Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Return Of The Monster Child


Aleshia

Recommended Posts

Aleshia Contributor

so... we went to a wedding yesterday and there was limited choice of food... we had brought some of our own snacks for the kids but I still gave them some sliced meat and cheese and veggies from the buffet and a bag of potato chips and then I read the ingredients on the potato salad and couldn't see anything obvious on it so gave them some of that too... anyway, I can' figure out if he is just over-tired because we got home late so he didn't get as much good sleep as he usually does (you just cant sleep the same in the car!) or if he was glutanized... maybe there was a hidden ingredient... maybe he got cross contaminated from some of the bread or something that was on the buffet near the meat? I'm pretty sure he didn't take any of the crackers they had there because I had given him some of our rice crackers and he didn't even finish those... the poor guy couldn't even have any of the wedding cake and he didn't even fuss about it... now he's screaming and crying about everything. nothing makes him happy... he didn't want waffles, he wanted his yogurt on a plate :blink: he doesn't want to sleep in his clothes (he woke up in them cause we didn't want to wake him to change into pjs but he's not going to sleep so I don't know why he's saying that) he's fussing about toys and what chair he wants to sit in and he just won't stop... its just constant crying and whining and it gets on my nerves because I can't understand him and there is no reason for it that I can see... I ask him if he gets a tummy ache or anything from anything he eats and he says no... but it must be doing something to him!! in some ways I just want to cuddle him cause I'm sure he doesn't understand why he is acting the way he is and he probably can't control it very well... but in other ways I want to make sure that he knows his behavior is unacceptable and not just allow him to make everyone elses life difficult... oh the mommy guilt! :rolleyes: what to do what to do! :unsure: anyway how do you out there who have this problem deal with it? do you cuddle your child or discipline them?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

While you don't want to tell him that it is okay to behave like that, actually disciplining him wouldn't be appropriate for something that he has no control over. It very much sounds like your son was glutened somehow, and he is suffering and has no idea why he is so miserable.

Just try being loving, without coddling or pitying him. This won't be the last time this happens I am afraid (but hopefully it won't happen often). You just need to bear with it and see if you can minimize the problem. Can you sit him in front of a movie (yes, sometimes it is appropriate to use the TV to pacify a child) with his favourite juice or snack to get a break?

RiceGuy Collaborator

Well, I can only speak from my experiences as a child. I would get so confused I just couldn't function. It was very alarming to me, but my parents just figured I was making it all up so I could stay home from school or something, or that I was intentionally being a brat for some reason. It frustrated me that they didn't listen to what I was trying to explain, but I also couldn't fully comprehend it all since I was feeling so out of it. It was sorta like being detached from your own body, but still trapped inside it. Like you go around watching yourself do bizarre things, as if you're only watching it on a TV screen. Imagine what it might be like to have a second personality split off from your own, and it is the one in control of your body. It wants to follow routine, but it's like you are the one that knows what you're supposed to be doing, and it doesn't. So you want to communicate the instructions, but you don't know how.

That's perhaps the best way I can explain it, the way it happened to me. In such a case I cannot see how discipline is warranted or helpful. If my parents had listened to me, and just said "ok, go back to bed until you feel ok again", I think I would have been able to manage that, as long as they helped me get there.

I'm sure I don't have to tell you that you know your own child best. But no, I do not believe he really wants to be misbehaving.

Aleshia Contributor
Well, I can only speak from my experiences as a child. I would get so confused I just couldn't function. It was very alarming to me, but my parents just figured I was making it all up so I could stay home from school or something, or that I was intentionally being a brat for some reason. It frustrated me that they didn't listen to what I was trying to explain, but I also couldn't fully comprehend it all since I was feeling so out of it. It was sorta like being detached from your own body, but still trapped inside it. Like you go around watching yourself do bizarre things, as if you're only watching it on a TV screen. Imagine what it might be like to have a second personality split off from your own, and it is the one in control of your body. It wants to follow routine, but it's like you are the one that knows what you're supposed to be doing, and it doesn't. So you want to communicate the instructions, but you don't know how.

That's perhaps the best way I can explain it, the way it happened to me. In such a case I cannot see how discipline is warranted or helpful. If my parents had listened to me, and just said "ok, go back to bed until you feel ok again", I think I would have been able to manage that, as long as they helped me get there.

I'm sure I don't have to tell you that you know your own child best. But no, I do not believe he really wants to be misbehaving.

that seems to be how he is acting a lot of the time... I mean he kinda seems in his own little world and you have to tell him something many times before it seems to click in his mind that you are even talking to him... I did tell him to go in his room until he stopped fussing and that when he was settled down he could come out again and try to eat his breakfast... he was crying for an hour then came out and said that he hurt his fingers on the toy box asked for some cuddles said he was better and went and ate his breakfast as if nothing had happened... its so strange!

anyway I'm just glad he's not fussing anymore but he still isn't quite the angel that he was yesterday at least I recognise him as a child now instead of a monster! :lol:

I don't get frustrated to the point of being angry with him anymore now that I know gluten is probably the culprit and he is probably confused about what he feels... if he has brain fog like I do it would be very scary for him at his age to not understand it.... I do get frustrated with myself though... cause its like I don't know what to do.. I got so many conflicting things going through my head... my husband is a lot stricter with the kids than me and I know they walk all over me cause I'm not consistent enough but part of that is because of my own brain fog... I tell them "when we get home you are gonna be in big trouble for that!" then by the time we get home i have totally forgotten all about it... so they get away with it with absolutely no consequences and they know they can do it again next time!

YoloGx Rookie

I so relate. When I got sick my parents would stick me in my room by myself--so really there was no reward. I was so often out of it. I even sometimes saw or heard people when they weren't actually there. I told myself stories and basically hypnotized myself so I could get some sleep. If I was afraid of something I "saw" my mother would calm me down by having me lie down and she would rub my belly.

I highly suggest you give your son digestive enzymes. I just found this stuff called Gluten-zyme by Country Life that save me from D the other day. It was so great! It makes going out to eat not so fearful since it helps one digest glutens better!! Nevertheless its not a cure all; I still got burning and achy feet and calves (which I also had constantly as a child--worse when lying down trying to sleep) though taking extra co-enzyme B vitamins helped counteract some of that. The co-enzyme B's might help your child too--especially with carb and protein metabolism as well as nerve, heart and mental functions.

I also ate a bunch of papaya that same night I got glutened which I think helped counteract the D too. Taking papaya/bromelain caps right away would act similarly.

Taking marshmallow root and/or slippery elm caps 2 to 3 times a day would be soothing and healing for the inflamed villi in his intestines.

Peppermint and chamomile tea are also good soothing additions.

Avoid raw vegetables and fried anything while his intestinal system is so raw. Its also best to eat the cave man (or child?) diet while he is healing--thus few grains and of those have them be whole but cooked. Emphasize root vegetables and squash for now as far as carbs go. Some meat should be OK but not fried.

Fresh pineapple may agree with him too. It has lots of enzymes. I can see why he went for the plain yogurt--again it has good enzymes. And don't give him plain milk--you probably already know that of course!

He may not be able to tolerate much sugar. I never could. Stevia is a good sweetner. In baked goods make sure to use some applesauce to counteract the strange bitter taste it gets if you use much stevia. It really works well.

Hope this helps.

Bea

Aleshia Contributor
I can see why he went for the plain yogurt--again it has good enzymes. And don't give him plain milk--you probably already know that of course!

:) it wasn't "plain yogurt" he wanted... he wanted me to put his yogurt on a plate... he always wants something different than what I give him... has to change things somehow...

as for the milk he refuses to drink milk so I don't force it on him. he prefers cereals either plain or on top of yogurt which is fine with me too. he does like cheese so I figure if he has green vegetables and either yogurt or cheese then at least he is getting some calcium that way.

you mentioned not fried meats... I have been cooking chicken breast in a nonstick pan with no oil or anything. it turns out nice with a brown finish on it... that wouldn't be considered fried right?

dbmamaz Explorer

I just want to say that sometimes when my kids are having a really bad day like that, I'll just sit down calmly with them and say, You arent having a very good day, are you. I'll try to hold them or rub their back and see if they can say what might help, but some days are just like that. I find this also helps when they see another kid (sibling or neighbor) really acting out, we say, it looks like (child x) isnt having a very good day, is he. I feel like it teaches them to understand their own feelings and be compassionate about others too - we're pretty emo around here (my daughter's favorite word) so compassion is important to us, often more important than 'discipline"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cinnamon Apprentice

Sometimes a nice, warm bath helps, maybe with a little Epsom Salts to help them detox.

Aleshia Contributor
Sometimes a nice, warm bath helps, maybe with a little Epsom Salts to help them detox.

ok this is gonna sound terrible... :ph34r: my kids are lucky to get a bath more than once a week :o I don't know why but that is one of the hardest things for me when I am so tired and worn out and stressed out by all the housework I'm behind on... its basically all I can do to feed and clothe them and get the oldest to preschool on time :(

dbmamaz Explorer

wow, bath was one of the first things i'd do when they got cranky . .. just run some water, throw in some bubbles and some toys, tell the oldest one to catch the younger ones if they fall under and yell for me . . . then go somewhere within ear-shot and get a break. If they were bored or cranky or trying to make a mess w water somewhere else .. . throw them in the bath . . . measuring cups and happy meal toys. Sometimes they'd stay an hour! and if you throw in bubble bath, theres not much ring around the tub, which i rarely washed.

Aleshia Contributor
Sometimes they'd stay an hour! and if you throw in bubble bath, theres not much ring around the tub, which i rarely washed.

maybe that is the problem... I wouldn't want to have a bath in the dirty tub... so don't want the kids to and don't have the energy to wash it every time... :P

mammajamma Rookie

I also would give my kids a bath whenever they seemed to be losing control (routine always helped with that, they got a bath every day like clockwork!)... my son has ADHD and now I am wondering if going gluten-free will help him as well... his blood tests were "borderline" but has been losing weight recently and the pediatric GI recommended I get him scoped as well...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,876
    • Most Online (within 30 mins)
      7,748

    pilber309
    Newest Member
    pilber309
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.