, whatever their affilation is not actively working to help you get better, and is advising a lot of dietary restrictions without helping you with alternatives, maybe its time to find a new doctor? :(

Guest LittleMissAllergy
If you can't digest fat, why don't they have you on digestive enzymes-naturopaths are usually better about prescribing digestive enzymes than the mainstream morons, I mean doctors <_<

If you literally can't metabolize fat, then a good alternative practioner should have discussed MCT oil, which does not require digestion to be absorbed. This comes in both pharmacutical and various "natural" preparations...

Open Original Shared Link

If your doctor, whatever their affilation is not actively working to help you get better, and is advising a lot of dietary restrictions without helping you with alternatives, maybe its time to find a new doctor? :(

Actually, I've just begun working with a naturopath, and she's wonderful :) Those mainstream quacks couldn't figure out what the heck was going on. We're actually working on the bacteria and metals, which in theory will fix the epic list of food sensitivities, but in the meantime I'm hypersensitive and have to stick to this. I've never heard of MCT oil, but I'll look it up, thanks for the suggestion! My naturopath actually suggested coconut water because it's easier to digest and it just has trace amounts of fat, to start off with. That'd be amazing if I could eventually tolerate it along with coconut oil or milk, because that'd be a great addition for flavor (and calories), but I have to start off REALLY slow.

ChicoYaYa Newbie

I did not notice almonds or rice on that list, so I am wondering if almond milk or rice milk would be OK? Otherwise, use coconut milk for the basis of a smoothie for breakfast.

I know you can't have bananas, but I didn't see blueberries on the list. You can usually find frozen blueberries all year round, and with some flax seed and chia seed, that could make a good and filling breakfast.

Unfortunately, spinach and mushrooms are on your list, otherwise I would suggest some kind of omelet made with those. But if yellow or purple potatoes are OK, you could make a "fritatta".

If you visit Open Original Shared Link, she gives information about making green smoothies. I have tried them a few times and they are not bad at all!

itchygirl Newbie
Actually, I've just begun working with a naturopath, and she's wonderful :) Those mainstream quacks couldn't figure out what the heck was going on.

Sorry, I misread your first post and thought you'd been working with this doc for two years already. One of my dear friends is a naturopath and she generally has folks sorted out inside of six weeks :) . Coconut water is an excellent choice.

Squash, water chestnuts, artichoke, pumpkin, pumpkin seeds, hydrolized amino drinks (hypoallergenic sources of protein, such as Neocate baby formula-all the proteins are completely broken down and totally non allergic) Neocate and blueberry smoothie? :D

If you're reacting to everything, have you looked into Mastocytosis. That it my favorite unknown disease

Open Original Shared Link

Docs always miss that one.... :(

Green12 Enthusiast

What about turnips, parsnips, rutabagas, carrots, squashes (winter like acorn, spagetti, butternut or summer crookneck)?? Peas, split peas, lentils??

Can you have cranberries? If so you could make smoothies with pure unsweetened cranberry juice, your allowed fruits, and if you can find pure rice protein powder, or pure egg protein powder (I didn't notice eggs on your list?), stevia or agave syrup to sweeten a little.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,470
    • Most Online (within 30 mins)
      7,748

    Elkay008
    Newest Member
    Elkay008
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.