Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had Blood Tests Today

chb

Recommended Posts

chb Rookie
chb
Posted

Hi,

I'm new to the forum. I turned 38 this year and have felt like I've been falling apart. The constant fatigue has been worse and my migraines that started a couple of years ago have turned into this daily bouts of flashing lights and mental dullness or brain fog. Of course the neurologist's solution was to take medicine for it--doesn't help.

I came across some info for celiac's quite accidentaly. I had no knowledge that it was an autoimmune disease. I just thought it had something to do with digestive stuff. I have also suffered in the past from unexplained rashes that last a month or two when they come on. On top of that, my DH and I have been married for 15 yrs and only have one 8 year old little blessing even though we have done our part to have more.

I tried a gluten free trial for a week and a half and felt so much better! I knew I had to start eating it again and get an appointment for a diagnosis, before I really felt so much better that I wouldn't even consider going back for a short time.

I went to see my doctor today. He didn't seem to know a lot about Celiac. Didn't seem to like the fact that I didn't have any digestive symptoms. We go to Kaiser Permanente and I really was just expecting a referral to a GI. He did listen well though and ordered the following blood work. No referral yet.

They drew blood for a celiac diesease antibody panel, CBC, Basic Metabolic Panel, Hepatic Function Panel, Amylase, Lipase, Thyroid Stimulating Hormone, and Vitamin b12.

He said he had only ordered one other antibody panel before and didn't know how long it would take to get those results back. Does anybody have a clue as to how long I might anticipate it taking? Thanks !

Christine

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KristaleeJane Contributor
KristaleeJane
Posted
Hi,

I'm new to the forum. I turned 38 this year and have felt like I've been falling apart. The constant fatigue has been worse and my migraines that started a couple of years ago have turned into this daily bouts of flashing lights and mental dullness or brain fog. Of course the neurologist's solution was to take medicine for it--doesn't help.

I came across some info for celiac's quite accidentaly. I had no knowledge that it was an autoimmune disease. I just thought it had something to do with digestive stuff. I have also suffered in the past from unexplained rashes that last a month or two when they come on. On top of that, my DH and I have been married for 15 yrs and only have one 8 year old little blessing even though we have done our part to have more.

I tried a gluten free trial for a week and a half and felt so much better! I knew I had to start eating it again and get an appointment for a diagnosis, before I really felt so much better that I wouldn't even consider going back for a short time.

I went to see my doctor today. He didn't seem to know a lot about Celiac. Didn't seem to like the fact that I didn't have any digestive symptoms. We go to Kaiser Permanente and I really was just expecting a referral to a GI. He did listen well though and ordered the following blood work. No referral yet.

They drew blood for a celiac diesease antibody panel, CBC, Basic Metabolic Panel, Hepatic Function Panel, Amylase, Lipase, Thyroid Stimulating Hormone, and Vitamin b12.

He said he had only ordered one other antibody panel before and didn't know how long it would take to get those results back. Does anybody have a clue as to how long I might anticipate it taking? Thanks !

Christine

Mine only took 2 days, I am in Canada though, not sure if that matters. Normal range for the antibody is 20, and mine was 92. Now waiting to see the doc for the biopsy. Good luck!

healthygirl Contributor
healthygirl
Posted

I am also in Canada and had the TTG IGA only done. It took 3 weeks, reference range being <4 negative, 4 - 10 weak positive, >10 positive. It is obvious we two Canadians had different panels run (various labs will use different panels and will have different reference ranges). You may want to follow up with your doctor or the lab and see what the length of time is expected to be for results. When you get the results, find out what the reference ranges are for each test and your results (a copy of your results is helpful as it usually indicates the reference ranges on it).

Make sure you stay on gluten if anticipating a biopsy as next step. I was off and on and have ended up at the point where I would need to go on gluten for 3 - 6 months (minimum 4 slices of bread a day) before the gi will perform the endoscopy. I decided to forgo the "official diagnosis" and am just off gluten now.

Good luck!

  • 2 weeks later...
KristaleeJane Contributor
KristaleeJane
Posted

I have the biopsy in one week, cannot wait to get that over and go gluten free. My doc never did any vitamin blood work on me, but I am going to ask her to because I have been so tired and a lot of headaches. The test that we had could have been the same but like you said maybe at different labs they run different ranges. I did get a copy of my test and It says:

(NEW) ANTI TISSURE TRANSGLUT AB (CELIAC SCREEN)

92 UNITS- NORMAL RANGE BEING 20 UNITS

PRESENCE OF IgA ANITBODY TO TISSUE TRANSGLUAMINASE SUGGESTS GLUTIN SENSITIVE DISEASE. SENSITIVITY SPECIFICITY FOR GLUTEN ENTEROPATHY ARE APPROXIMATELY 95%.

So that pretty much explains it, but my doc wants to do the biopsy to confirm.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748
    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.