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theycallmewheatthins

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theycallmewheatthins Newbie

I am 19 and just got diagnosed with celiac, its been real hard on me and my body. I am a dedicated runner and went from being state champion in the 800m to a no body because of this disease. I find it extremely hard not to cheat and when i mean cheat i mean on accident. (ill feel the side effects later and know i ate wheat) i get really tired, too the point where i can sleep for 13 hours and feel like i didnt sleep at all. is anyone else going through similiar problems? because im having a hard time with coping with this. any suggestions/comments/concerns are appreciated. thanks so much.


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NorthernElf Enthusiast

Hi,

It's tough, I know. I often use exercise as a remedy for a glutening, mind you these days any glutenings are very accidental, usually just a cross contamination thing since I am very careful what I eat. Research is your best defense - I scour these forums and the internet for information. If I don't know if it is safe, I don't eat it. It did take me a couple of years to get to this point, accepting things rather than fighting them. I've told people that eating gluten is like choosing to have a combination of a flu and a bad hangover. Who wants to do that to themselves ? On purpose ? Knowledge is truly your best weapon to all but eliminate 'accidental' glutenings.

Stupid things...

Smarties in Canada are not gluten free, but M&Ms are.

Rice Krispies (and most other cereals) have barley malt in them.

Wheat starch can show up as a flavoring in canned icing.

A plain burger patty in a restaurant may not be enough since they may toast their buns on the same grill.

Fries are usually a no no because nuggets & onion rings use the same oil...so I eat New York fries but the risk is still there due to their toppings.

Most soy sauces have wheat in them - never made sense to me that Japanese cuisine would even include wheat.

Last but not least - other people don't get it. It just doesn't help us !

  • 2 weeks later...
LuvMoosic4life Collaborator

I am also a runner and in college. Although I don't compete and havent been diagnosed with celiacs, I have found the the reason behind half of my running problems is a reaction to gluten. I tried going gluten free and had so much energy to run it was amazing, and I just felt so great. Before I knew gluten was the problem, my main concern was making it through a run without having to run to the bathroom. This is not good being a distance runner. I also would get horrible fatigue in my muscles. It would take a good mile before endorphines would kick in and the pain would be gone. I also never understood why I couldnt make it up a flight of stairs without it feeling like I had burning bricks in my calves and legs. I tried taking days off from running at a time figuring I was over doing myself, but it never helped, the fatgued feeling wouldnt go away, I went like this for 7 years thinking it just must be the way I am... I've always wanted to train for a marathon, but i know there would be no possible way for me to make it through w/o having to stop ten millon times to go to the bathroom. I have no problem when I'm gluten free.

gfgypsyqueen Enthusiast

If you were a former state champ in running you must be very driven and goal oriented. This disease sucks at times. No one will disagree with that. But, this disease is a blessign in a way - no meds and no side effects to manage the disease. I had many meds with side effects that made it impossible to run or ride a bike let alone think through a problem.

Keep a log of what you ate and how you feel - it made a huge difference for me. Track your glutenings and what effects it has on you and how long until the reaction ends. Start a running log and set reasonable goals. You will see that remaining gluten-free will give you the strength and the ability that you used to have. Soon you will be back to the track meets and winning races again.

Search this site and find the carb loading meals that other Celiacs use for preping for a race.

Hope you feel better.

  • 3 months later...
ar8 Apprentice

Hey there- I am also a distance runner who had hope to train for a marathon this fall, but due to fatigue, and feeling like I am about to get injured/like I am overtraining everytime i try to Run hard two days in a row (more than 4-5 miles at 15-30 seconds/mile less than race pace), and just not getting "better" after a day of rest, I have almost given up. I don't seem to get faster despite incorporating various strategies to avoid overtraining (cross train, days of rest, etc) I have returned to a previous effort to go gluten free and see if it helps (I also have a bathroom issue that flares up often when i run-- bad diarrhea). I seems to have improved after a stint of gluten free and decreasing coffee consumption. I saw your april post and was wondering if you are currently gluten free and if your running has improved since then? How long did it take if so? Did you ever get tested? Did you take a lot of time off to recover or just push through?

I am hoping that I can continue to run (though at a decreased level) while I recover from what I believe is a gluten problem. I have a history of anemia, "IBS," and general fatigue, as well as blood sugar issues and elevated liver enzymes, all of which fits with gluten intolerance. I am actually hopeful that this is my problem as I can FIX it. My knees and hips hurt and my ankles have had many problems despite not doing more than maybe 25-30 miles/week, and often far less. I used to run 8 miles a day at an intense pace, no problem.

I was tested with enterolab, which reported I had gluten intolerance though of course this is not an accepted testing method. I just don't know. Anyway your post struck me in its similarity to my problems and I just wanted to touch base and ask a few q's!

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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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