Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Diet Changes Everything...


holiday16

Recommended Posts

holiday16 Enthusiast

My sons 5th grade class went on a 3 day trip and we had to put food together for 3 days. I was up so late last night making pizza and bread plus we spent a bunch of money at the store getting smaller sizes of things to send, snacks and some frozen gluten-free meals. Then I had to put together his menu and instructions on how to prepare away from the other food etc. I think we did pretty well as the only thing we forgot to send were a package of hot dogs, but I sent extra protein bars and peanut butter and bread in case he was still hungry after eating his gluten-free food. Since he's been on the diet his appetite has really picked up.

He's supposed to go to a one week boy scout camp this summer and I'm already trying to figure that out. My dh called and he keeps being told they can handle it, but when he talked directly with the lady handling food she seemed pretty clueless. We may have to make a special trip there just to educate them and check out the facilities. Travel I think has been the biggest change for us and the biggest challenge.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CeliacMom2008 Enthusiast

Kudos to you!! Great job on a HUGE task! My mom and I were just saying today at lunch that we've got "at home" down pat. It's outside our houses that is hard. Even eating out at a restaurant is tough, let alone a trip, let alone a trip without us around! Great job on all the extra effort. Now rest up for that scout trip!

Pattymom Newbie

I was just this morning contemplating how to handle scout camp this summer. My son is cub scout so is only going for 2 nights with his Dad, but I'm wondering how to handle it. I hadn't thought about sending the prepared frozen meals, like little TV dinners? My ds would probably like that a lot if I can get creative in the packaging. What gets me is that I am paying for the meals he can't eat, and going to a lot of effort as well.

We are all going to family music camp in 5 weeks, and with three of us gluren free the cost issue really got to me. I usually do well eating salad bars, meat, veggies, but my kids need all the desserts and such that are always around, so I need to pack the cookies, and fun things. And, when I asked I was also assured it wouldn't be a problem, but you never know, and it still means I need to bring baked goods. We went to a different camp last year, but I was the only one on the diet so it was pretty easy, and the camp staff was great. the head cook had a wheat allergy herself, so she kept all my food seperate, and made it clear what I could and couldn't have. I'm hoping to get lucky again!

Patty

ryebaby0 Enthusiast

When my husband and son have gone to Scout camp, we sent all their food (frozen home-prepared meals, packaged and labelled for each day) and it was kept in the kitchen walk-in. I also visited camp in person to talk to the cook My dh would get their food and nuke it himself (the kitchen was unbelievably unkempt and run largely by teenagers). Nobody got sick, but we were always profoundly annoyed that we still had to pay full price for camp. No amount of negotiation could get the council to move on the price! We have done similar things for the times my son has travelled alone and it has gone well. Always talk to the people who are in the kitchen -- not just the managers.

Pattymom Newbie

I am feeling better about his food safety at camp now, but our council also isn't flexible on the price. It just bugs me to pay for something we clearly aren't going to use, Maybe he can try to drink a lot of bug juice to make up for it.

Patty

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,428
    • Most Online (within 30 mins)
      7,748

    Nancy lang adler
    Newest Member
    Nancy lang adler
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      So sorry to hear you are going through this!   What OTC med did you take?  
    • knitty kitty
      Yep,yep,yep, called it from experience.  I've lived through SIBO and Candida myself.  I get a different sorts of reactions to dairy, high sugar consumption, and gluten.  I react to Casein, the protein in dairy.   Try the AIP diet.  Dr. Sarah Ballantyne designed it and is a Celiac herself.  Her book, the Paleo Approach, has been most helpful.
    • knitty kitty
      Yes, I know.   Without sufficient Folate, Cobalamine, and Pyridoxine, the body can't get rid of high homocysteine levels.  High homocysteine levels make one restless, interferes with sleep and resembles ADHD symptoms.  High homocysteine levels occur in Celiac Disease.  Chronic high histamine levels lead to high homocysteine levels. Impact of supplementation with vitamins B6 , B12 , and/or folic acid on the reduction of homocysteine levels in patients with mild cognitive impairment: A systematic review https://pubmed.ncbi.nlm.nih.gov/34058062/ Homocysteine, Pyridoxine, Folate and Vitamin B12 Levels in Children with Attention Deficit Hyperactivity Disorder https://pubmed.ncbi.nlm.nih.gov/30267523/ Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/ Prevalence of hyperhomocysteinemia in adult gluten-sensitive enteropathy at diagnosis: role of B12, folate, and genetics https://pubmed.ncbi.nlm.nih.gov/15952099/ Homocysteine, Vitamins B6 and Folic Acid in Experimental Models of Myocardial Infarction and Heart Failure-How Strong Is That Link? https://pubmed.ncbi.nlm.nih.gov/35454125/
    • Rejoicephd
      You called it @knitty kitty.  I went to another health care provider for another opinion, and based on some tests they did, they suggested I might also be dealing with a fungal issue (candida and/or mold).  I saw that you mentioned before in this chain that some people on this forum also get Candida infections.  So it seems that I am possibly dealing that issue in my gut as well. I think some of the symptoms that I've been not able to understand now make a lot of sense within this context (such as why eating dairy and sugar sometimes causes me to get headaches, joint pain, chills, feel like I have the flu... if these things are making the candida infection worse by feeding the candida, and then my body responds by trying to fight it off, then I basically am fighting off an infection, which is exactly what it feels like).  The flu-like reaction that I get when I eat dairy is a distinct reaction than the one I get from getting glutened (which is also bad, but different: headache, sharp abdominal pains, gas, diarrhea). That's what made me think there was something else at play. 
    • lmemsm
      I'm concerned about calcium.  I don't think I'm getting enough especially since I ended up having to get off dairy when I went gluten free.  However, if you have too much calcium, it can deposit in the wrong places and you can get thinks like bone spurs.  I'd like find a decent supplement for that.  Was thinking of looking into the algae based calcium supplements since they're more natural than some of the others available, but seem rather expensive.  When possible, I try supplement with food sources.  One or two Brazil nuts usually have the full RDA for selenium.  One Barbados cherry has the daily RDA for vitamin C.  I also use seaweed to help supplement iodine since I don't use iodized salt.
×
×
  • Create New...