Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Having Major Hair Loss And Zero Energy...


LisaN

Recommended Posts

LisaN Rookie

I have been gluten free since November 6, 2007. I have been glutened only 3 times since then. I have switched to a gluten free shampoo. I take a multivitamin, biotin, and b-12 daily. I use to have thick, full hair and it has decreased in thickness by over half. What is wrong or what am I doing wrong?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

You might want to get your thyroid checked. Hair loss and fatigue are two major symptoms of hypothyroid. Also people with celiac disease are more likely to have thyroid problems too.

CarlaB Enthusiast

Sounds like thyroid to me, too.

Google Broda Barnes to learn more about subclinical low thyroid.

Be sure they also check your free t3 and free t4. My tests were low across the board, but all in the normal range. I finally got treated based on my low normals and am feeling much more energetic.

My hair is thick again and isn't breaking like it was.

Joni63 Collaborator
I have been gluten free since November 6, 2007. I have been glutened only 3 times since then. I have switched to a gluten free shampoo. I take a multivitamin, biotin, and b-12 daily. I use to have thick, full hair and it has decreased in thickness by over half. What is wrong or what am I doing wrong?

Hi LisaN,

Many things can cause hair loss and low energy. Thyroid, you would need the full panel including free T3 and free T4, iron deficiencies - specifically serum ferritin level. I would also have your doctor check other vitamin levels like all B's, D, E, A, K, magnesium and your iron levels (including serum ferritin).

I'm dealing with this right now and didn't realize how much my hair is starting to come out. My serum ferritin levels and vitamin D levels are extremely low.

Maybe others can chime in with more suggestions.

A multivitamin wouldn't be enough if your very low in any vitamins. It takes large doses to get the levels back to normal, if you are deficient.

LisaN Rookie

Thanks everyone. :) I have had my thyroid tested three times. The first time my doctor said that I was on the verge of having hypothyroidism and to come back in 6 months and test again. I did that and she said that my levels were fine, and again the time after that. Iron is fine although I have been anemic in the past. I also tried to get my doctor to test me for vitamin defencies and she said that with the "american diet" it would be almost impossible to have any defencies... I will go back and get tested again but what happens when the doctor says that my levels are normal?

CarlaB Enthusiast

Have them run another test for free T3 and free T4.

I never tested low .... but I was low normal so we did a trial of thyroid meds .... it made a HUGE difference.

My doctor is holistic. Most conventional doctors probably won't treat unless you actually test low.

Wonka Apprentice
Thanks everyone. :) I have had my thyroid tested three times. The first time my doctor said that I was on the verge of having hypothyroidism and to come back in 6 months and test again. I did that and she said that my levels were fine, and again the time after that. Iron is fine although I have been anemic in the past. I also tried to get my doctor to test me for vitamin defencies and she said that with the "american diet" it would be almost impossible to have any defencies... I will go back and get tested again but what happens when the doctor says that my levels are normal?

Your doctor is not keeping current. People with celiac disease often have malabsorption issues. It's not the food we eat but our ability to absorb the nutrients in our food.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    2. - pothosqueen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Celiac for dummies

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    4. - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,005
    • Most Online (within 30 mins)
      7,748

    William Boyd
    Newest Member
    William Boyd
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
    • pothosqueen
      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
    • trents
      Would it be rude to ask your age?
    • pothosqueen
      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.