Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Liitle Of Gluten Can Screw Me Up?


motif

Recommended Posts

motif Contributor

just wonder, it's almost impossible avoid completely gluten as I see it.

I just got worse after one dinner out and then eating turkey franks which contained starch.

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

As I see it, I can think what I want but my immune system knows better and can't be fooled. It's so tempting sometimes to say "aw, it's probably fine". I have reacted to something that was tested to contain less than 5 parts per million, which seems like so little.

The experiences that I've had in life lead me to think that it is very possible and relatively simple to avoid gluten completely but whether or not we want to travel that road is a different story. It's all about choices.

I had gestational diabetes and chose to regulate it by diet without insulin. I took the charts of foods and portions allowed and started over from scratch as if no other foods existed in the world and said OK this says I can have 1 Lender's bagel, 1 slice of non-fat cheese , etc. etc. what can I make with this. It was not fun but it was 100% successful in accomplishing the goal of maintaining mine and my baby's health by keeping my blood sugar under control.

We can take the same approach to the gluten-free diet and some do. We know that fruits, veg. meats and many other things that nature has provided are gluten-free. The safest approach is to stick with these things and maybe add in gluten-free products that are processed in dedicated facilities by companies that are dedicated to gluten-free.

If we are going to use products or let others prepare our foods it is best to not put anything in our mouths unless we are absolutely sure it is gluten-free, otherwise we take the risk of getting sick.

I'm not making light of the struggles that we all have, just offering another perspective.

Keep coming back to learn and ask questions. And we can help you out with the hot dogs and dining out. It is a continual learning process for us all but knowlege is power.

motif Contributor

thanks, I just need to be more careful. I wasn't aware that gluten is in so many food.

If this is really the reason I feel bad I won't eat anything that even remotely can contain traces of that poison...

Corfuwriter Newbie
  motif said:
thanks, I just need to be more careful. I wasn't aware that gluten is in so many food.

If this is really the reason I feel bad I won't eat anything that even remotely can contain traces of that poison...

I am also new to this, so know what you are going through. I have started a food diary and write down everything I eat and drink, and any reactions I have.

I started with fruit, veg, fresh fish and meat which are usually safe bets, and cut my drinks down to only water. I then added one thing at a time to see if I reacted to it.

I even react to the tiny amount of gluten in stockcubes. Who would have thought it could be in so many things. I read labels all the time now, but even tiny amounts of wheat and gluten upset me. Sometimes they sneak past the label.....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,343
    • Most Online (within 30 mins)
      7,748

    Julie Ransom
    Newest Member
    Julie Ransom
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes would not be affected. WRONG. I have tried this several times since I crossed over to full blown diabetes, because I get so sick eating gluten that I end up getting frustrated and go back to gluten free to get some relief. I have a continuous glucose monitor so it is easy to see how my body and glucose are reacting to foods...
    • Wheatwacked
      Just like you cannot be a little pregnant, you cannot be a little Celiac.  Here is an article I found that explains what the numbers mean. Are You Confused About Your Celiac Disease Lab Results? Here is another article about the non traditional symptoms of Celiac Disease. What Are the Symptoms of Celiac Disease? I've been taking 10,000 IU vitamin D3 since 2015.  My blood tests every 3 months for 25(OH)D have never gone above 93 ng/ml, even in the Florida summer.  70 - 100 is the body's natural homeostasis level. Surge of information on benefits of vitamin D "“When combined with supplemental magnesium, vitamin D repletion has dramatically changed my practice,” said...
    • somethinglikeolivia
      Interesting! Recent labs I had done did show that I was low in Vitamin D so I just began supplementing, it’s hard to tell so soon but it does seem to have a positive affect! Thanks for the input!
    • Scott Adams
      Your frustration and exhaustion are completely valid, and many in the celiac and gluten-sensitive community can relate to the overwhelming confusion you're experiencing. You’re being pulled in different directions by medical advice that seems contradictory, and it’s heartbreaking that your efforts to feel better are met with so many setbacks. Positive TTG IgA antibodies are not something to brush off, especially when combined with your long list of debilitating symptoms that clearly worsen with gluten exposure. A negative biopsy does not necessarily mean you don’t have celiac disease—it’s entirely possible that damage was missed, especially since biopsy results can vary...
    • Wheatwacked
      While a definitive causal link remains unclear, vitamin D's known role in immune modulation and intestinal barrier integrity suggests that it plays a significant role in the development and progression of celiac disease.  Reduced 25(OH)D levels are associated with celiac disease.  In celiac disease, gluten can damage these tight junctions, and vitamin D may play a protective role in this context. 
×
×
  • Create New...