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Just Diagnosed


minnow

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minnow Newbie

I am a 45 year old women who has just been diagnosed with Celiac Disease. Can anyone give me advice on what to do....what to eat, to buy, how to restructure my whole life and how I have done things? I need specific names of things you can buy at the grocery that are safe. Pls Help.


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minnow Newbie

Hi I was just diagnosed with Celiac. I have no idea what to take what to eat should I take supplements how long untill my abdominal symptoms leave and I feel more normal again? I feel lost and don't know where to start. thx

Lisa Mentor

Welcome to the Club! You have found yourself the best source of Celiac information around.

The best advise I can give you is to start simple. Simple meats, seafood, rice, potatoes, fresh veggies and fruits. Limit your seasonings to salt and pepper until you learn what you can expand upon. Wheat, barley, malt, rye and oats are your enemy.

Your old toaster, chopping block, and scratched pots and pans are subject to serious cross contamination as gluten can hide everywhere.

Anything that you can put in your mouth must be checked for gluten, including your shampoo and lip balm or lipsticks.

If this is overwhelming to you, it's because it is! The beginning is very difficult and the learning curve is steep. With the help of these good folks here, they can teach you everything you need to know. Questions are always welcome.

Recovery is different with every one. For a totally recovery, it took me a full two years, with initial improvement within a month or so. It also is correlated to the level of damage. Good health can be yours again with diligence with the gluten free diet. It will get better and you have come to a wonderful place.

~alex~ Explorer

There's not much I can add to the great advice and information that Lisa posted. You may want to stay away from dairy products for awhile since damaged villi can lead to temporary lactose intolerance. It's not a problem for everybody but might be a good idea if you're still feeling sick on the gluten-free diet.

If you haven't already, you may want to get some blood tests to check for deficiencies like anemia, low B12, etc.

I definitely does get easier. I never thought it would become second nature, but it has!

Lisa Mentor

Here is a list of companies who will clearly list all gluten (as in wheat, rye, barley and malt):

Open Original Shared Link

Learning to read labels will be the key to your success. It does get easier.

AndrewNYC Explorer

Depending on how sick you've been you might, for the moment, consider doing something like the caveman diet (meat, vegetables, fruit) for a while, to allow your stomach to heal. newbies inevitably gluten themselves by accident and it slows down the healing process.

I am a 45 year old women who has just been diagnosed with Celiac Disease. Can anyone give me advice on what to do....what to eat, to buy, how to restructure my whole life and how I have done things? I need specific names of things you can buy at the grocery that are safe. Pls Help.
MDRB Explorer

Hi,

You have come to the right place for information. Have a browse through the posts here and have a look at some other sites. When I was diagnosed I cleared out my entire pantry of anything that contains gluten. I stopped eating most processed food and made everything from scratch. I eat the occasional gluten free corn cracker or chocolate biscuit, but other than that, I don't trust companies to list ingredients properly or to avoid cross contamination.

Try to eat foods that are easy to digest, at least until you heal, flax seed oil is really good for this.

Oh, if you live alone, buy a new toaster. If you live with others don't share the toaster!!!!!

Good luck and welcome :)


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    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
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    • catnapt
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    • Wheatwacked
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