Lab Results

[strawberrygm]

The nurse called me this afternoon.

She said my dd's IGA level is 56 and that normal is 68 to 300something.

They want to retest her blood again to confirm.

And then they will scope.

What was everyone elses levels?

[happygirl]

It sounds like the test done was the total IgA level. If she is below the reference ranges, she may be IgA deficient, which is common among Celiacs and makes blood testing for Celiac more difficult.

Was the other bloodwork run for Celiac (IgA level isn't a 'test' for Celiac)...things like EMA IgA, tTG IgA, AGA IgG, and AGA IgA.

If she is IgA deficient, she'll need the tTG IgG test run.

[strawberrygm]

i am not sure.

[feedmykids]

we had my DD's tests done twice and both came back with the same results.

TTG (above 10 was +) she was 0

Anti Gliadin IGA (above 4 was +) she was 6

Anti Gliadin IGG (above 9 was +) she was 74!

SHe doesn't have the TTG because she is actually allergic to the gliadins (in GLuten and Milk (casein)) rather than traditional Celiac. The results are the same if she eats gluten or milk though.

Be careful - Sometime just having and IGA or IGG positive test does not always mean you have celiac it can also show Cystic Fibrosis, Chrones Disease, and food allergies or intolerances (like my DD)

HTH!

[strawberrygm]

see that freaks me out too because when dd was 2, they tested her 3 times to get a negative result on cystic fibrosis. they used the sweat test, the first 2 were right at the breaking point, the 3rd one they called negative.

she is 9 now, is it possible that we would have gone this long with out finding out?

[mcs1984]

my son is 4 and we had the blood work done for the gluten and they came back normal, but we were back at the doctors today and because things are changing they are doing an upper and a lower scope

[feedmykids]

The sweat test is the most accurate test for Cystic Fibrosis. However it all depends on the lab that is doing the test and on how it is done. SOme places will just measure how much sweat is collected (the wrong way) and other test the contents of the sweat itself (the right way) Here in Utah if you have gotten a test done other than at primary CHildrens Hospital -it is considered inaccurate and always redone. We had to drive 4 hours to get her test done there, but it was worth it. Even babies will get a positive result if they are positive so I don't think ti could change later. Have you tastes him - If he has CF, he should taste salty. I have had 2 cousins die from CF and a niece who currently has it -with no family history of celiac we really had to do a lot of testing and even now we sometimes still wonder.

[strawberrygm]

her CF test was done at LeBonheur in Memphis, appx 8 yrs ago. I am not sure what method they use.

I did not like the staff or docs we dealt with there.

We now use Vanderbilt Childrens in Nashville.

Our docs from Vandy faxed orders to our local hospital for bloodwork, they want to redo it to confirm celiac diagnosis. Our hosp doesnt read that test, so they have to send it to another hosp and then that hosp will send it to the Mayo clinic. So, I have to wait a week for results!

[feedmykids]

Hang in there! It seems like the waiting is the hardest part. Whatever the results are, you are being a good mom by doing everything you can to help your kiddo feel better. Keep us updated!