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Frustrated With Allergy Doc

Lukalovescats

By Lukalovescats
in Doctors

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Lukalovescats Rookie
Lukalovescats
Posted

Had my daughter at the allergy dr. today to get food testing done. She's had a mysterious rash on her privates for almost a year now. I was diagnosed with gluten intolerance in December and she was about a month ago. The rash still isn't clearing up, but hoping it will with the diet changes. We've tried several creams. The doctor said I should get her biopsied so I know for sure. Why put her through all this when she may not need to be. She kept going on about the social implications and how hard it is to eat gluten-free especially out. Just so frustrating how she was talking to me especially in front of my daughter. I felt like all the talking I have done with my daughter about how this is a good thing and look at all the things she can still eat, just went down the drain.

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HAK1031 Enthusiast
HAK1031
Posted

If you're talking about biopsying the rash (and not doing an endoscopy) then it's not a big deal to do. All the doctor really has to do is swab an NOT ACTIVE legion (I think they just swab, or it might be a prick, someone wiht better knowledge of DH can confirm that?)

Of course, if going off gluten makes your daughter feel better, go for it.

gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

My daughter had a rash that responded to nothing and came and went with no ryhme or reason. The combination of gluten-free & CF made all the difference. She gets a rash from trace amounts of dairy. So maybe that would do the trick?

Not sure of the age of your daughter and that might make a difference. But, I have learned to politely go head to head with the doctors and correct them when they are wrong. I am sure one day it will embarrass my kids, but it also proves that Drs are just people...not demi-gods. I have corrected them when they are wrong about Celiacs, argued about her symptoms and that they are not a non-issue, and insisted on testing. I have also made them explain their thoughts and reasoning for other tests and in the end, it is my child, I need to understand what they are doing and why and what my child will be going through. Yes, I do the same thing with my Drs. So in my opinion, you stand up for your child in every other situation, right? Same thing happens in the Drs office. No yelling and screaming. Just a lively debate to make sure issues are addressed and understood by all. Always be polite and respectful. And by all means, insist that they speak positively about Celiacs from the first negative mention!

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