Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When It Rains, It Pours....now 3 Year Old


kim26

Recommended Posts

kim26 Apprentice

hey everyone!

here's the deal, my 7 year old daughter was recently diagnosed w/ celiac....and she's doing great! I've gone on the diet with her and im feeling better as well after years of dealing with "IBS"..big surprise right lol!

so the issue now is my son..... since my daughter's initial tentative diagnosis 2 months ago I've been paying more attention to my son and watching for any symptoms, he shows no signs of celiac...he's healthy, energetic, eats well and definitely doesn't have any growing issues. HOWEVER, in the past month I've noticed some oddly colored stools. pale i guess you would say. (he's fully potty trained but i still wipe him when he poops).first they were like light yellow or pale brown color, now they are sometimes green and orange. and i truly cannot attribute it to anything he's been eating.. sometimes yogurt will turn his stool strange colors but he hasn't had any at all lately. I've read that this can sometimes mean that there is an issue with the bile and be indicitive of food moving through the system too fast, but he's having no diarrhea. ugh, im wondering if i should be concerned or consider testing him? he's only three, he'll be four on april 18th. thanks in advance for any advice or thoughts you can share!!~K


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ridgewalker Contributor

I'm so glad your daughter and yourself are doing well!!!

If you read the dates in my signature, you'll see that that's similar to how it happened with us too! Looking at the members on this forum, Celiac is apparently much more hereditary than doctors believe.

I'm not sure about your son, but I would urge you to remember that not all Celiacs get diarrhea. My 4 yr old never has had diarrhea from gluten so far, although his neuro symptoms are very... dramatic, shall we say? And he is more likely to have accidents when glutened.

Also keep in mind that symptoms can evolve. My older boy only had diarrhea sporadically before going gluten-free. Now if he gets glutened, he has severe diarrhea.

Have you looked over any symptom lists lately? Some symptoms common in children are:

-Diarrhea

-Constipation!!!

-Dark circles under eyes

-Overly emotional/temperamental

-Difficulty concentrating

-Symptoms similar to ADD, ADHD, and even Bipolar Disorder

-Fatigue, even when getting plenty of sleep

-Short stature, slow growth

-Skinny arms and legs with a pot belly

-Bedwetting, difficult to potty train

-Severe diaper rashes, mouth thrush

-Dental enamel problems, many cavities

These are just symptoms I know right off the top of my head, I'm sure there are others that I'm forgetting.

Also remember that testing in small children is not always accurate. False negatives are more common than is reported my doctors/scientists.

I hope some of this helps-- keep us updated!

kim26 Apprentice
I'm so glad your daughter and yourself are doing well!!!

If you read the dates in my signature, you'll see that that's similar to how it happened with us too! Looking at the members on this forum, Celiac is apparently much more hereditary than doctors believe.

I'm not sure about your son, but I would urge you to remember that not all Celiacs get diarrhea. My 4 yr old never has had diarrhea from gluten so far, although his neuro symptoms are very... dramatic, shall we say? And he is more likely to have accidents when glutened.

Also keep in mind that symptoms can evolve. My older boy only had diarrhea sporadically before going gluten-free. Now if he gets glutened, he has severe diarrhea.

Have you looked over any symptom lists lately? Some symptoms common in children are:

-Diarrhea

-Constipation!!!

-Dark circles under eyes

-Overly emotional/temperamental

-Difficulty concentrating

-Symptoms similar to ADD, ADHD, and even Bipolar Disorder

-Fatigue, even when getting plenty of sleep

-Short stature, slow growth

-Skinny arms and legs with a pot belly

-Bedwetting, difficult to potty train

-Severe diaper rashes, mouth thrush

-Dental enamel problems, many cavities

These are just symptoms I know right off the top of my head, I'm sure there are others that I'm forgetting.

Also remember that testing in small children is not always accurate. False negatives are more common than is reported my doctors/scientists.

I hope some of this helps-- keep us updated!

Ridgewalker,

Thank you for your quick reply ! I do know that celiac rears its ugly head in many different forms. in fact many of the improvements we've seen in our daughter are neuro! she is feeling better physically for sure, but emotionally she is an entirely different child! i always just thought she was clingy and over sensitive, she's not it was the gluten the whole time!

My son is not really clingy, but he is very particular about things...to put it very diplomatically lol! we always refer to him as being OCD. And he can turn his emotions on and off like a light switch, one minute his world is crashing down the next he's fine. i guess until recently i just assumed this was his personality, and it may very well be, but my daughter's diagnosis and huge turn around really makes me wonder. its a lot to think about! i appreciate your input!

taweavmo3 Enthusiast

I would definately keep a close eye on him, and consider testing at some point. My dd was dx'd first, then I noticed symptoms in my other children. However, my other children were not as obviously sick as my dd had been. The boys just had loose stools, but never diarrhea. They also displayed skin issues (eczema, then psoriasis) and behavioral issues. I had them both tested, which came out negative. I went ahead and tried the diet anyway, and all their symptoms improved. I don't really think they were full blown Celiac like my dd, but at the very least they are intolerant. I couldn't just sit by and wait for things to get bad. I figure they can make that choice when they are older....for now, I just want to keep them as healthy as possible.

Like you, I also went on the diet with my kids and felt much better. I too think that it may be more hereditary than doctors think, at least based on my family tree full of auto immune disorders, lol. Good luck with what you decide!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,901
    • Most Online (within 30 mins)
      7,748

    kharvey
    Newest Member
    kharvey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.