Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Member


goldshadow

Recommended Posts

goldshadow Rookie
:P:lol: i have to say yesterday i was home from work and i wrote to the forum. i am so happy that i did, this forum is just great for a mom of a celiac or gluten free young adult. i thought i as the mom was going to l it this was the second time in my life some one told me that my child had a chronic illness. I also have an iddm son who was diagosned at 13 yeaRS old and is now 31. my daughter is 29 and just found out she is a celiac. she use to tell me thank god it was not me with diabetes i could never handle it now she has to handle much more. this is hard on both my young adults but even harder for me. so now i have friends to talk to amd hope they do too. my son has never excepted his diabetes and has complications but he is to old and married for me to be there to tell him what to do. i tried but he does not listen. i love both my young adults and hope they will be fine. thank celiac forum for listening to me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MELINE Enthusiast

Lucky kids they have a caring mother. Be strong, celiac is not so so so bad. Everything will look much better in a few months. Once you get no gluten eveyrhing is back to normal (after a while). I have the same age with your daughter. Tell her not to worry, she is going to be just fine. Feel free to ask any questions.

Meline

Ivanna44 Apprentice
:P:lol: i have to say yesterday i was home from work and i wrote to the forum. i am so happy that i did, this forum is just great for a mom of a celiac or gluten free young adult. i thought i as the mom was going to l it this was the second time in my life some one told me that my child had a chronic illness. I also have an iddm son who was diagosned at 13 yeaRS old and is now 31. my daughter is 29 and just found out she is a celiac. she use to tell me thank god it was not me with diabetes i could never handle it now she has to handle much more. this is hard on both my young adults but even harder for me. so now i have friends to talk to amd hope they do too. my son has never excepted his diabetes and has complications but he is to old and married for me to be there to tell him what to do. i tried but he does not listen. i love both my young adults and hope they will be fine. thank celiac forum for listening to me.

Welcome again, goldshadow

Glad to see you are snooping around the site forums. There's even a search thing, where you can pose a question (think at bottom of each posting) and see if it has been potentially answered before. Your children (agree with Meline) are lucky to have a mom so supportitive. But, then again most mom's are.. its our job to be protective so on.

You will find a lot of support here, for yourself and for your daughter. Not to mention a venting ground, when things drive you a bit crazy (from other people's lack or willingness to obtain knowledge. Gluten/Wheat allergy is one the 7 big ones in terms of food allergies. Yet, the world does seem to pay attention more the peanut allergy one. However, even that one, took a long time of advocating for them. I'm sure one day; gluten allergies will be taken as seriously as the peanuts. :) in the meantime there are forums and local support programs in most major cities.

There are few books out there you may want to try: "The Gluten Free Diet by Shelley Case (dietician) and "More than Rice Cakes: A Young Person's guide to gluten free" I believe that the name of the 2nd book. It was written by a college stutdent, who found out she was celiac in her early 20s. Don't forget the public library too, to borrow a few copies.

And agrees with Meline, it will take a while a couple of months before she is completely gluten free. And its not that bad; I've just been at it a month. I still gluten myself a fair bit (not done intentionally) by simply passing my son one of many cookies :rolleyes: and forgetting to wash my hands :D . It does take practice and a lot of common sense. But, we do get there :D

hugs

  • 1 month later...
purple Community Regular

Hi Ivanna, I am new here too. My 19 year old daughter was diagnosed in Feb this year. What an adjustment. Here are some of the good things I see so far. We all eat too much junk and this Celiac stuff makes us choose wisely and eat healthier. We know what we eat b/c we have to read labels and what is in the food we eat and we have to make it from scratch. Less chemicals and preservatives. Less fat from eating fast food. I get to try new recipes that I didn't want to before. My other family members have symptoms and need to be checked now before they develop other diseases. We don't have to waste time, money, suffering b/c of knowing now why they have symptoms, so we can tell the doc what the problem is- no unnecessary surgeries, etc. We can help others from what we have learned. We make new friends and thru them we learn things we never could have before. We are not alone. We can pray for others, cry with them, hug them, share recipes/fears. We have become a family. We learn things fast on this forum that would have taken a life time without it. We are getting help. We are developing compassion. The Bible says to comfort others the way we have been comforted. We can do that! We can share personal things/feelings and others won't look down on us. Our new "family" understands. We are now getting healthier where as before we were getting worse and didn't know it. Praise God!

purple Community Regular

oops, sorry I am new, my message of encouragement was meant for Goldshadow. I feel the way you do. Things will get better, your kids have a loving mother!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      6

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    3. - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,477
    • Most Online (within 30 mins)
      7,748

    bwhntr1953
    Newest Member
    bwhntr1953
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.