Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Liitle Of Gluten Can Screw Me Up?


motif

Recommended Posts

motif Contributor

just wonder, it's almost impossible avoid completely gluten as I see it.

I just got worse after one dinner out and then eating turkey franks which contained starch.

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

As I see it, I can think what I want but my immune system knows better and can't be fooled. It's so tempting sometimes to say "aw, it's probably fine". I have reacted to something that was tested to contain less than 5 parts per million, which seems like so little.

The experiences that I've had in life lead me to think that it is very possible and relatively simple to avoid gluten completely but whether or not we want to travel that road is a different story. It's all about choices.

I had gestational diabetes and chose to regulate it by diet without insulin. I took the charts of foods and portions allowed and started over from scratch as if no other foods existed in the world and said OK this says I can have 1 Lender's bagel, 1 slice of non-fat cheese , etc. etc. what can I make with this. It was not fun but it was 100% successful in accomplishing the goal of maintaining mine and my baby's health by keeping my blood sugar under control.

We can take the same approach to the gluten-free diet and some do. We know that fruits, veg. meats and many other things that nature has provided are gluten-free. The safest approach is to stick with these things and maybe add in gluten-free products that are processed in dedicated facilities by companies that are dedicated to gluten-free.

If we are going to use products or let others prepare our foods it is best to not put anything in our mouths unless we are absolutely sure it is gluten-free, otherwise we take the risk of getting sick.

I'm not making light of the struggles that we all have, just offering another perspective.

Keep coming back to learn and ask questions. And we can help you out with the hot dogs and dining out. It is a continual learning process for us all but knowlege is power.

motif Contributor

thanks, I just need to be more careful. I wasn't aware that gluten is in so many food.

If this is really the reason I feel bad I won't eat anything that even remotely can contain traces of that poison...

Corfuwriter Newbie
thanks, I just need to be more careful. I wasn't aware that gluten is in so many food.

If this is really the reason I feel bad I won't eat anything that even remotely can contain traces of that poison...

I am also new to this, so know what you are going through. I have started a food diary and write down everything I eat and drink, and any reactions I have.

I started with fruit, veg, fresh fish and meat which are usually safe bets, and cut my drinks down to only water. I then added one thing at a time to see if I reacted to it.

I even react to the tiny amount of gluten in stockcubes. Who would have thought it could be in so many things. I read labels all the time now, but even tiny amounts of wheat and gluten upset me. Sometimes they sneak past the label.....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    2. - lalan45 replied to GlorietaKaro's topic in Super Sensitive People
      7

      Am I nuts?

    3. - knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease
      2

      Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)

    4. - SamAlvi posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      High TTG-IgG and Normal TTG-IgA

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,838
    • Most Online (within 30 mins)
      7,748

    Pepper Loo
    Newest Member
    Pepper Loo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
    • SamAlvi
      Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.